Benign carcinoid tumor in bronchi tube

Posted by jessie1990 @jessie1990, Oct 30 1:48pm

Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx

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Profile picture for Turkey, Volunteer Mentor @tomrennie

@nannybb @californiazebra @jessie1990 I feel like you folks. I have an appointment with a pulmonologist tomorrow for valley fever (Coccidioidomycosis). Try to say that? Should be fun.

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@tomrennie
That’s a mouthful! How sick do you feel? Just what your lungs needed. I hope they can fix you up!

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Profile picture for Turkey, Volunteer Mentor @tomrennie

@nannybb @californiazebra @jessie1990 I feel like you folks. I have an appointment with a pulmonologist tomorrow for valley fever (Coccidioidomycosis). Try to say that? Should be fun.

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@tomrennie what is valley fever

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Profile picture for nannybb @nannybb

I just looked it up online. Wondering... are you living in an area that has a high rate of people diagnosed with Valley Fever (a bit easier to say)?? Or were you exposed by camping etc. in an area where you would have in haled the spores? Have you been diagnosed with pneumonia? What symptoms have you had that are lingering, and if X-rays have been done, what did they reveal? I'm super interested on several levels. I wondering how this could be different than Mass Cell Activation Syndrome. Is it the bacterial component? Reading about this reveals it can be quite serious. "Valley Fever" sounds so benign. It's not at all. 🙏

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@nannybb I have lived in the desert in Arizona for 30 years. It is pretty common here. I just got back from a couple mile hike in it with my dog actually. It showed up in my most recent scans about two months ago. I already have/had most of the symptoms from my cancer and chemo. I haven't really noticed any changes. I did have pneumonia about eight years ago. Scarring from it shows up in my scans. So, it was kind of funny when the valley fever showed up on my most recent scans. I also have to see the dermatologist tomorrow. I have had a lot of basal cell and squamous cell carcinomas over the years. I have known the dermatologist for over 20 years. He says that he shows his love for me by removing skin cancer from my body. He loved me a lot a year ago with five biopsies and two Mohs procedures. I am hoping to avoid any new skin divots tomorrow. We will see.

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Profile picture for Zebra @californiazebra

@tomrennie
That’s a mouthful! How sick do you feel? Just what your lungs needed. I hope they can fix you up!

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@californiazebra I really don't feel any different. I am thinking that maybe it is something from the past. I had pneumonia before, so the scarring from it shows up on my scans. The valley fever was new. We will see what the doc says tomorrow.

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Profile picture for jessie1990 @jessie1990

@tomrennie what is valley fever

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@jessie1990 It is a fungus that gets in your lungs from breathing in the desert soil where I live. It is pretty common here especially in dogs.

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Profile picture for Turkey, Volunteer Mentor @tomrennie

@nannybb I have lived in the desert in Arizona for 30 years. It is pretty common here. I just got back from a couple mile hike in it with my dog actually. It showed up in my most recent scans about two months ago. I already have/had most of the symptoms from my cancer and chemo. I haven't really noticed any changes. I did have pneumonia about eight years ago. Scarring from it shows up in my scans. So, it was kind of funny when the valley fever showed up on my most recent scans. I also have to see the dermatologist tomorrow. I have had a lot of basal cell and squamous cell carcinomas over the years. I have known the dermatologist for over 20 years. He says that he shows his love for me by removing skin cancer from my body. He loved me a lot a year ago with five biopsies and two Mohs procedures. I am hoping to avoid any new skin divots tomorrow. We will see.

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@tomrennie How does it present in your scans? (the Valley Fever) I know you said scaring shows from past pneumonia in X-rays.

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Profile picture for Turkey, Volunteer Mentor @tomrennie

@jessie1990 It is a fungus that gets in your lungs from breathing in the desert soil where I live. It is pretty common here especially in dogs.

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@tomrennie Wondering if the fungus for Valley is anything like the Mast Cell mold? Maybe that is the big difference. Fungus vs mold.

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Profile picture for Turkey, Volunteer Mentor @tomrennie

@jessie1990 It is a fungus that gets in your lungs from breathing in the desert soil where I live. It is pretty common here especially in dogs.

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@tomrennie oh I hope you feel better soon ❤️

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Profile picture for nannybb @nannybb

@tomrennie How does it present in your scans? (the Valley Fever) I know you said scaring shows from past pneumonia in X-rays.

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@nannybb I didn't actually look at the scans. I read the report and discussed it with my oncologist. He wanted me to see a pulmonologist, so I scheduled the appointment. I know nothing about Mast Cell Mold. He also wanted me to see a hepatologist for some liver cirrhosis. I have that appointment next month. I try not to over think things anymore. If what the oncologist, his team, and I discuss makes sense, I just do it. I trust them, and they trust me. The team of specialists just keeps getting bigger.

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Profile picture for jessie1990 @jessie1990

@tomrennie oh I hope you feel better soon ❤️

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@jessie1990 I haven't really noticed it to be honest.

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