Prolia treatment for osteoporosis: What is your experience?

THANKS so much for your quick response....I just CANCELLED my Prolia shot 10 min before you wrote me.....I felt it might be bad for me & with no Endocrinologist here in N Dakota I plant to go out of state to Cleveland Clinic soon as this snow melts. 2 wks ago I read up on a product from Vanc BC ....I ordered it from there so who knows where its made ....but its called AlgaeCal. Lots of good reviews but like you said maybe there are some people that dont hv good results. AlgaeCal.com When I was searching osteoporosis help online that came up so I read about it for 2 wks then decided why not order it & try it for 6 mos......you might hv heard of it. It should arrive sometime this week ....gel caps 4 per day . With my Microscopic Colitis that gives me much trouble with diarrhea & cramping in stomach I was concerned to get MORE problems going with taking the Prolia injection. Please stay in touch.....I didnt know anyone who was on any meds for osteoporosis...... My T-score scared me.....my GP is an old codger here who had his RN call me to say that he suggested Prolia because he hates Fosamax.....well I had read up on Fosamax & I didnt want that med !
This GP dr is only good enough for easy stuff...not women's bone health. I have to travel 200 miles to my gastro dr & he only sees me 2x a year. I had called his nurse & she ran it by Dr Justino in Minot my gastro dr & he said it was ok to take Prolia with my colitis med Budesonide.....well I want to talk to him in person & ask WHY & will see him March 14, 2019 ~~ I never have felt so 'alone' making a decision about my bones.
4sue.vallejo@gmail.com Susan Vallejo

Be sure to talk to him about what you take when the pollia is finished. I am told that you must follow up with fosamax or similar drug in order to keep any increased bone density!

I have been on Prolia for four years . Inject it myself - retired nurse - . Better for me than the oral medications that made my heartburn worse.

HELP! SUPPOSED TO GET MY SHOT TODAY!! I waited until last minute to research Prolia and after 2 hours in front of the computer, I am ready to cancel my appointment. After a bone density scan last month my doctor recommended that I start Prolia. No other information, just get the shot. I am 58 years old, in very good health, I take no medicine other than the recently recommended Calcium and Vitamin D supplements. I have no known medical conditions other than this recent diagnosis of osteoporosis. The side effects and horror stories here and on other sites terrify me. Ready to cancel. Any words of wisdom?

I rushed into getting a Prolia injection and regret it. I’ve had terrible side effects and my Oncologist seemed shocked that I had such a bad reaction. I wish I would have researched/tried other options first.

HELP! SUPPOSED TO GET MY SHOT TODAY!! I waited until last minute to research Prolia and after 2 hours in front of the computer, I am ready to cancel my appointment. After a bone density scan last month my doctor recommended that I start Prolia. No other information, just get the shot. I am 58 years old, in very good health, I take no medicine other than the recently recommended Calcium and Vitamin D supplements. I have no known medical conditions other than this recent diagnosis of osteoporosis. The side effects and horror stories here and on other sites terrify me. Ready to cancel. Any words of wisdom?

No reason to rush into this. Give yourself time to research Prolia and other osteoporosis drugs. It sounds like your doctor is basing this totally on the results of your DEXA scan. There are many causes of osteoporosis, but doctors don't seem to bother to figure that out, prescribing on the basis of the DEXA alone. And some doctors are prescribing these drugs before they are really needed. I am also learning that there can be discrepancies with the DEXA, and that the technicians often have little training. Did he tell you that you are at risk of rebound fractures when you stop Prolia? Do you have osteoporosis or osteopenia? If you haven't experienced fractures and your scores are in the osteopenia range, treatment may not be warranted. Join some support groups and do your research. Give yourself time to understand what you are getting into.

@cubbysgirl I know exactly how you feel. I'm 65 years old and was advised to get the Prolia injection. My doc said "it's the best we have", and my other doctor couldn't understand why I was worried about side affects. I, like you had my appointment scheduled, but after much research, my gut just told me to stay away from that shot. I'm happy I did, I just try to eat healthy, exercise and work on my balance. Good luck with your decision.