Spinal cord stimulator support
I recently had a spinal cord stimulator implanted and would love to hear from others who have one and their experiences.
Interested in more discussions like this? Go to the Chronic Pain Support Group.
I recently had a spinal cord stimulator implanted and would love to hear from others who have one and their experiences.
Interested in more discussions like this? Go to the Chronic Pain Support Group.
Hi,
Who made the SCS you had implanted? There seems to be a bunch of complanys that make them. Thanks.
Matt
@mattwa600 Mine was Boston Logistics
@anniesezu812
I am so sorry it didn’t help you and seemed to make things worse. Obviously not the outcome one wants but no outcome is usually ever, IF ever, guaranteed in medicine. We are all so individual that one size cannot work for all. 😢
I was a RN who developed back pain and neck pain. I have had 2 back surgeries including spinal fusion and 1 neck surgery, also fusion.
My first back surgery was in 2011. It was good until about 6 years ago when I did something really dumb with my back (don’t ask). I got the Medtronics SC stimulator implanted in January of whatever year Covid made its appearance. I did have to get it adjusted as to where I needed the most sensations which is not done surgically - I met the rep in office and that really helped. I was great until about 2022 when I started getting severe sciatica pain down one leg. I would walk about a mile but then limp home. I finally agreed to surgery (put it off for a year) and had more decompression and fusion done in 3/24. I used the stimulator for post op pain relief for about 10 weeks (plus meds). I haven’t needed to use it since 🤞
I’m 75 so I’m not holding my breath I won’t have back pain again but so far so good.
The neck, argh. I refuse to have another surgery because it would be far more complicated than my first plus other factors that I just didn’t like hearing about re possible complications. It hurts. Bah. 😢
@anthony29621
Wow...so sorry. We all have a story....I guess that's why we're are here.
I honestly feel if we are brave enough we should contact the FDA. They do welcome feed back on such devices. Removal numbers of device are relatively high...guess its lucrative for the Docs😒. Hope you're well.
@wisco50 Thanks for sharing...10 weeks of use not long...mine went off about week 12-13...bad side effects.Take care.
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1 Reaction@linda6101
Did you mean Boston Scientific?
I just got a new stimulator, I went from Medtronic to boston scientific. I'm finding it difficult from going one to another. I have a support staff, but sometimes they are not so helpful. Has anyone have this stimulator? And how does it work for you?
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3 Reactions@plakermike88 Hello friend! Yes, I do! I'm actually going to soon be getting a second one (or dual - but, both are Boston Scientific brand). My local team is great! Do you use the MySCS app, by chance? If not, I would advise it. It has very useful information, including your team members' contact info, ID card, tips, etc. I've had mine for 3 years now and I LOVE it! It has eradicated 85% of all my upper body pain, but I still need a second unit to address my lower body pain. Do you have any specific questions you want answered? I'd be happy to chat with you, if so. Feel free to PM me. 🙂
@bakerswhiskitall
I’ve had the Nevro HFX 10 for two years now to try to help control my CRPS Pain. It has caused more problems than it has helped. Has created severe lower back pain because I have to constantly arch my back to get it to work, they only works if I’m laying flat on my back when I try to sleep I can no longer sleep on my sides, it seems to be aggravating my CRPS nerve pain more than it’s helping. I have constant muscle spasms along my spine where the leads are. At my next doctors appointment I’m going to talk to them about having it removed.
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