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Spinal cord stimulator support

Chronic Pain | Last Active: 7 hours ago | Replies (193)

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I’ve had the Nevro HFX 10 for two years now to try to help control my CRPS Pain. It has caused more problems than it has helped. Has created severe lower back pain because I have to constantly arch my back to get it to work, they only works if I’m laying flat on my back when I try to sleep I can no longer sleep on my sides, it seems to be aggravating my CRPS nerve pain more than it’s helping. I have constant muscle spasms along my spine where the leads are. At my next doctors appointment I’m going to talk to them about having it removed.

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Replies to "I’ve had the Nevro HFX 10 for two years now to try to help control my..."

@daxel79 I'm so sorry to hear this!! :'( I literally "hurt" for you...I have CRPS also, it is not enjoyable. I truly hope your Dr's can find something that works for you and gives you a lot of relief. Oddly, something that really worked for me were the taping techniques my OT taught me. That really cut down on my pain A LOT. But, going out in public with tape all over your body gets looks lol (not that I care). Good luck to you!!

@daxel79
We already connected, but i applaud your decision given your issues. I know you will find a surgeon well conversed with removal. My new pain Dr was furious she didnt get to do it...receptionist error but worked in my favor. Along with the spinal canal bled, hematoma, scar tissue i also needed a laminectomy, have yet to find out if that was Stimulator related. The swelling/ scarring tissue from my battery pack was massive and excruciatingly painful. Im meditating a lot and ' dissolving ' it in my brain. I dont know how much the body can absorb the scar tissue but I find meditating does ease that pain.
Good Luck...keep us posted❤️