Thank you for your experience, yes it was helpful information. My team that I have for the most part is there for me. I have a recharging stim. And the patches that I use doesn't stick to me, do you have this kinda problem?
@plakermike88 Oh good, that's wonderful!! Mine is recharging also. Yes - sometimes they don't bc my stimulator "sticks out" of my back and sometimes my skin is too oily, so a little alcohol goes a long way. If it's during the day, I'll use the battery belt they gave me and it works fine to keep it in place. At night, I'll use the sticky pads and lay on my stomach with it uncovered so there's no barrier to make it overheated or cause slow charging.
@anthony29621
Wow!!! A stroke? The more I hear others experiences with these stimulators the more convinced I am to get it out.
How long did you have yours in and was the surgery to remove it as bad as putting it in?
Thanks so much for sharing
@daxel79
We already connected, but i applaud your decision given your issues. I know you will find a surgeon well conversed with removal. My new pain Dr was furious she didnt get to do it...receptionist error but worked in my favor. Along with the spinal canal bled, hematoma, scar tissue i also needed a laminectomy, have yet to find out if that was Stimulator related. The swelling/ scarring tissue from my battery pack was massive and excruciatingly painful. Im meditating a lot and ' dissolving ' it in my brain. I dont know how much the body can absorb the scar tissue but I find meditating does ease that pain.
Good Luck...keep us posted❤️
@anniesezu812
Wow!!! These things seem to be a nightmare. I am definitely getting it removed before I have more issues like so many do. Presently I have mine turned off because it was creating more pain, even set on no. 1.
I am almost certain that I fried some nerves with it being set to high. The Rep. set it on my last post op appointment 2.5 months ago and have had nothing but pain since.
I am really glad so many of you are telling your experiences, thank you.
@anthony29621
Hi Anthony, I have a question.
Will insurance pay to have the stimulator removed. I believe I have good cause for the removal but not sure my pain doctor sees it like I do.
thanks
@plakermike88 Oh good, that's wonderful!! Mine is recharging also. Yes - sometimes they don't bc my stimulator "sticks out" of my back and sometimes my skin is too oily, so a little alcohol goes a long way. If it's during the day, I'll use the battery belt they gave me and it works fine to keep it in place. At night, I'll use the sticky pads and lay on my stomach with it uncovered so there's no barrier to make it overheated or cause slow charging.
@anthony29621
Hi Anthony, I have a question.
Will insurance pay to have the stimulator removed. I believe I have good cause for the removal but not sure my pain doctor sees it like I do.
thanks
@smithki
Depends on insurance possibly but if you want it out, i dont see how you can be refused. Pls if thats your decision FIGHT for removal, 2 surgeons tried "stonewalling' and placating me to just leave mine in...I cant prove it but I had 7 bulging discs and 1 badly herniated 4 months after inplant. I read these devices can indirectly contribute to this. Gd luck.!
@anthony29621
Hi Anthony, I have a question.
Will insurance pay to have the stimulator removed. I believe I have good cause for the removal but not sure my pain doctor sees it like I do.
thanks
@smithki
No .. insurance will pay .. I had over 60k spent myself trying to fix myself threw treatments .. my insurance would not cover me any more when it went above 40k they pulled the plug .. I was a customer of there’s 30yrs .. I would never bother again ..
@anthony29621
Wow!!! A stroke? The more I hear others experiences with these stimulators the more convinced I am to get it out.
How long did you have yours in and was the surgery to remove it as bad as putting it in?
Thanks so much for sharing
@smithki got mine in 2014 .. it kept breaking down … then I was told the wrong leds were fitted , and I could not have an mri . It kept breaking down .. it’s stopped working completely in 2019 , it was driving my blood pressure up from pain it was left in my body till sept 2024 .. I was put to sleep completely.. never felt a think .. but getting it in was a different story .. I was 6 hrs in surgery awake , to were to put the leads .. then I was wheeled out of surgery to be told they could not get the led up my back .. and they would have to retry surgery again. .. we are pure guepigs for them there just chancing there arms in my opinion..
You’re so very welcome 🩷 I’m sorry you’re going thru this as well. My PM Dr is such a jerk, he dismisses me every time I see him, never believes me. I’m desperately trying to find a new PM Dr😢
@daxel79 I hear you! My PM doc manages my pain pump and that's about it. The pump has not given me any pain relief in two and a half years(except for ONE DAY). I have practically begged him to look for something else to give me some help. But no. He lacks any empathy and refuses to reach out to colleagues for consultation because he knows just about everything. There are no other PM docs in the area that manage pain pumps so I am stuck.
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@plakermike88 Oh good, that's wonderful!! Mine is recharging also. Yes - sometimes they don't bc my stimulator "sticks out" of my back and sometimes my skin is too oily, so a little alcohol goes a long way. If it's during the day, I'll use the battery belt they gave me and it works fine to keep it in place. At night, I'll use the sticky pads and lay on my stomach with it uncovered so there's no barrier to make it overheated or cause slow charging.
@anthony29621
Wow!!! A stroke? The more I hear others experiences with these stimulators the more convinced I am to get it out.
How long did you have yours in and was the surgery to remove it as bad as putting it in?
Thanks so much for sharing
@anniesezu812
Wow!!! These things seem to be a nightmare. I am definitely getting it removed before I have more issues like so many do. Presently I have mine turned off because it was creating more pain, even set on no. 1.
I am almost certain that I fried some nerves with it being set to high. The Rep. set it on my last post op appointment 2.5 months ago and have had nothing but pain since.
I am really glad so many of you are telling your experiences, thank you.
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Hug
1 Reaction@anthony29621
Hi Anthony, I have a question.
Will insurance pay to have the stimulator removed. I believe I have good cause for the removal but not sure my pain doctor sees it like I do.
thanks
I'll try that, thanks! I'll let you know how it goes, if that's ok.
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3 Reactions@plakermike88 Of course it is! If you were local, I'd give you my extra belt. But, you can request they send one to you for free.
@smithki
Depends on insurance possibly but if you want it out, i dont see how you can be refused. Pls if thats your decision FIGHT for removal, 2 surgeons tried "stonewalling' and placating me to just leave mine in...I cant prove it but I had 7 bulging discs and 1 badly herniated 4 months after inplant. I read these devices can indirectly contribute to this. Gd luck.!
@smithki
No .. insurance will pay .. I had over 60k spent myself trying to fix myself threw treatments .. my insurance would not cover me any more when it went above 40k they pulled the plug .. I was a customer of there’s 30yrs .. I would never bother again ..
@smithki got mine in 2014 .. it kept breaking down … then I was told the wrong leds were fitted , and I could not have an mri . It kept breaking down .. it’s stopped working completely in 2019 , it was driving my blood pressure up from pain it was left in my body till sept 2024 .. I was put to sleep completely.. never felt a think .. but getting it in was a different story .. I was 6 hrs in surgery awake , to were to put the leads .. then I was wheeled out of surgery to be told they could not get the led up my back .. and they would have to retry surgery again. .. we are pure guepigs for them there just chancing there arms in my opinion..
@daxel79 I hear you! My PM doc manages my pain pump and that's about it. The pump has not given me any pain relief in two and a half years(except for ONE DAY). I have practically begged him to look for something else to give me some help. But no. He lacks any empathy and refuses to reach out to colleagues for consultation because he knows just about everything. There are no other PM docs in the area that manage pain pumps so I am stuck.