Spinal cord stimulator support

Posted by robyng @robyng, Mar 27, 2024

I recently had a spinal cord stimulator implanted and would love to hear from others who have one and their experiences.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for queenierlb @queenierlb

@lillym I had a SCS implanted just over a year ago. I had a fusion on L4/L5 in 2019. I still have pain but at least Im able to walk long distances. Sitting and standing in place is difficult for me.
Just know that once you commit to having a SCS implanted, you’re stuck with it for years. I recharge my battery every other day. Let me know if you have any other questions.

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Hi,
Who made the SCS you had implanted? There seems to be a bunch of complanys that make them. Thanks.
Matt

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Profile picture for mattwa600 @mattwa600

Hi,
Who made the SCS you had implanted? There seems to be a bunch of complanys that make them. Thanks.
Matt

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@mattwa600 Mine was Boston Logistics

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Profile picture for anniesezu812 @anniesezu812

My story is too lengthy and its already been told, but I am a SCS nightmare story.
I personally would never, ever recommend this device.

My friend is a Nurse and refused one, her nephew is a Dr and also told her he woukd never advise one. If you are lucky they help. I had bleds in the spinal canal, a lot of scarring , severe pain at site of battery and my body rejected the hardware. I also have nerve damage to right leg. Drs
minimize the side effects, they can be profound and very serious. Pls research thoroughly. Mine is out.

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@anniesezu812
I am so sorry it didn’t help you and seemed to make things worse. Obviously not the outcome one wants but no outcome is usually ever, IF ever, guaranteed in medicine. We are all so individual that one size cannot work for all. 😢

I was a RN who developed back pain and neck pain. I have had 2 back surgeries including spinal fusion and 1 neck surgery, also fusion.
My first back surgery was in 2011. It was good until about 6 years ago when I did something really dumb with my back (don’t ask). I got the Medtronics SC stimulator implanted in January of whatever year Covid made its appearance. I did have to get it adjusted as to where I needed the most sensations which is not done surgically - I met the rep in office and that really helped. I was great until about 2022 when I started getting severe sciatica pain down one leg. I would walk about a mile but then limp home. I finally agreed to surgery (put it off for a year) and had more decompression and fusion done in 3/24. I used the stimulator for post op pain relief for about 10 weeks (plus meds). I haven’t needed to use it since 🤞
I’m 75 so I’m not holding my breath I won’t have back pain again but so far so good.
The neck, argh. I refuse to have another surgery because it would be far more complicated than my first plus other factors that I just didn’t like hearing about re possible complications. It hurts. Bah. 😢

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Profile picture for anthony29621 @anthony29621

I got 2 strokes out of mine … the pain has me run down like a battery..

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@anthony29621
Wow...so sorry. We all have a story....I guess that's why we're are here.
I honestly feel if we are brave enough we should contact the FDA. They do welcome feed back on such devices. Removal numbers of device are relatively high...guess its lucrative for the Docs😒. Hope you're well.

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Profile picture for wisco50 @wisco50

@anniesezu812
I am so sorry it didn’t help you and seemed to make things worse. Obviously not the outcome one wants but no outcome is usually ever, IF ever, guaranteed in medicine. We are all so individual that one size cannot work for all. 😢

I was a RN who developed back pain and neck pain. I have had 2 back surgeries including spinal fusion and 1 neck surgery, also fusion.
My first back surgery was in 2011. It was good until about 6 years ago when I did something really dumb with my back (don’t ask). I got the Medtronics SC stimulator implanted in January of whatever year Covid made its appearance. I did have to get it adjusted as to where I needed the most sensations which is not done surgically - I met the rep in office and that really helped. I was great until about 2022 when I started getting severe sciatica pain down one leg. I would walk about a mile but then limp home. I finally agreed to surgery (put it off for a year) and had more decompression and fusion done in 3/24. I used the stimulator for post op pain relief for about 10 weeks (plus meds). I haven’t needed to use it since 🤞
I’m 75 so I’m not holding my breath I won’t have back pain again but so far so good.
The neck, argh. I refuse to have another surgery because it would be far more complicated than my first plus other factors that I just didn’t like hearing about re possible complications. It hurts. Bah. 😢

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@wisco50 Thanks for sharing...10 weeks of use not long...mine went off about week 12-13...bad side effects.Take care.

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Profile picture for linda6101 @linda6101

@mattwa600 Mine was Boston Logistics

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@linda6101

Did you mean Boston Scientific?

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I just got a new stimulator, I went from Medtronic to boston scientific. I'm finding it difficult from going one to another. I have a support staff, but sometimes they are not so helpful. Has anyone have this stimulator? And how does it work for you?

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Profile picture for plakermike88 @plakermike88

I just got a new stimulator, I went from Medtronic to boston scientific. I'm finding it difficult from going one to another. I have a support staff, but sometimes they are not so helpful. Has anyone have this stimulator? And how does it work for you?

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@plakermike88 Hello friend! Yes, I do! I'm actually going to soon be getting a second one (or dual - but, both are Boston Scientific brand). My local team is great! Do you use the MySCS app, by chance? If not, I would advise it. It has very useful information, including your team members' contact info, ID card, tips, etc. I've had mine for 3 years now and I LOVE it! It has eradicated 85% of all my upper body pain, but I still need a second unit to address my lower body pain. Do you have any specific questions you want answered? I'd be happy to chat with you, if so. Feel free to PM me. 🙂

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Profile picture for bakerswhiskitall @bakerswhiskitall

A spinal cord stimulator has been suggested for me. I too am interested in hearing experiences from people who have the implant.

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I’ve had the Nevro HFX 10 for two years now to try to help control my CRPS Pain. It has caused more problems than it has helped. Has created severe lower back pain because I have to constantly arch my back to get it to work, they only works if I’m laying flat on my back when I try to sleep I can no longer sleep on my sides, it seems to be aggravating my CRPS nerve pain more than it’s helping. I have constant muscle spasms along my spine where the leads are. At my next doctors appointment I’m going to talk to them about having it removed.

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