@anniesezu812
I am so sorry it didn’t help you and seemed to make things worse. Obviously not the outcome one wants but no outcome is usually ever, IF ever, guaranteed in medicine. We are all so individual that one size cannot work for all. 😢
I was a RN who developed back pain and neck pain. I have had 2 back surgeries including spinal fusion and 1 neck surgery, also fusion.
My first back surgery was in 2011. It was good until about 6 years ago when I did something really dumb with my back (don’t ask). I got the Medtronics SC stimulator implanted in January of whatever year Covid made its appearance. I did have to get it adjusted as to where I needed the most sensations which is not done surgically - I met the rep in office and that really helped. I was great until about 2022 when I started getting severe sciatica pain down one leg. I would walk about a mile but then limp home. I finally agreed to surgery (put it off for a year) and had more decompression and fusion done in 3/24. I used the stimulator for post op pain relief for about 10 weeks (plus meds). I haven’t needed to use it since 🤞
I’m 75 so I’m not holding my breath I won’t have back pain again but so far so good.
The neck, argh. I refuse to have another surgery because it would be far more complicated than my first plus other factors that I just didn’t like hearing about re possible complications. It hurts. Bah. 😢
I just got a new stimulator, I went from Medtronic to boston scientific. I'm finding it difficult from going one to another. I have a support staff, but sometimes they are not so helpful. Has anyone have this stimulator? And how does it work for you?
I just got a new stimulator, I went from Medtronic to boston scientific. I'm finding it difficult from going one to another. I have a support staff, but sometimes they are not so helpful. Has anyone have this stimulator? And how does it work for you?
@plakermike88 Hello friend! Yes, I do! I'm actually going to soon be getting a second one (or dual - but, both are Boston Scientific brand). My local team is great! Do you use the MySCS app, by chance? If not, I would advise it. It has very useful information, including your team members' contact info, ID card, tips, etc. I've had mine for 3 years now and I LOVE it! It has eradicated 85% of all my upper body pain, but I still need a second unit to address my lower body pain. Do you have any specific questions you want answered? I'd be happy to chat with you, if so. Feel free to PM me. 🙂
I’ve had the Nevro HFX 10 for two years now to try to help control my CRPS Pain. It has caused more problems than it has helped. Has created severe lower back pain because I have to constantly arch my back to get it to work, they only works if I’m laying flat on my back when I try to sleep I can no longer sleep on my sides, it seems to be aggravating my CRPS nerve pain more than it’s helping. I have constant muscle spasms along my spine where the leads are. At my next doctors appointment I’m going to talk to them about having it removed.
I’ve had the Nevro HFX 10 for two years now to try to help control my CRPS Pain. It has caused more problems than it has helped. Has created severe lower back pain because I have to constantly arch my back to get it to work, they only works if I’m laying flat on my back when I try to sleep I can no longer sleep on my sides, it seems to be aggravating my CRPS nerve pain more than it’s helping. I have constant muscle spasms along my spine where the leads are. At my next doctors appointment I’m going to talk to them about having it removed.
@daxel79 I'm so sorry to hear this!! :'( I literally "hurt" for you...I have CRPS also, it is not enjoyable. I truly hope your Dr's can find something that works for you and gives you a lot of relief. Oddly, something that really worked for me were the taping techniques my OT taught me. That really cut down on my pain A LOT. But, going out in public with tape all over your body gets looks lol (not that I care). Good luck to you!!
I had an Abbott pain stimulator installed this year, I am 3 months in and not only am I in more pain but it seems it was the tech’s responsibility for a failure to correctly manage pain. On my last visit to the second post op visit with pain management and the Abbott Rep, they set my unit to the burst program on number 12. Not given clear instructions on how to set it I just left it on the setting that the Rep set it on.
3 months having the unit off and on I have developed nerve pain in a very embarrassing part of my body( If you know what I mean) I went back and told the pain Doc and a different Rep. the nerve pain issue that has literally altered my life, from my sleep and intimacy. They took a live X-ray of my back and said the lead wires were in the right spot but they were very much stumped on my constant nerve pain. After the X-ray the other Rep. that was not there at surgery , stopped me outstide and asked me question. The thing I told her was that I concluded the unit is hurting me .
When I turn it on I begin to have new places it burns very bad. Now it is painful all of the time. The Rep. told me to set the controller to 3 be cause 12 is way to high. Then she made a comment about stimulators set to high can burn nerves.I believe that is what has happened and now I have the same burning day and night with the unit off. I have an appointment to talk about where we go from here. If damage has been done because of the stimulator , it will be coming out and we will be talking what can be done . I would say between the Rep and the unit itself , there is some things needed to be said and done, not sure what that will entail. Has anyone had these issued????
Oh and by the way I had a through exam with blood and urine tests and a procedure at the Urologist to rule out any issues . He concluded that my pain, obviously nerve pain was the stimulator because he could find nothing to cause that kind of pain..
I had an Abbott pain stimulator installed this year, I am 3 months in and not only am I in more pain but it seems it was the tech’s responsibility for a failure to correctly manage pain. On my last visit to the second post op visit with pain management and the Abbott Rep, they set my unit to the burst program on number 12. Not given clear instructions on how to set it I just left it on the setting that the Rep set it on.
3 months having the unit off and on I have developed nerve pain in a very embarrassing part of my body( If you know what I mean) I went back and told the pain Doc and a different Rep. the nerve pain issue that has literally altered my life, from my sleep and intimacy. They took a live X-ray of my back and said the lead wires were in the right spot but they were very much stumped on my constant nerve pain. After the X-ray the other Rep. that was not there at surgery , stopped me outstide and asked me question. The thing I told her was that I concluded the unit is hurting me .
When I turn it on I begin to have new places it burns very bad. Now it is painful all of the time. The Rep. told me to set the controller to 3 be cause 12 is way to high. Then she made a comment about stimulators set to high can burn nerves.I believe that is what has happened and now I have the same burning day and night with the unit off. I have an appointment to talk about where we go from here. If damage has been done because of the stimulator , it will be coming out and we will be talking what can be done . I would say between the Rep and the unit itself , there is some things needed to be said and done, not sure what that will entail. Has anyone had these issued????
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@wisco50 Thanks for sharing...10 weeks of use not long...mine went off about week 12-13...bad side effects.Take care.
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1 Reaction@linda6101
Did you mean Boston Scientific?
I just got a new stimulator, I went from Medtronic to boston scientific. I'm finding it difficult from going one to another. I have a support staff, but sometimes they are not so helpful. Has anyone have this stimulator? And how does it work for you?
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3 Reactions@plakermike88 Hello friend! Yes, I do! I'm actually going to soon be getting a second one (or dual - but, both are Boston Scientific brand). My local team is great! Do you use the MySCS app, by chance? If not, I would advise it. It has very useful information, including your team members' contact info, ID card, tips, etc. I've had mine for 3 years now and I LOVE it! It has eradicated 85% of all my upper body pain, but I still need a second unit to address my lower body pain. Do you have any specific questions you want answered? I'd be happy to chat with you, if so. Feel free to PM me. 🙂
@bakerswhiskitall
I’ve had the Nevro HFX 10 for two years now to try to help control my CRPS Pain. It has caused more problems than it has helped. Has created severe lower back pain because I have to constantly arch my back to get it to work, they only works if I’m laying flat on my back when I try to sleep I can no longer sleep on my sides, it seems to be aggravating my CRPS nerve pain more than it’s helping. I have constant muscle spasms along my spine where the leads are. At my next doctors appointment I’m going to talk to them about having it removed.
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Helpful -
Hug
2 Reactions@daxel79 I'm so sorry to hear this!! :'( I literally "hurt" for you...I have CRPS also, it is not enjoyable. I truly hope your Dr's can find something that works for you and gives you a lot of relief. Oddly, something that really worked for me were the taping techniques my OT taught me. That really cut down on my pain A LOT. But, going out in public with tape all over your body gets looks lol (not that I care). Good luck to you!!
-
Like -
Helpful -
Hug
2 ReactionsI had an Abbott pain stimulator installed this year, I am 3 months in and not only am I in more pain but it seems it was the tech’s responsibility for a failure to correctly manage pain. On my last visit to the second post op visit with pain management and the Abbott Rep, they set my unit to the burst program on number 12. Not given clear instructions on how to set it I just left it on the setting that the Rep set it on.
3 months having the unit off and on I have developed nerve pain in a very embarrassing part of my body( If you know what I mean) I went back and told the pain Doc and a different Rep. the nerve pain issue that has literally altered my life, from my sleep and intimacy. They took a live X-ray of my back and said the lead wires were in the right spot but they were very much stumped on my constant nerve pain. After the X-ray the other Rep. that was not there at surgery , stopped me outstide and asked me question. The thing I told her was that I concluded the unit is hurting me .
When I turn it on I begin to have new places it burns very bad. Now it is painful all of the time. The Rep. told me to set the controller to 3 be cause 12 is way to high. Then she made a comment about stimulators set to high can burn nerves.I believe that is what has happened and now I have the same burning day and night with the unit off. I have an appointment to talk about where we go from here. If damage has been done because of the stimulator , it will be coming out and we will be talking what can be done . I would say between the Rep and the unit itself , there is some things needed to be said and done, not sure what that will entail. Has anyone had these issued????
Oh and by the way I had a through exam with blood and urine tests and a procedure at the Urologist to rule out any issues . He concluded that my pain, obviously nerve pain was the stimulator because he could find nothing to cause that kind of pain..
@smithki