Vaginal burning: What could it be?

Posted by mmoss @mmoss, Mar 30, 2021

I am a 67 year old who in the last two months have a severe burning sensation in my vaginal area. I have been to every specialist and no one knows why. I have had a CT, Ultra sound, and been examined numerous times. There are no findings to what is causing this pain. I have no underlying medical conditions. Prior to this I was extremely healthy. Now I am in pain management and desperately want to be off pain medication and find a Dr who can diagnose what is happening to cause this burning. Any suggestions would be extremely welcome.

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Profile picture for health77 @health77

It sounds like Vulvodinia! I had terrible burning too in 2008 and I was sent to a neurologist who discovered the problem.I used Gabapentin and amytriptyline for years and high doses,I now only take 1 gabapentin and 1 amytriptyline once a day and I haven’t had any pain for years.It took quiet a while to discover the problem.I remember that I could only wear baggy pants,skirts,and dresses.Good Luck!

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@health77 what was the problem if I may ask?

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Do you have itching with the burning sensation also? A feeling of “cuts?” If so, ask your gynecologist if it’s Lichen Sclerosus (aka LS). A biopsy of the area can confirm.
I truly hope you find an answer soon. Best of health to you.

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Very late to this post, just found these support groups. Women complaining of pain and being pushed aside is far too common. Throw in a vagina and beyond baby-making years? There is so little research on women in general when it comes to medicine. I'm waiting for the day that a doctor slaps me out of my "hysteria", as they did in the old days. I have chronic back pain. Burning in the vaginal area, for me, I've deduced comes when I pee and I'm especially dry. What can I do about it? Nothing I've discovered.

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Have your doctor check for Paget's disease and get yourself a Bidet. It helps with urine burning

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I have had this for years since having a urostomy 18 years ago. I’ve tried every medication known to man for nerve pain, pain meds strong as morphine or opana, nerve blocks in vagina and pelvic floor, in the scars etc… Recently, was prescribed Atarax, and it is helping at night some along with ice. It does dull it some. My nerve pain is now progressing into my hip and down one leg into my foot. I’ve been told absolutely nothing really helps this type of pain. It’s awful. I know exactly what you are dealing with.

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Profile picture for patriciaconner513 @patriciaconner513

I have had this for years since having a urostomy 18 years ago. I’ve tried every medication known to man for nerve pain, pain meds strong as morphine or opana, nerve blocks in vagina and pelvic floor, in the scars etc… Recently, was prescribed Atarax, and it is helping at night some along with ice. It does dull it some. My nerve pain is now progressing into my hip and down one leg into my foot. I’ve been told absolutely nothing really helps this type of pain. It’s awful. I know exactly what you are dealing with.

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@patriciaconner513— I had the same symptoms off and on for a decade. Finally my urologist suggested Estrogen cream (Estrodiol) and it worked wonders and stopped the problem. The secret is not to use the amount specified on the package, as that is too much (at least for me) and caused a burning sensation. My doctor suggested a pea-sized dollop every other day to start with, and lo and behold, that worked. It helped with a number of issues like the extreme dryness, burning, incontinence, and the studies I read said there is no association with breast cancer since such a low amount is absorbed. Now I use it as needed.

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Profile picture for maymore @maymore

@patriciaconner513— I had the same symptoms off and on for a decade. Finally my urologist suggested Estrogen cream (Estrodiol) and it worked wonders and stopped the problem. The secret is not to use the amount specified on the package, as that is too much (at least for me) and caused a burning sensation. My doctor suggested a pea-sized dollop every other day to start with, and lo and behold, that worked. It helped with a number of issues like the extreme dryness, burning, incontinence, and the studies I read said there is no association with breast cancer since such a low amount is absorbed. Now I use it as needed.

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@maymore They have me on .2 grams now every other night but, it burns me too. Had to stop for a bit. So far not helping but, he did tell me it would take six months if it was going to help.

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Profile picture for patriciaconner513 @patriciaconner513

@maymore They have me on .2 grams now every other night but, it burns me too. Had to stop for a bit. So far not helping but, he did tell me it would take six months if it was going to help.

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@patriciaconner513 not sure how much that is but the pea size dollop worked wonders. And she said not to use the applicator but your finger. When the burning was bad at night I would freeze water in a small nutritional drink bottle and wrap it in a small towel for between my legs. That was wonderful. I haven’t had a flareup in years since following that protocol.

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Profile picture for maymore @maymore

@patriciaconner513 not sure how much that is but the pea size dollop worked wonders. And she said not to use the applicator but your finger. When the burning was bad at night I would freeze water in a small nutritional drink bottle and wrap it in a small towel for between my legs. That was wonderful. I haven’t had a flareup in years since following that protocol.

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@maymore Thank you. I will try using less. So far it’s not helping but, I’m going to continue. I use perineal ice packs but, they thaw out very quickly. I’ll try your method. Thank you.

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Profile picture for lazyhazycrazy @lazyhazycrazy

Very late to this post, just found these support groups. Women complaining of pain and being pushed aside is far too common. Throw in a vagina and beyond baby-making years? There is so little research on women in general when it comes to medicine. I'm waiting for the day that a doctor slaps me out of my "hysteria", as they did in the old days. I have chronic back pain. Burning in the vaginal area, for me, I've deduced comes when I pee and I'm especially dry. What can I do about it? Nothing I've discovered.

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@lazyhazycrazy
Hi,
For some reason we women often have problems in our vaginal areas. I know I do. I put an antibiotic cream in the area that is itchy or burning etc. It seems to help a lot. It goes away but eventually may come back so I apply the cream again. Also drinking a lot of water helps too.
PML

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