Living with Parkinson's Disease - Meet others & come say hi
Welcome to the Parkinson's Disease group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with Parkinson's or caring for someone with Parkinson's. Let's learn from each other and share stories about living well with Parkinson's, coping with the bumps and offering tips.
Chances are you'll to be greeted by fellow member and volunteer patient Mentor, Teresa (@hopeful33250), when you post to this group.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Parkinson's Disease Support Group.
Many colleges have stopped making English classes a requirement for STEM
degrees, using the argument that there's so much techie stuff that they
haven't time for silly foo-foo classes like English. So, these kids
graduate with their heads full of knowledge, but they are incapable of
writing a coherent English sentence. And they are hired by companies like
the one I worked for. These kids were gyped by their educators because no
one realized that, while it's fabulous that they have all this valuable
information between their own ears, it's totally useless if they are unable
to put this information between the ears of OTHER people. And the way that
we do that is language. While explaining something face-to-face is useful,
it is not sufficient ---- we also have to put it in writing so more people
can have the benefit of all the things you have learned. So, much of my
work involved teaching our brlliant young people how to write, and brutally
pencil-whipping what they put down on paper so that it could be understood
by someone who may not know all the things they knew. So sending all my
typos out into the world can be a tad more distressing for me than it is
for normal folks. But I am congenitially unable to abstain from putting
words -- lots and lots of words--together and sending them out into the
world in the hope that they can be helpful -- or at least amusing -- to
others (because making folks chuckle a bit is also helpful, at least for
me ).
@jatonlouise
Well said! Actually I loved English in school and college. I actually met my spouse in my High School English class. That was when I was 15yo. Older and sometimes wiser. 💕🫂
Hi my name is Jonimac52 . I am 73 & was diagnosed with light Parkinson’s first of Jan this year. Have not been able to walk since November of last year. I’m on carbadopa/levadopa 25/100 and currently see outpatient therapist twice a week. With the meds and therapy I’ve regained some ability to stand and walk a few steps assisted. I have problems keeping my blood pressure regulated so getting up and down can be tricky as it causes orthostatic hypertension. Anyone else experiencing the same?
@jonimac52 - welcome. I'm glad you have a diagnosis and know what you are dealing with.
Exciting you've regained some ability to stand and walk!
How are you feeling about this still relatively new diagnosis? Are you experiencing any side effects from the medications so far?
How do others deal with Parkinson's anxiety
Hello @larias1955, and welcome to the PD support group on Mayo Connect. From your post, it sounds like PD is a recent diagnosis for you. Is my understanding correct?
You ask how to deal with anxiety related to PD. The best way to relieve anxiety is to be as proactive as possible. My suggestion would be to have an evaluation by a movement disorder specialist who can suggest medications to control the most troubling symptoms. There is also specific physical therapy that can reduce PD symptoms.
I look forward to hearing from you again. Please share what you have done so far to treat your PD symptoms.