Living with Parkinson's Disease - Meet others & come say hi

Thank you. I will take a look at the links. I appreciate the advice and support.

@larias1955
I think the person who has Parkinsons goes through so much and everything is stressful and can be overwhelming. The ones who love and care for them also feel their stress and their own . Day in and day out...what is going to happen today? Will he fall? Will he sucumb to his disease process. I have cried and we have laughed. But life is not easy right now. Some days feel like he has gotten closer to the end. Then those days seem normal, like it used to. Please know that I only know what I research and what our Physicians say. No one is promised another day or less. Life is worth having and it can change to the better or worse. Live each day to its fullest. If you need help, than get the help. No one can tell you how to live. Don't let an illness define you. God bless you and 🫂💕

@cartercd
Hi, I'm Emmy. Parkinsons diagnosis in 2020. I've been taking the generic for Sinemet for Carbidopa/Levodopa and the generic for Lodosyn for Carbidopa.
I'm considering starting a new drug names Crexont. I'd like some feedback on experiences with taking this drug from the group.
Thanks so much.

Anyone have some dietary suggestions for Parkinson's that have been helpful?

@emmys - a discussion of carbidopa/levodopa (Crexont) all by itself would be a really good one, if you'd be willing to start it. You'd go to the home page for the Mayo Clinic Connect Parkinson's Disease support group, https://connect.mayoclinic.org/group/parkinsons-disease/, and scroll down to just under the blue box on the left side to click on "Start a new discussion."

@colleenyoung I’m a caregiver for my almost 86 year old husband with Parkinson’s and dementia. I’m a young 84 but 5 feet tall and weigh 100 pounds. For 2 years, I’ve taken care of my husband myself. At that time, his symptoms were pretty mild but he did have a few unmanageable incidents. Ultimately, I could not manage him and after 2 serious incidents where I had to call 911, as of August 12, 2025, I placed him in a memory care residence. His symptoms are primarily cognitive. I am just coming out of a terrifying and traumatizing nightmare of activity and emotions related to his swift decline. At the same time as I was grieving the loss of him and suddenly living alone, I had to get control of our assets from someone who had been in charge of it all and could not tell me anything about anything due to his cognitive loss. Things have mostly settled down now. My agonizing over whether I made the right decision about putting him in a residence when every day he was desperately pleading, threatening, or trying to leave is mainly over. He’s now more adjusted to his situation although he really hadn’t grasped his condition and still thinks it will be over one day and he’ll come home. He has times when he’s lucid and my heart sings only to be broken again when he regresses. At the age of 84, I am faced with making a new life. I tried the caregiver’s group once before but couldn’t face being in it. I’m not in denial but I still don’t know if I want to focus like this.

The Davis Phinney Foundation hosts a monthly webinar for people with PD and their caregivers. Here is information about this month's speaker.

Join us for our November Live Well Today webinar featuring Dr. Christina Swan. In this webinar, Dr. Swan, a movement disorder specialist from Rush University, will discuss the advanced or “next-step” treatments you and your care team may consider if your Parkinson’s symptoms are becoming complex.

Dr. Swan will discuss extended-release and infusion medications, deep-brain stimulation, focused ultrasound, and more. We’ll also discuss the right questions to ask your doctor so you can make informed decisions.

While Dr. Swan will not be able to provide individual recommendations, her deep experience and passion for helping those with advancing Parkinson’s symptoms will help you as you consider how to live well, today and in the future.

Live Well Today Webinar: "Advanced and Next-Step Parkinson’s Therapies: What You Need to Know" Featuring Dr. Christina Swan

When: Thursday, November 6, 2025, at: 9 am MT/Denver; 8 am PT/Los Angeles; 10 am CT/Chicago; 11 am ET/New York time

In order to register for this webinar, please go to the Davis Phinney Foundation website.

@janetgeller9

I appreciate your sincere post about your life after placing your husband in memory care. What a brave decision to make! It sounds like he has adjusted to this new normal, but I can understand how difficult it is for you.

It is essential for you to find a support system. Do you have friends that you can call and perhaps get together for lunch or a movie? If not, what about joining a community-based group? Many public libraries, as well as community senior centers, offer classes and social groups where you can discuss books, play cards, or participate in activities with other senior adults who are also living alone.

Will you share a bit about your family and what friendship groups you might be able to connect with?

@hopeful33250 thank you so much.

@hopeful33250 Thank you so much.