Living with Parkinson's Disease - Meet others & come say hi

Welcome to the Parkinson's Disease group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with Parkinson's or caring for someone with Parkinson's. Let's learn from each other and share stories about living well with Parkinson's, coping with the bumps and offering tips.

Chances are you'll to be greeted by fellow member and volunteer patient Mentor, Teresa (@hopeful33250), when you post to this group.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Profile picture for Teresa, Volunteer Mentor @hopeful33250

@janetgeller9

I appreciate your sincere post about your life after placing your husband in memory care. What a brave decision to make! It sounds like he has adjusted to this new normal, but I can understand how difficult it is for you.

It is essential for you to find a support system. Do you have friends that you can call and perhaps get together for lunch or a movie? If not, what about joining a community-based group? Many public libraries, as well as community senior centers, offer classes and social groups where you can discuss books, play cards, or participate in activities with other senior adults who are also living alone.

Will you share a bit about your family and what friendship groups you might be able to connect with?

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@hopeful33250 Yes, Thsnk you for reaching out. I’m pretty isolated. Friends and family no longer live in NYC which is where I live. I have a lot of telephone support but no live persons to give me hugs, hold my hand, etc. We married late and do not have children. While friends tried to be helpful on the phone, I’ve faced all of the big decisions alone and by myself, all while grieving the decline of a vital man. I’ve gotten myself some help-a social worker for support and resource finding, a therapist to work through my feelings. I’m the kind of person with mobilizing anxiety-I don’t stop until I get it done. When getting it done was finished, I could cry when alone. I’ve taken myself out to dinner from time to time and while I’m OK eating alone, it’s no fun.What has helped me is distance walking almost daily, blitzing out over TV where I could forget about my troubles and getting enough sleep. The biggest challenge was accessing our money which I now have control over and am the POA. I recently joined some organizations in order to make new friends and get involved. There are still many things to take care of but the really big ones are more in control now.

REPLY
Profile picture for janetgeller9 @janetgeller9

@hopeful33250 Yes, Thsnk you for reaching out. I’m pretty isolated. Friends and family no longer live in NYC which is where I live. I have a lot of telephone support but no live persons to give me hugs, hold my hand, etc. We married late and do not have children. While friends tried to be helpful on the phone, I’ve faced all of the big decisions alone and by myself, all while grieving the decline of a vital man. I’ve gotten myself some help-a social worker for support and resource finding, a therapist to work through my feelings. I’m the kind of person with mobilizing anxiety-I don’t stop until I get it done. When getting it done was finished, I could cry when alone. I’ve taken myself out to dinner from time to time and while I’m OK eating alone, it’s no fun.What has helped me is distance walking almost daily, blitzing out over TV where I could forget about my troubles and getting enough sleep. The biggest challenge was accessing our money which I now have control over and am the POA. I recently joined some organizations in order to make new friends and get involved. There are still many things to take care of but the really big ones are more in control now.

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@janetgeller9 I'm so glad to hear of all of the progress you have made in taking care of yourself! Please accept my virtual hug and continue reaching out and finding the support you need.

Will you continue to post and let me know how you are doing?

REPLY
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