Has anyone used Mucomyst (acetylcysteeine nebulization?
I would be interested in hearing about your experiences- was it helpful in loosening sputum and were there side effects or other inconvenience?
Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.
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Sue-
Related to all you wrote above....
Certain events that we have lived through in the last couple of decades brought me to the conclusion that things happen and more than likely it is more than one thing (a culmination of things and events) that caused the problem, sad event or health problem.
I think one could add STRESS to one of the reasons we find ourselves being diagnosed with BE. Stress causes harm to the immune system, we might go into depression and as well either eat wrong or just not eat. My two cents worth because of my looking back to answer my question to myself..."How did this happen, what caused this BE."
I can repeat a a good couple of things you mentioned along with the stress factor I was in from childhood and in adulthood. Forward we go with the knowledge and understandings we now have!
Barbara
Hi Barbara -
My life, at least most of it, has not felt stressful to me, because I have always had an amazing support system around me. Our diet has always been healthy, focused mainly on fruits, vegetables, beans, seeds, dairy, fish and moderate amounts of red meat.
But I do feel my bronchiectasis was the culmination of the many assaults, throughout my life, on my lungs. I forgot to mention in my earlier post that in every generation, we have had several severely asthmatic people, so heredity plays a big role. I grew up between a coal-fired power plant and heavy industry, near the railroad tracks in the "inner city". The tracks, backlots of the factories, and riverfront formed part of our playground as kids, and a lot of what we played on and around has since been banned as hazardous. The air quality left a lot to be desired, and several members of my family have always had lung issues as a result.
Oh my Sue-
"I grew up between a coal-fired power plant and heavy industry, near the railroad tracks in the "inner city".
I read a while back, and it does sound logical, that once a healthy person's cells/genes have changed due to factors such as you mentioned (coal fired power plant etc.)....those bad cells/genes that they developed are passed onto the off springs (children etc.) . I know that our cells can be altered after birth but had not thought of our genes being altered ....and the way that they work.
My Mom was into good nutrition and vitamin C supplements etc, when we were kids growing up. We ate healty meals and had very little sugary foods etc. I have, more so now that I was diagnosed with the BE, avoided sugary foods and most of the things we know we should not indulge in...especially often. So yes...fruits, veggies, beans, lentils, seeds, nuts, poultry, some fish, and a steak or burger once in a blue moon. Oh, and that favorite of mine...ice cream once in a blue moon.
I just didn't know how detrimental/harmful/damaging etc. etc. our environment could be to those of us who have had illnesses that affected our lungs and could be one of the underlying reasons we end up developing BE eventually.
I enjoy your shares and helpful information!
Barbara
@scoop
I've found nebulizing glutathione to be very helpful, have also supplemented with NAC and glycine (glyNAC) to help my body produce glutathione on its own.
Glutathione isn't cheap at $42/100 dose.
I was prescribed acetylcysteine 10% by my previous pulmonologist at NJH and used it as needed 6ml twice a day. I think it dissolves mucus a little. When I asked last week Dr Gerber at NJH he said without much conviction that I can do it. Strohm what kind of glutathione do you buy?
@sueinmn , does anyone know if NAC is over the counter or covered by insurance or medicare d drug plan?
@tte NAC is over the counter and is usually under $20 for 90 pills.
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1 Reaction@tte NAC is an unregulated supplement, and you need to buy from a reputable supplier. I decided a couple years ago that it wasn't a significant benefit to me, so I don't know who the current best suppliers are. Look for USP certification for the product, not just the company.
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1 ReactionAcetylcysteine was prescribed by a nJH pulmonologist to use as needed twice a day to nebulize. My insurance covered it. I started using it hoping it helps with my mucus issues.
I use it twice a day and find it helpful in thinning mucus.