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Low energy

Posted by britchic @britchic, Oct 13, 2024

Diagnosed with MAC over 18 months ago and was put on the big 3. After 5 months I was taken off riamprin due to having adverse reaction to it. Continued on with 2 antibiotics only to be told I needed to add arikacye . Since being on arikayce I’m more breathless and have zero energy wanting to sleep all the time. I have no ambition to do anything and if I’m honest I’m pretty depressed even though I take a low dose of antidepressant. I have a very supportive husband who works long hours and then comes home and cooks dinner which makes me feel guilty and so the vicious cycle starts again. Anyone else feel like this?

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blm1007blm1007 | @blm1007blm1007 | Sep 21 8:28pm
In reply to @mtyler "I don't always look at posting date either , sorry about that. I am so with..." + (show)
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I don't always look at posting date either , sorry about that. I am so with you all with NTM and Bronchietasis.. The exhaustion is something people don't understand, especially the doctors. I am not on any MAC meds right now as I have been that route with very little improvement and bad side effects in 2020. Housework, meal prep , errands I cannot hardly do any more. Working full time yet takes absolutely all my energy until I turn 64 when I can then resign my position and be comfortable enough to pay for my own health insurance , but I rely on my husband for all of the day to day housekeeping tasks right now. So sad so many of us are in this position, but I have hope. Mayo Clinic Connect is a life line for many of us to share our experiences and gain tidbits of valuable knowledge.

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This really means a great deal ....it means he understands etc. " I rely on my husband for all of the day to day housekeeping tasks right now"........kudos to your husband.
It is not only the disease itself that zaps you of your energy it is also the nebulizing routine followed by the AC Breathing Techniques and then what can be a very trying period of huff coughing to get it all up and out.
The best to you both.
Barbara

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