Fibromuscular dysplasia (FMD): Want to connect

Posted by lpyne @lpyne, May 17, 2024

I have had 2 neck CT scans and both found MFD- my neurologist states it’s nothing to worry about. In the mean time I have suffered from chronic dizziness, headaches, anxiety symptoms, ringing ears. I have seen a cardiologist, neuro vascular specialist and had a wide variety of tests that all seem normal- except the neck CT. No MFD in renal artery. Curious if I should ignore it like my doctor is telling me or if I should seek a second opinion?

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

welshgirl | @welshgirl | Aug 19 2:35pm

What is the best diagnostic tool for monitoring FMD?
MRI? CT Scan?

parrot53 | @parrot53 | Aug 20 8:18am

In reply to @caroline58 "We take low-dose aspirin because we have a high risk of stroke with both blood clots..." + (show)

I can no longer take low dose aspirin as I developed gastric ulcers probably due to cirrhosis of the liver.

E. Mack | @emack | Aug 20 3:55pm

In reply to @welshgirl "What is the best diagnostic tool for monitoring FMD? MRI? CT Scan?" + (show)

I was diagnosed 4 years ago from an MRI, and just need annual ultrasounds on my carotid and bi-annual on renals.

welshgirl | @welshgirl | Aug 20 6:00pm

Thanks!
I assume ultrasounds are less expensive than mris but still give the required information?

chanda79 | @chanda79 | Aug 21 9:47am

In reply to @welshgirl "Thanks! I assume ultrasounds are less expensive than mris but still give the required information?" + (show)

My diagnosis was from CTA head/neck, CT of renal and ultrasound of carotid. Does anyone know what scan they use for coronary/heart?

chanda79 | @chanda79 | Aug 21 9:50am

Has anyone found a Mayo doctor who specializes in FMD?

welshgirl | @welshgirl | Aug 21 4:35pm

In reply to @chanda79 "My diagnosis was from CTA head/neck, CT of renal and ultrasound of carotid. Does anyone know..." + (show)

👍

caroline58 | @caroline58 | Aug 21 11:37pm

In reply to @parrot53 "I can no longer take low dose aspirin as I developed gastric ulcers probably due to..." + (show)

Same for me right now, no baby aspirin at all this week and probably longer as I had severe abdominal pain this weekend and no statins for my blood fats for a month either, hugs!

parrot53 | @parrot53 | Aug 22 6:32am

I am sorry to hear that. Hoping for you that they find the cause of your pain. I am dealing with lower quadrant pain and trying to figure out what is causing it. Wishing you well.

Janell, Volunteer Mentor | @jlharsh | Aug 24 3:05pm

In reply to @chanda79 "Has anyone found a Mayo doctor who specializes in FMD?" + (show)

Hi @chanda79
I am a Mayo Clinic MN patient, though I do not have experience with fibromuscular dysplasia.

I found a Mayo Clinic Overview of FD that describes symptoms, treatments, and how their integrative care works. There is a page included listing doctors and departments you may find helpful: https://www.mayoclinic.org/diseases-conditions/fibromuscular-dysplasia/doctors-departments/ddc-20352151
- Make an appointment here: http://mayocl.in/1mtmR63

What Mayo Clinic location are you interested in visiting?

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