Fibromuscular dysplasia (FMD): Want to connect

Posted by lpyne @lpyne, May 17, 2024

I have had 2 neck CT scans and both found MFD- my neurologist states it’s nothing to worry about. In the mean time I have suffered from chronic dizziness, headaches, anxiety symptoms, ringing ears. I have seen a cardiologist, neuro vascular specialist and had a wide variety of tests that all seem normal- except the neck CT. No MFD in renal artery. Curious if I should ignore it like my doctor is telling me or if I should seek a second opinion?

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Profile picture for Janell, Volunteer Mentor @jlharsh

Hi @chanda79
I am a Mayo Clinic MN patient, though I do not have experience with fibromuscular dysplasia.

I found a Mayo Clinic Overview of FD that describes symptoms, treatments, and how their integrative care works. There is a page included listing doctors and departments you may find helpful: https://www.mayoclinic.org/diseases-conditions/fibromuscular-dysplasia/doctors-departments/ddc-20352151
- Make an appointment here: http://mayocl.in/1mtmR63

What Mayo Clinic location are you interested in visiting?

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I live in FL and have a derm appointment in MN so also trying to see an FMD specialist there in Nov. Currently in Jacksonville, there’s no 3D camera (for skin cancer tracking) and no FMD specialist that I can find.

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Profile picture for chanda79 @chanda79

I live in FL and have a derm appointment in MN so also trying to see an FMD specialist there in Nov. Currently in Jacksonville, there’s no 3D camera (for skin cancer tracking) and no FMD specialist that I can find.

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@chanda79
Wonderful, you have a good opportunity to explore possibilities in MN then.

Do you think you will call to see if Mayo Clinic’s FMD department will be able to help you?

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