Evenity

Yes. I had my third shot last week and am awakened every night with pain in my knees, hips, and elbows and am very stiff on getting up. I have not been getting headaches, though.

I am hoping that it will dissipate as time goes on. I really need this treatment so I will continue even with this side effect. It can be challenging, though. I try to stay hydrated and active although I had to move my exercise workout from first thing in the morning to a bit later in the day due to the discomfort.

I am 64 and have been on osteoporosis meds for 7 years (Fosamax, Tymlos, Forteo). I will likely do Reclast after the Evenity. I am unwilling to go on Prolia at my age even though the doctor suggested it as her preferred option after Evenity. Perhaps when I am older.

Yes. I had my third shot last week and am awakened every night with pain in my knees, hips, and elbows and am very stiff on getting up. I have not been getting headaches, though.

I am hoping that it will dissipate as time goes on. I really need this treatment so I will continue even with this side effect. It can be challenging, though. I try to stay hydrated and active although I had to move my exercise workout from first thing in the morning to a bit later in the day due to the discomfort.

I am 64 and have been on osteoporosis meds for 7 years (Fosamax, Tymlos, Forteo). I will likely do Reclast after the Evenity. I am unwilling to go on Prolia at my age even though the doctor suggested it as her preferred option after Evenity. Perhaps when I am older.

Is there a reason you don’t want to go on Prolia? I’ve had that suggested for me.

Sorry you are experiencing the joint pain. I see the dr next Tuesday. I know that joint pain is the most common side effect. Very hard though to be woken up by this intense knee and other joint pain. Also the insomnia doesn’t help!
This is the first osteoporosis med I’ve been on. So yes, pushing through! Three down, 9 to go. I set appointments through the end of the year to have them scheduled. Makes it easier to check schedule and any potential travel.
I am anxious to see results of next scan in 2 months!

It's because of the rebound effect. During your time on Prolia, your body continues to produce the bone-breakdown cells called osteoclasts but they don't mature fully. Instead, they accumulate and when you stop the drug, they develop to maturity and go to work breaking down bone. This flurry of bone destruction weakens your bones and can cause multiple fractures soon after stopping the drug.

This means you must stay on the drug for the rest of your life or go through more treatment with other drugs like Reclast or alendronate if you come off Prolia.

I am 64 and hopefully have many more years to live and deal with this disease. I think there is a time and a place for Prolia but I hope to push it out as long as I can.

I would recommend asking your provider about Reclast. I am on Evenity now (6 mo in) (no problems with it). I was talking to my doctor about "what next"? He suggested Prolia but I asked about Reclast (several reasons I don't want to take Prolia now-found on this forum) and he said okay. So as of now that will be my next drug. I don't know if your situation would warrant it but it wouldn't hurt to ask. I would sit down and ask your provider to map a course so you know what will happen (as much as possible). Not knowing makes it easier in my opinion.

I have had dizziness, headache, and tinnitus after starting Evenity. I had an MRI of my brain, lab tests, and everything is normal. I stopped my statin, thinking this was the problem, but my symptoms did not improve. Has anyone had the same experience? I have had 5 injections so far, and symptoms are getting worse.

I have had dizziness, headache, and tinnitus after starting Evenity. I had an MRI of my brain, lab tests, and everything is normal. I stopped my statin, thinking this was the problem, but my symptoms did not improve. Has anyone had the same experience? I have had 5 injections so far, and symptoms are getting worse.