Evenity

I broke my hip on the same day as my 4th injection of Evenity.
A fragility fracture requiring an emergency Total Hip Replacement (R).
I fell in 2019, fragility fracture, breaking my left hip and requiring an emergency Total Hip Replacement.
I am now bilateral.

Hi, I have just joined to see if anyone else has had this problem. My blood pressure was elevated for over 2 days after my second shot of Evenity. I only noticed because I happened to check my BP. I don't know if it occurred after the first injection.
I have told my doctor that I am not comfortable continuing with the injections.

Very interesting question. My blood pressure is usually around 115/64. I take my blood pressure nearly every day. But every time I go in for my Evenity infusion it starts at about 150/60. We usually go with three rounds of waiting 15 minutes to see if it will come down. But it goes up over this 45 minute routine. Once it was 196/70 on the third attempt. I think this is because I am stressed because I know that the medical providers will not give me the infusion if my BP is too high. But I have not missed any of my infusions so far; I am about half way through.
I chose to travel each month to get these infusions, rather than have them within 6 miles from me. It was important to me to be where I felt I would get good care even if something did not go as planned. It is true that BP is a concern. I am glad that I have my infusions in an infusion center that is a part of a highly recognized heart center/hospital.

Specific to your question, I'll make a concerted effort to take my BP several times over the 48 hours after my next infusion. I'll report back. But I stress again that my concerns are alleviated because of where I have my infusion. [See my prior comment.]

Hi everyone,
I'm new to this forum and fairly new to navigating life with osteoporosis. I was diagnosed just a couple of years ago, and I'm now 66. Before my diagnosis, I was fortunate to be in good health and didn’t take any medications. The osteoporosis came as a surprise and was only discovered after I suffered a vertebral fracture and was sent for a DEXA scan.
My initial bone density results were quite severe: a T-score of -5.5 in the lumbar spine, -3.8 at the femoral neck, and -3.9 in the hip. I recently completed a year of Evenity with no side effects, and thankfully, there has been some improvement. My most recent scores are: lumbar spine -4.8, femoral neck -3.6, and hip -3.3.
Now, my doctor is recommending that I start Prolia. I'm struggling with her comment that I will likely on it “for the rest of my life.” That really gave me pause. I’m doing my best to support my bones through diet, supplements, and regular weight-bearing exercise, but I know medication is likely necessary to preserve the gains I've made and help prevent future fractures.
Is Prolia truly the only next step? And does it usually mean a lifelong commitment? I’d really appreciate hearing from others who’ve been down this road — your experiences and advice would mean a lot.
Thank you so much.

I would recommend asking your provider about Reclast. I am on Evenity now (6 mo in) (no problems with it). I was talking to my doctor about "what next"? He suggested Prolia but I asked about Reclast (several reasons I don't want to take Prolia now-found on this forum) and he said okay. So as of now that will be my next drug. I don't know if your situation would warrant it but it wouldn't hurt to ask. I would sit down and ask your provider to map a course so you know what will happen (as much as possible). Not knowing makes it easier in my opinion.

You could do fosamax for a year or two then go back on Evenity. That would be best. Otherwise, Prolia sounds right until some other medication comes around.

Is anyone familiar with ALGAE-CAL as an alternative treatment for osteoporosis? Thank you

A correction to my post: I wrote "not knowing makes it easier" but I meant "makes it harder". Thank you

I have had 2 months of Evenity shots. Third month in 10 days. Anyone have joint pain that wakes you up in the night….like vise grip on knees, and hard to move. Doesn’t hurt when I am walking….
The joint pain pressure accompanied by low pain headache. I too was surprised at the diagnosis bc of exercise etc. I am 75 and concerned about the ongoing rest of your life treatment statements!
What is the common follow up med after the year of evenity?