Has anyone experienced internal vibrations?

Hi, I have myokymia twitches throughout my body referred to by the medical community as “limb myokymia”. It all started after the worst summer ever: Covid, family dog passed away and other tremendous/sad stressors. After an urgent care visit I was sent to a neurologist for more testing. (I thought I had ALS.) Three months later I had an EMG and the neuro said everything was benign and that it was myokymia. You can imagine the absolute fear and stress I experienced before the nerve testing. People who are “neuroreactive” (this is my term not an actual medical term), are basically fueled by cortisol, adrenaline and fear. We feel everything 1000% more intensely: fear, anxiety, depression, etc. Maybe there’s food allergies, autoimmune issues or gastrointestinal problems. Basically our bodies attack us! “Neuroreactive” means having an abundance of extra sensory energy and being over-hypersensitive to the world. So yes, I’ve felt those vibrations. I rack it up to just being overstimulated and an energy absorber. My body reacts and there’s nothing I can do to hide it anymore—the cup spilled over so to speak!

Ok Ty for the information. I had a couple EMGs and they only showed lack of sural nerve activity. Said due to swelling. One doctor said it may be pain response instead of feeling pain I vibrate. All I know is when I am purring/vibrating strongly my blood pressure and pulse are both very high.

Hey Everyone! I’m 50 y/o and have been experiencing tremors only while laying in my bed at night I’ve had my roommate lay in my bed for a few minutes and he felt nothing I feel like I’m losing it bc I keep feeling the vibrations especially when I’m laying on my side while trying to sleep I’m already on Gabapentin for anxiety but it hasn’t changed the vibrations I don’t know if they are internal or external What should I say to my doctor when I see her Friday for my monthly appointment? I even thought it was construction being I live in NJ or maybe my air conditioning unit but nope it’s just this weird light vibration I only feel when I’m lying in my bed

...sorry I do not know but maybe get a third person to try out bed/tremours... but am interested in responses you get. I am much older .. hardly drive my VW Golf so spouse does and when he stops car and turns off ignition, I definitely can feel vibrations/tremours but he cannot neither can my adult daughter when she drives me. I am not imagining it, I really feel something is still running. (I also have hearing issues and trying to figure out if I am actually "hearing" the vibrations?) Hope you get some helpful answers ... J.

I was having internal vibrations only at night as well for a long time. I’ve been ramping up vitamin B 12 and noticed I haven’t had any in a while now. You might consider a good B COMPLEX - take every day and see if they subside. I also take an extra B 12. A B deficiency can wreak havoc on the body.

Hello. I'm sorry to hear you're suffering from internal tremors. I know how uncomfortable and scary this can be.

Have you looked into the possibility of your internal tremors resulting as a side effect of gabapentin? If not, I'd begin there. A brief Google search will provide more info on this.

Agreed about the B 12 and B complex recommendation below. Why not start with this, since it's low hanging fruit? If it helps, great. If not, you'll keep seeking answers.

I too have this issue. It started exactly as you describe but has progressed over a period of months. For me, it's an issue related to dysautonomia (dysregulated autonomic nervous system [ANS]). You may want to begin researching this condition. You may also want to read about Postural Orthostatic Tachycardia Syndrome (POTS) and Mast Cell Activation Syndrome (MCAS) and see if anything rings true for you, since people with these conditions have reported experiencing internal tremors. Personally, I see a definite correlation between my internal tremors/vibrations and my digestion, probably due to SIBO, for which I have tested positive. I believe this is related to the vagus nerve. If you don't know anything about the vagus nerve, it's worth learning about. There are many books available through the public library in both a print and ebook format on all of these topics.

Internal tremors have also been reported by a large number of people suffering from long covid, possibly due to issues with the ANS.

I wish I could be more optimist about your doctor's visit but I have learned through experience that even very competent doctors can be clueless about this condition. It's just not something that's easy to understand or treat. You will have to be your own advocate and, through your research and self-advocacy, there's a strong chance you will find answers and treatment.

I wish you the best of luck in your healing journey.

Did you get it figured out?

Have you found anything out yet or recommendations?

been to 4 neurologists with these internal tremors and so much more. anyway the 1st neuro actually told me to ask my pcp, needless to say i fired her, in so many words. the next 3 said i have pd carp/lev did absolutely nothing and getting worse weak muscles legs/arms. voice so weak.

I have experienced something I refer to as "Internal Vibrations". In my situation they occur randomly and are caused by anxiety, for which I take an anxyolitic (Venlafaxine). They are strictly "Internal" and do not cause any physical tremors. I do, however, experience true physical tremors, as well, from time to time, for which a Benzodiazepine (Clonazepam in my case) resolves them.