Worsening exhaustion and LC symptoms

Yeah it sucks and after all the different doctors, treatments and research nothing gets rid of the virus from your body. Only help with symptoms. I do daily injections with Wolverine (a peptide combo) it’s has great healing affects and it helps me feel more normal. But it’s only healing damages from the virus. I just pray one day it’ll go away.

Crowlee - I have the same symptoms as you. For me, COVID blessed me with a whole set of food allergies - one of which will make my eyes swell. I did the elimination diet for two months and found allergies to dairy, blue-mold cheeses, such as Stilton, Roquefort and Gorgonzola, gluten, nightshade vegetables, sugar, cream and corn.

I had heat intolerance for about three years Post COVID...could not even go out for more than a few minutes in the summer...but that has improved. Dysautonomia from COVID can cause this.

I am taking LDN now which seems to be settling down some symptoms including providing pain relief. I still have food allergies but not as bad...and still have fatigue but I can now walk half a mile almost every day.

Vostie I am so sorry that you’re suffering with all that, but am happy to hear you’re getting better! May I ask, what is LDN? I’m not familiar with that. I’m not taking anything for LC specifically at present

I googled N-acetylcysteine and it said NAC has been studied for its potential in cleaning out the SARS-CoV-2 spike protein. Just thought I would mention it.
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I just started NAC (Thorne brand, which appears to be a very reputable brand) five days ago, specifically for rapidly worsening GI issues that may or may not even be related to my Long Covid, but I have already noticed drastic improvements in my GI symptoms. NAC is mucolytic and can break up bacterial biofilms in the gut that can cause a slew of issues (decreased microbial diversity, absorption issues, etc.).

NAC is also the precursor to glutathione, which is the body’s natural antioxidant, and NAC has been shown to reduce inflammation in animal models (specifically interleukins and TNF-a, which are some of the cytokines shown to be elevated in people with LC). It is being used as part of a treatment protocol by Yale in combination with guanfacine (which I have not tried). It’s a pretty potent supplement, so dosage, side effects and potential drug interactions need to be considered. Definitely good to let your doctor know if you are thinking about trying it.

Crowlee—LDN is low dose naltraxone. It is given in high doses (50 mg+) to help opiate abusers get off of opiates. Low dose naltraxone in 1.5 mg-6mg is given to those with long covid. It appears to help with fatique. I am on 3 mg at present and don’t note a lot of difference in my fatigue level.

tslayden - thank you! Turns out I have tried that, but didn't realize it was called that. (didn't help and had side effects)

Vostie and Crowley ~I can’t explain this very well, but I’m on four daily doses of OTC antihistamines (Pepcid, Zyrtec and xyzal) and that seems to help my congestion and drippy nose. I’m also trying to follow a low histamine diet, which isn’t easy because some of the foods I eat regularly and consider healthy are NOT! Spinach, tomatoes, the cheeses you mentioned, bananas, etc, all apparently activate histamines in our system, whether or not we test as allergic to them. There is a lot of info about histamines and diet online. I think the drugs and cutting back on histamine-heavy foods is helping. But giving up spinach?! Hard! (I used to eat a lot of it…cause it is good for us, right?

Essiee - I also take a Zyrtec at night but I choose not start the Pepcid or Xyzal for the full coverage of the COVID induced mast cell activation. Spinach does not bother me but the nightshades (tomato, potato, peppers, eggplant) really make me worse. The low dose naltrexone is helping with the inflammation - even in the sinuses.