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So scared: Brain tumor on watch and wait has grown
Hello everyone. I have been doing the "watch and wait" approach on a 1cm non-enhancing tumor in my right temporal lobe for the past 2 and a half years. On my MRI last week the tumor enhanced for the first time. I do not know what type of tumor it is because we were just watching it... Now I am headed to Mayo in the morning to meet with a neurosurgeon.. My life has been flipped upside down within a matter of days. Has anyone else had a tumor in their right temporal lobe? I ask for lots of prayers of complete healing for all of us xoxoxox
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Rosesareredmylove - do you think it could be shrunk using Gamma Knife radiation? It's not as invasive as surgery and I know at the Gamma Knife Center in Providence, RI, they did this. I had mind done there and it has been shrinking every year. Now I only have MRIs every 5 or so years and it is still shrinking. Just something else to throw into your idea cart! Wishing you well as always.
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2 ReactionsHi @amkaloha:
I've been told if the tumor continues to grow back. I will have the option of spot radiation to remove it from my brain stem..The issue is., its resting on my nerves and my surgeons are hesistant at this point..
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1 ReactionI have a grade 2 astrocytoma with the primary tumor behind my left eye bordered by my optic nerve and carotid artery and then there is a wing that extends out into my left frontal and temporal lobe that is intermingled with normal brain tissue. Because of the location of primary tumor and the extent of other tumor I was not a candidate for surgery or radiation. I took a year of oral chemo therapy. They said it is not a matter of if it grows but when because these tumors always evolve into higher grade tumor. They gave me 5-7 years to live. That was 15 years ago and my tumor remains stable. You just never know. Good luck. Hope it is going well for you.
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3 ReactionsI hope Mayo clinic finds some answers and relief for you I certainly will follow your case. I am on a watch and see type of schedule too. I go in April. Which Mayo do you go to?
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1 ReactionKeeping you wrapped in prayers.
Dawn
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2 Reactions@dawn_giacabazi Hi Dawn: I just love the phrase "wrapped in prayers"! Great word picture, isn't it? Blessings to you today! Teresa
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1 ReactionThank you. I love this.
I go to the Rochester MN campus. They are amazing. I'm so blessed to live in a state with such an amazing hospital. They saved my life. My neurologist told me my tumor was inoperable, but boy was he wrong. My neurosurgeon removed my tumor plus some and I was discharged home less than 48 hours later. I am so blessed!
I go to the Mayo in Jacksonville Florida. Have a wonderful neurologist working on my headaches and looking to get a neurosurgeon there. I also see an endocrinologist there for my thyroid. I am being watched for my 9 nodules, one being very concerning they said. I go in April for that and will have to have blood work, a CT scan and something else....I forget....Wishing you the best. Praying hard for you....
I did look online and found a neurosurgeon from MN Mayo has relocated to Florida Mayo. I may look into going to him. Great credentials and awesome reviews.