I have been trying to find some actual people who have tried any of the Stem Cell treatments being offered. Especially interested in the Cellular Therapy being offered at many clinics in the USA. Not knowing who or what to believe is very difficult. I have also heard that Aloe Vera is an effective treatment that can help immensely I don't know how much of this is true either. I am on oxygen therapy 24/7 and my nose runs so much that I am desperate. I have tried Saline Solution, Sesame seed oil, Aloe Vera from the plant inside my nose. I have a humidity container on my oxygen consentrator and also a humidifier in my bedroom. I have been trying to take off the oxygen for an hour or so every few hours but my oxygen gets low and I go into A-fib. Nothing has worked to stop my runny nose. It truly makes me want to just give up. I am also in remission for stage 3B lung cancer since August 2018.
Hi @justapril, I moved your message to this existing discussion about COPD and stem cell therapy in the Lung Health group. I recommend reading through the past messages in this discussion as well as these:
I have been trying to find some actual people who have tried any of the Stem Cell treatments being offered. Especially interested in the Cellular Therapy being offered at many clinics in the USA. Not knowing who or what to believe is very difficult. I have also heard that Aloe Vera is an effective treatment that can help immensely I don't know how much of this is true either. I am on oxygen therapy 24/7 and my nose runs so much that I am desperate. I have tried Saline Solution, Sesame seed oil, Aloe Vera from the plant inside my nose. I have a humidity container on my oxygen consentrator and also a humidifier in my bedroom. I have been trying to take off the oxygen for an hour or so every few hours but my oxygen gets low and I go into A-fib. Nothing has worked to stop my runny nose. It truly makes me want to just give up. I am also in remission for stage 3B lung cancer since August 2018.
@justapril- Hello and welcome to Connect. I'm sorry that I missed your original question. I do not monitor the group that you first posted on. I know that it can be confusing because there are so many groups on Connect. We try to help so many people!
I have had NSCLC for the past 21+ years. What kind of lung cancer do you have? Will you tell me more about your lung cancer history? What treatments have you had?
Having a constant nose drip must be extremely taxing. Have you consulted with an EMT? If your nose is irritated than rubbing some aloe on it is a good idea or even white Vaseline.
I had stem cells from bone marrow in my knees 3 years ago and swear it helped me tremendously...within about 30-60 days there was a noticable difference and as long as I keep on the bike 10 minutes a day to keep the blood flowing thru them, I can walk easily with little pain.
I had stem cells from bone marrow in my knees 3 years ago and swear it helped me tremendously...within about 30-60 days there was a noticable difference and as long as I keep on the bike 10 minutes a day to keep the blood flowing thru them, I can walk easily with little pain.
@cchristoph That is great, pain free is good. I just want to mention that stem cell therapy for knees and lungs are two very different things. There are a number of good proven FDA stem cell therapies available for different medical conditions. Unfortunately, lungs are much more complicated.
@justapril- Hello and welcome to Connect. I'm sorry that I missed your original question. I do not monitor the group that you first posted on. I know that it can be confusing because there are so many groups on Connect. We try to help so many people!
I have had NSCLC for the past 21+ years. What kind of lung cancer do you have? Will you tell me more about your lung cancer history? What treatments have you had?
Having a constant nose drip must be extremely taxing. Have you consulted with an EMT? If your nose is irritated than rubbing some aloe on it is a good idea or even white Vaseline.
Hello Merry@merpreb I am happy to hear you are still here fighting 21 yrs later. I was diagnosed with NSCLC squamous cell stage 3 in July of 2017. Went through 7 weeks of radiation 5 days a week and Chemo weekly. After the radiation and chemo I was put on Imfinzi Immunotherapy. 6 months into the treatment I developed a reaction and had to stop treatments. On my next scan I was told I am in remission that was in August 2018. I had mild COPD diagnosed in 2014 right before quitting smoking. Since stopping treatments my breathing has gotten much worse. I had a spell where I stopped breathing and was rushed to the hospital where they diagnosed severe COPD, a-fib and Congestive heart failure. I was given Xarelto 20 mg for the a-fib and 200 mg Amiodarone HCL 4 times a day which the Cardiologist stopped after 2 weeks as it was making me ill. Also I read it could cause lung cancer. I have been having some days now when the oxygen does not cause my nose to drip constantly. I switched my cannulas to Salter Labs 16000 series both 4ft and 7 feet and it has been amazingly helpful. As I stated in my last post I am really looking for information on Umbilical cord stem cell therapies. I am still doing as much research as I can as we raise money for me to have the procedures God Willing!!! Any information to that end would be greatly appreciated.
Hello Merry@merpreb I am happy to hear you are still here fighting 21 yrs later. I was diagnosed with NSCLC squamous cell stage 3 in July of 2017. Went through 7 weeks of radiation 5 days a week and Chemo weekly. After the radiation and chemo I was put on Imfinzi Immunotherapy. 6 months into the treatment I developed a reaction and had to stop treatments. On my next scan I was told I am in remission that was in August 2018. I had mild COPD diagnosed in 2014 right before quitting smoking. Since stopping treatments my breathing has gotten much worse. I had a spell where I stopped breathing and was rushed to the hospital where they diagnosed severe COPD, a-fib and Congestive heart failure. I was given Xarelto 20 mg for the a-fib and 200 mg Amiodarone HCL 4 times a day which the Cardiologist stopped after 2 weeks as it was making me ill. Also I read it could cause lung cancer. I have been having some days now when the oxygen does not cause my nose to drip constantly. I switched my cannulas to Salter Labs 16000 series both 4ft and 7 feet and it has been amazingly helpful. As I stated in my last post I am really looking for information on Umbilical cord stem cell therapies. I am still doing as much research as I can as we raise money for me to have the procedures God Willing!!! Any information to that end would be greatly appreciated.
@justapril- Good morning. I'm so sorry that you are having so many problems. I don't think that we can count on the old adage of groups of three anymore! You have certainly had your fill. I know that Colleen sent you several links. I found this one. However It might not have the answers that you need. https://www.copdfoundation.org/COPD360social/Community/Questions-and-Answers/Are-you-considering-a-Stem-Cell-Therapy-Clinic-for-treatment-of-your-COPD.aspx https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5864644/
You might also look to Europe to see what they have, or Israel.
I can feel your frustrations and it's horrible at a time when all you want to is to feel good and be healthy. I'm sorry for all of us . So many people have joined the "get rich quick scheme." It doesn't make for a very helpful and beneficial health system.
PS- Please come jin us at the Lung Cancer group! I'm so glad that you are in remission!
Hi @marczappa, you may have noticed I moved your post to this existing Stem Cell and COPD discussion. I did this so all information on this topic would be in one place. Simply click VIEW & REPLY in your email notification to get to your post.
As for stem cell research at Mayo Clinic, any new information would be found at this link: http://mayocl.in/2ieWfYH
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Hi @justapril, I moved your message to this existing discussion about COPD and stem cell therapy in the Lung Health group. I recommend reading through the past messages in this discussion as well as these:
- Stem Cells / Regeneration https://connect.mayoclinic.org/discussion/stem-cells-regeneration/
Regenerative medicine for COPD is still in the research phase. Do use caution about promises made by some clinics.
To help people learn more about the proven therapies and the promise of developing therapies, Mayo Clinic offers a free telephone consult service. When you call the consult service, they will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere, and for what conditions. You can learn more about the Consult Service here http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service.
Or call 1-844-276-2003 to speak with one of our experts.
@justapril you may also wish to join the Lung Cancer group here: https://connect.mayoclinic.org/group/lung-cancer/
@justapril- Hello and welcome to Connect. I'm sorry that I missed your original question. I do not monitor the group that you first posted on. I know that it can be confusing because there are so many groups on Connect. We try to help so many people!
I have had NSCLC for the past 21+ years. What kind of lung cancer do you have? Will you tell me more about your lung cancer history? What treatments have you had?
Having a constant nose drip must be extremely taxing. Have you consulted with an EMT? If your nose is irritated than rubbing some aloe on it is a good idea or even white Vaseline.
-
Like -
Helpful -
Hug
1 ReactionI had stem cells from bone marrow in my knees 3 years ago and swear it helped me tremendously...within about 30-60 days there was a noticable difference and as long as I keep on the bike 10 minutes a day to keep the blood flowing thru them, I can walk easily with little pain.
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Like -
Helpful -
Hug
1 Reaction@cchristoph That is great, pain free is good. I just want to mention that stem cell therapy for knees and lungs are two very different things. There are a number of good proven FDA stem cell therapies available for different medical conditions. Unfortunately, lungs are much more complicated.
-
Like -
Helpful -
Hug
1 ReactionHello Merry@merpreb I am happy to hear you are still here fighting 21 yrs later. I was diagnosed with NSCLC squamous cell stage 3 in July of 2017. Went through 7 weeks of radiation 5 days a week and Chemo weekly. After the radiation and chemo I was put on Imfinzi Immunotherapy. 6 months into the treatment I developed a reaction and had to stop treatments. On my next scan I was told I am in remission that was in August 2018. I had mild COPD diagnosed in 2014 right before quitting smoking. Since stopping treatments my breathing has gotten much worse. I had a spell where I stopped breathing and was rushed to the hospital where they diagnosed severe COPD, a-fib and Congestive heart failure. I was given Xarelto 20 mg for the a-fib and 200 mg Amiodarone HCL 4 times a day which the Cardiologist stopped after 2 weeks as it was making me ill. Also I read it could cause lung cancer. I have been having some days now when the oxygen does not cause my nose to drip constantly. I switched my cannulas to Salter Labs 16000 series both 4ft and 7 feet and it has been amazingly helpful. As I stated in my last post I am really looking for information on Umbilical cord stem cell therapies. I am still doing as much research as I can as we raise money for me to have the procedures God Willing!!! Any information to that end would be greatly appreciated.
-
Like -
Helpful -
Hug
1 Reaction@justapril- Good morning. I'm so sorry that you are having so many problems. I don't think that we can count on the old adage of groups of three anymore! You have certainly had your fill. I know that Colleen sent you several links. I found this one. However It might not have the answers that you need.
https://www.copdfoundation.org/COPD360social/Community/Questions-and-Answers/Are-you-considering-a-Stem-Cell-Therapy-Clinic-for-treatment-of-your-COPD.aspx
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5864644/
You might also look to Europe to see what they have, or Israel.
I can feel your frustrations and it's horrible at a time when all you want to is to feel good and be healthy. I'm sorry for all of us . So many people have joined the "get rich quick scheme." It doesn't make for a very helpful and beneficial health system.
PS- Please come jin us at the Lung Cancer group! I'm so glad that you are in remission!
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Like -
Helpful -
Hug
1 ReactionIt's a scam.
My talk with the clinic a year or so ago gave me that impression. I wonder if Mayo has new information.
Hi @marczappa, you may have noticed I moved your post to this existing Stem Cell and COPD discussion. I did this so all information on this topic would be in one place. Simply click VIEW & REPLY in your email notification to get to your post.
As for stem cell research at Mayo Clinic, any new information would be found at this link: http://mayocl.in/2ieWfYH
Thank you.
So are there new trials in the works? I think I was put on a list when I spoke to your consultant last year.