1. < Heart & Blood Health

Pain in leg muscles, tendons, and knees after Bilateral PE on Eliquis

Posted by smasneri @smasneri, Jul 6, 2023

One month after massive bilateral PE and taking 5 mg twice daily. Experiencing constant and continual pain in legs, mainly behind both knees, in tendons, and some muscle flare ups. Have had two ultrasounds and a CT scan on both legs since I was diagnosed June 6 and they are negative. My D Diemer is .43 and all vitals strong and regular. Echocardiogram shows no strain on heart. We have ruled most everything else out. No trauma to legs, no cuts, bruises or strains. Is this related to the Eliquis? My local hematologist wants me on it for another 5 months, I won’t be able to make that unless this subsides. Anyone else out there having this issue? Recommendations?

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megan1853 | @megan1853 | 5 days ago
In reply to @megan1853 "Thanks for the hug! I’m getting a third ultrasound to see what is happening with the..." + (show)
@megan1853

Thanks for the hug! I’m getting a third ultrasound to see what is happening with the DVT and to determine if it’s still present. Then my doctor and I can discuss further use of Eliquis.

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Well dang. #3 ultrasound of BOTH legs found a DVT in both legs. Size of 1/2 pencil.
On Eliquis.
Any suggestions for faster recovery?

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rattris | @rattris | 1 day ago
In reply to @suitstiffany "I have been on elquis for almost 2yrs due PE. I am very active person. I..." + (show)
@suitstiffany

I have been on elquis for almost 2yrs due PE. I am very active person. I use to participate in tri races and running events. Since I have been on this medicine I have had continued muscle weakness especially on the right side leg. Currently in Pt for torn mensicus. I have developed muscle spasms in my left foot to where my toes will stretch out as far as they cab before relaxing. Hurts something awful. My I teach swimming and having trouble keeping up with my clients. I keep asking the doc if I can reduce the med or something. I just have chronic muscle weakness in my right leg and my lower back hurts right around the si joint. Im so over it and the pain especially towards the end of day
I miss running. I can still bike and swim but those are getting harder to do. This muscle weakness is no joke when one spends their lifestyle trying to do right with their body.

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Triathlete/marathon runner and agree elquis destroys muscles and causes a run down feeling. Never napped in my life now after long run or bike need a nap, other issue I have with it is feel cold and have chills. Looking at getting off of it and going to low dose aspirin. Many on it are having issues like what people on statins experience. Some on statins have a statin induce form a myositis wonder if elquis does the same thing.

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ruth36 | @ruth36 | 1 day ago
In reply to @timheart1 "If I were you I would replace Eliquis with Garligin, a natural supplement made with garlic..." + (show)
@timheart1

If I were you I would replace Eliquis with Garligin, a natural supplement made with garlic and ginger, both known blood thinners. I had problems w/ Eliquis too, replaced w/ Garligin years ago, 1/5 of the price too. No side effects. Garligin made by Natural Slim.

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I’m getting the laser test done soon so I’m gonna wait to see if there’s another issue going on before I make any changes right now. But I’ll keep your suggestion in mind…

Thanks

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1 reply
edv | @edv | 12 hours ago

I started with Eloquis in January after being diagnosed wit AFIB and noticed after a couple months that my joints began to become painful and overall I felt uncomfortable. Worst pain is in the hands, wrists and sometimes radiating up the arms. My neck also is painful when turning side to side. Lastly the ankles as well. At the same time I feel it dulls the mind and makes me less interested in activities even daily living.

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1 reply
rattris | @rattris | 10 hours ago
In reply to @ruth36 "I’m getting the laser test done soon so I’m gonna wait to see if there’s another..." + (show)
@ruth36

I’m getting the laser test done soon so I’m gonna wait to see if there’s another issue going on before I make any changes right now. But I’ll keep your suggestion in mind…

Thanks

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There is a blood test called anti-HMGCR antibody test you may want to try. It is used on statin patients who have same muscles issues. Getting one run in 2 weeks, Lab Corp has the test. Will be interesting to see if this shows anything with the muscle weakness.

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petergrasser | @petergrasser | 6 hours ago
In reply to @edv "I started with Eloquis in January after being diagnosed wit AFIB and noticed after a couple..." + (show)
@edv

I started with Eloquis in January after being diagnosed wit AFIB and noticed after a couple months that my joints began to become painful and overall I felt uncomfortable. Worst pain is in the hands, wrists and sometimes radiating up the arms. My neck also is painful when turning side to side. Lastly the ankles as well. At the same time I feel it dulls the mind and makes me less interested in activities even daily living.

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I agree completely with this

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petergrasser | @petergrasser | 6 hours ago

Yes I have the same issues including lethargy and difficulty maintaining a normal work rhythm. I can’t think clearly and my eyes are often blurry.
It’s a nightmare I’m going to go off them and use natural things like cayenne pepper, fish oil and tumeric which I was taking regularly prior to afib with no issues

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