Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

arcuri24 | @arcuri24 | 8 hours ago

In reply to @andyjustin "That’s for crazy months who make my life better and you make living with neuropathy just..." + (show)

I also donate to animal rescue groups. The horses must be beautiful. I, too, have neuropathy and I hang in there for my little dog, Patty. Without her, I would go crazy.

cap5457 | @cap5457 | 1 hour ago

Hello to all of you. I just read all your posts. We’re all on a journey that we didn’t plan ahead for. For me it’s been about 10 yrs or more. Stared off with some pain issues in my left foot. Podiatrist said it was a neuroma. Tried injections & orthotics. No Help. Tried a different Podiatrist. Same results.
During all of this I’ve studied, read & investigated everything available. Pain increased. Started on Lyrica. Worked to some degree.
I purchased many different types of socks & footwear tinking I just had to get the right ones. Pain increased & was now effecting my right foot as well.
I’ve always been active in many fitness related activities.
But now I felt like I was benched for the rest of the game. Pain levels increased along with other symptoms.
Finally this past August I saw a very sharp & knowledgeable Neurologist. She took into account all of my experiences & completed an extensive examination. Including a full assessment of multiple blood tests. Prescribed an EMG Test. Finally received a diagnosis. Large Fiber Poly Motor Sensor PN. Started taking Gabapentine. Noted some improvements.
It’s been a long journey up to now. But at least I now know what I’m up against. I’m not a quitter & in for the fight.