Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

andyjustin | @andyjustin | 13 hours ago

In reply to @johnbishop "Or maybe .... Living Well with Neuropathy 🙃 https://www.foundationforpn.org/living-well/" + (show)

Not to be a downer somehow I don’t like living well with neuropathy I could say living in hell with neuropathy or I could say maybe not hell just purgatory because there’s always hope in purgatory However the point that living well with neuropathy means taking care of yourself and doing the best I’m all for it but now on a sidenote, I have to check in with my neuropathy and see if it approves. I do treat my neuropathy as an alter ego a Jekyll and Hyde kind of thing I hope everybody reads my post understanding. I always try to take lemons and make lemonade always could use a little more sugar.😎👍

andyjustin | @andyjustin | 13 hours ago

I’m just wondering if anybody on this website actually has autonomic neuropathy I’d love to exchange experiences with them

newnye | @newnye | 13 hours ago

Has anyone heard of a Cionic Neural Sleeve for neuropathy. It was just approved by FDA

John, Volunteer Mentor | @johnbishop | 13 hours ago

In reply to @andyjustin "I’m just wondering if anybody on this website actually has autonomic neuropathy I’d love to exchange..." + (show)

Quite a few members have posted about autonomic neuropathy. Just click the search icon at the top and type in autonomic neuropathy to find the different discussions and comments.

sharonanne3 | @sharonanne3 | 12 hours ago

I have MS and wonder if my burning painful feet and ankles could be connected walk is excruciating!

John, Volunteer Mentor | @johnbishop | 10 hours ago

In reply to @sharonanne3 "I have MS and wonder if my burning painful feet and ankles could be connected walk..." + (show)

Welcome @sharonanne3, There are quite a few members who have posted about burning and painful feet with MS. Here's a link to the list of discussions and comments by members with similar experience - https://connect.mayoclinic.org/search/?search=MS+and+burning+feet.

There are also many different discussions and comments on MS that you might find helpful - https://connect.mayoclinic.org/search/?search=Multiple+sclerosis.