Anyone here on Xarelto? What's your experience?

Posted by trish602 @trish602, Dec 11, 2016

Anyone here on Xarelto?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

76 yr old female after two episodes was diagnosed with a fib...Been on Xarelto 18 months...NO problems whatsoever...In fact whether it's the benefit of Xarelto or the other 4 drugs the cardiologist prescribed I feel so much better than in the last few years ! Wishing the same good luck for you too ! Sally

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@misssassy

76 yr old female after two episodes was diagnosed with a fib...Been on Xarelto 18 months...NO problems whatsoever...In fact whether it's the benefit of Xarelto or the other 4 drugs the cardiologist prescribed I feel so much better than in the last few years ! Wishing the same good luck for you too ! Sally

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@misssassy, Hi Sally. My name is Rosemary. I want to extend my hand and welcome you to Mayo Connect. Thank you for posting this information about your successful treatment. I know that there are members who will be happy to see this, and perhaps have some questions for you, too. This is wonderful to hear that you are having such good results!
Sally, Would you tell us a little about yourself? How long have you been dealing with heart issues?
Rosemary

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@misssassy

76 yr old female after two episodes was diagnosed with a fib...Been on Xarelto 18 months...NO problems whatsoever...In fact whether it's the benefit of Xarelto or the other 4 drugs the cardiologist prescribed I feel so much better than in the last few years ! Wishing the same good luck for you too ! Sally

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@misssassy, I share Rosemary's encouragement from your having good results in therapy for A-fib. I would add that the results are all the more encouraging because they might be fundamental rather than medication-related. I say that because Xarelto is not a med used to treat A-fib. It is an anticoagulant that protects against blood clots developing in the chambers of your heart -- it's a preventive, not a curative medication. So you may be the beneficiary of improvement in your body's ability to deal with A-fib. To be more certain about this, perhaps you'll have the chance to ask your cardiologist whether Xarelto is also treating your A-fib symptoms, and if not, what accounts for your progress against A-fib? I was diagnosed with A-fib two years ago, but had irregular heart rhythms for a number of years before that; I was one of those who had the good fortune of being only slightly symptomatic for years -- so much so that the A-fib wasn't showing graphically on my EKG until 2015. My anticoagulant since then has been Coumadin, and I'm doing fine, but your experience would be helpful to me. If you can, give us an update as you take more steps through your therapy. Martin

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Hello,
I am a young (using young loosely :-)) 44 year old African American woman who was diagnosed with bilateral blood clots on June 8, 2017. I was in the hosptial for 6 days. After running several tests the doctors concluded that my blood clots and DVT were factored from wearing a walking boot and sitting most of the day. I have been on Rivaroxaban (Xarelto) 20 mg a day for the past seven months. After conducting several blood tests and having an ultra sound in both my legs (DVT started in my left leg), my oncologist is looking to take me off of Xarelto. She stated she no need for me to be on it the rest of my life. Especially seeing that the blood thinner side effect provoked extra heavy bleeding during my cycle causing me to become anemic (Im taking iron pills three times a day). Natually, I am concerned and scared to come off of the blood thinner as I do not wish for another episode to occur or worse. Can I switch to aspirin and more "natural" herbal vitamins?

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@skeelen

Hello,
I am a young (using young loosely :-)) 44 year old African American woman who was diagnosed with bilateral blood clots on June 8, 2017. I was in the hosptial for 6 days. After running several tests the doctors concluded that my blood clots and DVT were factored from wearing a walking boot and sitting most of the day. I have been on Rivaroxaban (Xarelto) 20 mg a day for the past seven months. After conducting several blood tests and having an ultra sound in both my legs (DVT started in my left leg), my oncologist is looking to take me off of Xarelto. She stated she no need for me to be on it the rest of my life. Especially seeing that the blood thinner side effect provoked extra heavy bleeding during my cycle causing me to become anemic (Im taking iron pills three times a day). Natually, I am concerned and scared to come off of the blood thinner as I do not wish for another episode to occur or worse. Can I switch to aspirin and more "natural" herbal vitamins?

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Hi @skeelen, apologies for not seeing your message sooner. I'm also tagging @predictable and @gr82balive to join this discussion.

Skeelen, you mention that your oncologist is the specialist recommending that you be taken off Xarelto. Are you also being treated for cancer? Certain cancers can have strong blood-clotting tendency and an oncologist would be the best to advise you on alternatives. Is a cardiologist also being consulted in the decision-making? You are right in asking questions. What did you decide in the end?

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Hi @colleenyoung. Thank you for your response. My apologies. I wrote "oncologist". I am seeing a hemotologist. I have not decided in which direction I am going to go.

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@kanaazpereira

Hi @trish602,

One of the common side effects of Xarelto (Rivaroxaban), can be back aches, according to Mayo Clinic:
http://mayocl.in/2gpJpC9
I would also like to tag @mlemieux, one of our mentors who has taken Xarelto; he may hopefully have some more insight for you.

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I have had two Nuclear Stress tests. The first time was quite scary, as I felt like I was hit by a truck. The second time was not so bad, as I was knowing what to expect. The big difference from a treadmill test, is the fact that your veins all open immediately. So your heart is stressed out immediately. It only lasts a few minutes, and is really not that bad, once you realize that is what's going on. The nuclear injection ( IV ) feels warm at first, but goes away. If you've ever had a Cat Scan, the feeling is similar. According to my Cardiologist who performed the procedure, said it can be reversed immediately if something goes wrong. At least that's what he said. I trusted his word.

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@2bildeb

I'm trying to research for an upcoming appointment with my hematologist . I would like to know if Xarelto can be used in the 10 mg per day dosage as a preventative medication after a year on 20 mg for dvt/pe. I'm not comfortable just stopping it completely but the side effects are terrible.

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May I ask what side effects you have? I am on 20 mg Xarelto for portal vein thrombosis.

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@jean78

May I ask what side effects you have? I am on 20 mg Xarelto for portal vein thrombosis.

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I am on the same dose and really have had no problems or side effects other than I bruise easily, especially on my forearms. I use a bruise cream I get at CVS for that, but otherwise the Xarelto has been no problem and effective so far.

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