Xarelto

Posted by trish602 @trish602, Dec 11, 2016

Anyone here on Xarelto?

Interested in more discussions like this? Go to the Heart Rhythm Conditions group.

@kanaazpereira

Hi @trish602,

One of the common side effects of Xarelto (Rivaroxaban), can be back aches, according to Mayo Clinic:
http://mayocl.in/2gpJpC9
I would also like to tag @mlemieux, one of our mentors who has taken Xarelto; he may hopefully have some more insight for you.

Jump to this post

Buc7777: Thanks. I don’t think it’s the dye that’s an issue. I’ve had a contrast C T scan. It’s the chemicals they use to speed up the heart in the nuclear stress test. The treadmill test is not possible for me. Thank you for the info.

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@kanaazpereira

Hi @trish602,

One of the common side effects of Xarelto (Rivaroxaban), can be back aches, according to Mayo Clinic:
http://mayocl.in/2gpJpC9
I would also like to tag @mlemieux, one of our mentors who has taken Xarelto; he may hopefully have some more insight for you.

Jump to this post

Did they tell you what your target heart rate is? Mine was just 140. So the chemicals to speed up heart was less to get to 140. The chemicals did make me dizzy.

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@kanaazpereira

Hi @trish602,

One of the common side effects of Xarelto (Rivaroxaban), can be back aches, according to Mayo Clinic:
http://mayocl.in/2gpJpC9
I would also like to tag @mlemieux, one of our mentors who has taken Xarelto; he may hopefully have some more insight for you.

Jump to this post

@grandmajan, Good morning, I can see that you are receiving a lot of support from our members. I feel that you are better prepared for what you will be facing during the stress test.
I want to encourage you to contact your ordering doctor office if you have any specific questions relating to your own situation. I have a neighbor who recently had a stress test, she had a hard time remembering what her doctor had told her about the actual procedure. She didn’t want to ‘bother’ anyone with her questions. As a result, she was confused and unnecessarily anxious about the whole thing.
I’ll be thinking of you n Jan. 5. I hope that the test goes well for you and that the results will be helpful in treating your condition.
Rosemary

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Hi @trish602,

I’ve been on Xarelto since it was 1st introduced in Canada over 3 years ago. I’ve also been privy to current/past studies showing the effects Xarelto might or might not have on patients. Xarelto was 1st introduced to patients who received knee surgery to prevent DVT’s (Deep Vein Thrombosis) in the legs. Its primary function is for the prevention of DVT’s, but it has been approved for other clotting conditions as well.

For me, it changed my life in a great way since I no longer had to take blood tests to measure my illusive INR that could never get to a therapeutic state.

Now in your case, where your back is concerned. I see you went to an Oncologist for advice? I would recommend seeing a Thrombo expert instead. Are you seeing a Hematologist as well to consult with the Oncologist? You may want to try switching to Eliquis (Apixaban 5mg x2 daily). Both Xarelto and Eliquis are very similar, they are easy to take pills with no need to test your blood on a regular basis and require minimal follow up from professionals.

Each person reacts differently to the same medications. Always remember that the “side effects” detailed online are from thousands of participants in their studies, and only represent a fraction of patients who got those symptoms.

Now I should also note, if you’re taking pain medication to help with the back pain or other, be very careful on what you take. Xarelto was created by Bayer, who of course also makes Aspirin, BUT the combination of the two together can be very lethal and create havoc in your system, causing all sorts of bleeding problems. Stick to Tylenol or the like.

The best test to ensure you aren’t having bleeding problems internally is by checking your stool every single time. I know, yukky, but it’s a precursor to very serious problems. If you notice the stool is extremely dark, almost black or tar like, STOP taking your blood thinner and talk to your doctor ASAP. Internally bleeding is very serious and very few people check for the signs. I made the mistake once by taking Aspirin for my pain years ago and ended up with blood in my stool.

When it comes to procedures, I would talk to your doctor of possibly going on the injectables instead (i.e. Fragmin / Innohep), over the years, I’ve had to switch back and forth from pills to injectables for different reasons. I’ve found they help to alleviate the pain and the struggles of going on and off the medication without complications. Again, these are my own results after years of switching medications due to different reasons.

ALWAYS REMEMBER: Anticoagulants aren’t fool proof. Just like you can get pregnant while using condoms, well you can get blood clots while being on blood thinners. I’ve had many clots while being on blood thinners, it’s a prevention method only. Try to concentrate on other areas that you can control (i.e. Proper diet / Exercise / Less Stress). Creating a full-body health system to help your recovery, healing and survival stage is just as important as being medicated and speaking with doctors.

Keep all your options open. Talk to the right specialists about these medications and try to write down all of your questions. We tend to forget some questions if we don’t write them down. Don’t worry about wasting their time, it’s your life and it’s very important.

I hope this helps a little.
I wish you all the best.
Stay safe and happy holidays!

Regards,
Martin

REPLY
@mlemieux

Hi @trish602,

I’ve been on Xarelto since it was 1st introduced in Canada over 3 years ago. I’ve also been privy to current/past studies showing the effects Xarelto might or might not have on patients. Xarelto was 1st introduced to patients who received knee surgery to prevent DVT’s (Deep Vein Thrombosis) in the legs. Its primary function is for the prevention of DVT’s, but it has been approved for other clotting conditions as well.

For me, it changed my life in a great way since I no longer had to take blood tests to measure my illusive INR that could never get to a therapeutic state.

Now in your case, where your back is concerned. I see you went to an Oncologist for advice? I would recommend seeing a Thrombo expert instead. Are you seeing a Hematologist as well to consult with the Oncologist? You may want to try switching to Eliquis (Apixaban 5mg x2 daily). Both Xarelto and Eliquis are very similar, they are easy to take pills with no need to test your blood on a regular basis and require minimal follow up from professionals.

Each person reacts differently to the same medications. Always remember that the “side effects” detailed online are from thousands of participants in their studies, and only represent a fraction of patients who got those symptoms.

Now I should also note, if you’re taking pain medication to help with the back pain or other, be very careful on what you take. Xarelto was created by Bayer, who of course also makes Aspirin, BUT the combination of the two together can be very lethal and create havoc in your system, causing all sorts of bleeding problems. Stick to Tylenol or the like.

The best test to ensure you aren’t having bleeding problems internally is by checking your stool every single time. I know, yukky, but it’s a precursor to very serious problems. If you notice the stool is extremely dark, almost black or tar like, STOP taking your blood thinner and talk to your doctor ASAP. Internally bleeding is very serious and very few people check for the signs. I made the mistake once by taking Aspirin for my pain years ago and ended up with blood in my stool.

When it comes to procedures, I would talk to your doctor of possibly going on the injectables instead (i.e. Fragmin / Innohep), over the years, I’ve had to switch back and forth from pills to injectables for different reasons. I’ve found they help to alleviate the pain and the struggles of going on and off the medication without complications. Again, these are my own results after years of switching medications due to different reasons.

ALWAYS REMEMBER: Anticoagulants aren’t fool proof. Just like you can get pregnant while using condoms, well you can get blood clots while being on blood thinners. I’ve had many clots while being on blood thinners, it’s a prevention method only. Try to concentrate on other areas that you can control (i.e. Proper diet / Exercise / Less Stress). Creating a full-body health system to help your recovery, healing and survival stage is just as important as being medicated and speaking with doctors.

Keep all your options open. Talk to the right specialists about these medications and try to write down all of your questions. We tend to forget some questions if we don’t write them down. Don’t worry about wasting their time, it’s your life and it’s very important.

I hope this helps a little.
I wish you all the best.
Stay safe and happy holidays!

Regards,
Martin

Jump to this post

@martin:
Thank you Martin for all your good advice. My oncologist is a hematologist, that is why I saw him. My original oncologist has retired. I can’t take pain medications so I refuse the prescriptions. You make many excellent suggestions. I am going to see my nephrologist and one other Doctor who is a vascular surgeon. I am still seeking answers as to why I have such excruciating pain when I must go off Xarelto. No one seems to be aware of this. It is frustrating to say the least. I thank you for your concern and most importantly your suggestions. I will keep you informed. Merry Christmas
Trish D

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@kanaazpereira

Hi @trish602,

One of the common side effects of Xarelto (Rivaroxaban), can be back aches, according to Mayo Clinic:
http://mayocl.in/2gpJpC9
I would also like to tag @mlemieux, one of our mentors who has taken Xarelto; he may hopefully have some more insight for you.

Jump to this post

Rosemary, Thank you for your advice. Yes, I’m getting lots of support. It’s a relief knowing others who have had similar experiences. It’s a blessing that so many are willing to share.

REPLY
@kanaazpereira

Hi @trish602,

One of the common side effects of Xarelto (Rivaroxaban), can be back aches, according to Mayo Clinic:
http://mayocl.in/2gpJpC9
I would also like to tag @mlemieux, one of our mentors who has taken Xarelto; he may hopefully have some more insight for you.

Jump to this post

Ihatediabetes: Thank you, that’s a great idea. I wouldn’t have thought to ask that. Tomorrow AM. Thanks again. Jan

REPLY
@kanaazpereira

Hi @trish602,

One of the common side effects of Xarelto (Rivaroxaban), can be back aches, according to Mayo Clinic:
http://mayocl.in/2gpJpC9
I would also like to tag @mlemieux, one of our mentors who has taken Xarelto; he may hopefully have some more insight for you.

Jump to this post

@grandmajan, I’ve been thinking about you. I hope your experience with the stress test well for you. I know you were dreading it; I hope got a good night sleep after it was over with. Rosemary

REPLY
@kanaazpereira

Hi @trish602,

One of the common side effects of Xarelto (Rivaroxaban), can be back aches, according to Mayo Clinic:
http://mayocl.in/2gpJpC9
I would also like to tag @mlemieux, one of our mentors who has taken Xarelto; he may hopefully have some more insight for you.

Jump to this post

Hi Rosemarya, Thank you for reminding me to let you know. I had the stress test. It was much less stressful than I imagined. The chemicals made me feel strange and icky but was very short lived and they had the antidote right there which took away all of the icky feelings. I don’t have the results yet. Your initial response helped to calm my worries a lot. Thanks Jan

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@kanaazpereira

Hi @trish602,

One of the common side effects of Xarelto (Rivaroxaban), can be back aches, according to Mayo Clinic:
http://mayocl.in/2gpJpC9
I would also like to tag @mlemieux, one of our mentors who has taken Xarelto; he may hopefully have some more insight for you.

Jump to this post

I have a general question, of all of us out there that are taking Xarelto or other blood thinners, does anyone wear a “medic alert” bracelet that states that? Grandma Jan

REPLY
@kanaazpereira

Hi @trish602,

One of the common side effects of Xarelto (Rivaroxaban), can be back aches, according to Mayo Clinic:
http://mayocl.in/2gpJpC9
I would also like to tag @mlemieux, one of our mentors who has taken Xarelto; he may hopefully have some more insight for you.

Jump to this post

I do, @grandmajan. My blood “thinner” is Coumadin (Warfarin), so my bracelet contains that information and a reference to my medical emergency card in my wallet. Several friends in my community are on one “thinner” or another, and a majority of them have bracelets or necklaces with a small placard to alert medical technicians to their need for special care and consideration when loss of blood is crucial.

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I’m trying to research for an upcoming appointment with my hematologist . I would like to know if Xarelto can be used in the 10 mg per day dosage as a preventative medication after a year on 20 mg for dvt/pe. I’m not comfortable just stopping it completely but the side effects are terrible.

REPLY
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