Micro Clots

Posted by leahodell @leahodell, Mar 1, 2023

Have any of the Long Covid members been involved in reviewing the concept of microclots, as an explanation for ongoing symptoms following infection with Covid 19?

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

@debbie1338

Good Afternoon

I am struggling. I have had 3 surgeries (including four compartment fasciotomy) and a procedure for clotting in my leg since a bout with COVID several years ago. My doctor is sure that this is covid related. I have also been anemic and suffering with bouts of low hemoglobin for over a year now and have to have periodic blood transfusions. I've been tested by just about every specialty possible and no one can come up with a treatment. I am taking two Eliquis and 1 low dose aspirin daily but can't do triple therapy because of my blood loss. Does anyone know of any studies that are currently being conducted that insurance will approve?
I meditate and pray daily, volunteer with two non-profits, paint and spend time with family and friends. Doing everything to remain positive and to give back but some days keeping optimistic is hard.

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Sorry it looks like I am being redundant. Today is just one of those days.

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@kdfuhrer1

MedHelp clinic in Birmingham Alabama. They do virtual appointments and will order the bloodwork to check for microclots

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DO you know if they will do a consult or do you need to sign up for the whole treatment program. Unfortunately, insurance does not pay and we have limited resources to pursue alternative treatments.

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@dianecox

Hello thank you for this post. I’m a Long Covid Patient (1st bout very early ‘20–and very serious bad long term effects still— & 2nd early ‘22) with RA, EPI, Asthma, Sjogrens, Fibro, SLE & other AI disorders. So many awful things have happened to me post-Covid. I never ever had issues with clotting until now. Have experienced several bouts of this over the past 15-18 months . Here are photos from this past Fall

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Thank you so much for posting : i’ve had Long Covid since March 2020. I had very purple toes when I had it and then afterwards intermittently my ankles and my calves turned bright red. I visited a neurologist at my PCP‘s insistence who said it was definitely not neuropathy or anything like that.
Anyone who has long Covid knows what’s causing it: Long Covid!
I am five years out from the LC diagnosis and this is the third time I’ve had bright red calves and I’m wondering how can I prevent it? And how do I help The redness to go away?

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When I was first diagnosed with ME/CFS in 1984 by two immunologists, I was put on an orphan drug from Germany that was a blood thinner. Since both of these doctors have passed away, I am now taking lumbrokinase which is a natural blood thinner. The product I take is Bolouke. It is from Canada and expensive but seems better than other brands I have tried.

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I have been dealing with what my doctors agree are micro-clots. I have not had the test to confirm it yet because it is not approved by insurance and is very expensive. A year ago I was airlifted to UVA for emergency surgery (the third surgery I had) and had a four compartment fasciotomy. I spent a month in the hospital. I was on triple therapy for several months and it seemed to be working very well but I developed bleeding issues and was taken off it. I am now on Eliquis and aspirin. I have had to have two more surgeries to insert stents since then. My vascular scans show that blood flow in my right leg is worsening and that I have now also developed some clots in my left leg . We keep a close watch on it. It seems like the triple therapy is the recommended treatment and that Dr. Vaugh is the go to for micro-clots. There are several interviews that were done on Full Measure that are on You-Tube which featured him and his work with long-Covid. You can search for them by putting in "Full Measure Micro-clots". I believe that there are several people on the site that are seeing him.

It's been a long strange trip but the journey continues so I am blessed. I sit on the Board of Directors for two non-profit organizations and have been able to get back to my volunteering. I am also an artist and am back to painting and creating mixed media. I enjoy time with family and friends so life is full again.

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