Aortic Aneurysms – Introduce yourself & meet others

Welcome to the Aortic Aneurysms group on Mayo Clinic Connect.

An aortic aneurysm is a bulge in the wall of the aorta. The aorta begins deep in the heart as it emerges from the powerful left ventricle, gently arching over the heart, descending into the chest, and finally into the abdomen. Some aortic aneurysms can be harmless; others can lead to catastrophic problems. I invite you to follow this group and connect with others, share experiences, exchange useful information, and learn about aortic aneurysms.

Get started rby clicking the +FOLLOW icon on the group page here: https://connect.mayoclinic.org/group/aneurysms/

There are some great conversations going on right now that I think you’ll like. Grab a cup of tea, or beverage of your choice, and lets chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

Profile picture for beverly48 @beverly48

I see a cardiothoracic surgeon at DUKE at Durham, NC. He came highly recommended by my PCP. He is known to be the AORTIC guru in the southeast. Personally, I like him very much as he is easy to talk with, is very thorough and always ask me if I have any questions, which I often do and we discuss those. On the day that I have an appoitment with him, my cardiac ultrasound is scheduled first, then I have my CT with contrast performed and then I see the cardiothoracic surgeon to review those test results. I really like the fact that the Cardiac CT photos are reported out in a 3-4 dimensional picture so that I can visualize the aneurysm and its size. I leave the office appointment with all the printed & diagram reports in hand for my reference and my test results are electronically transmitted to my PCP and local cardioloigst. G. Chad Huges, IV, MD is my Duke Cardiothoracic surgeon. I have not had surgery yet and I am 77 years old.

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Wow! I'm moving the Durham. That's great!!

I only see the surgeon if he thinks there's something to talk about (possible quick growth was the one time I saw him). O/W phone call from a PA and no pics.

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Profile picture for beverly48 @beverly48

I see a cardiothoracic surgeon at DUKE at Durham, NC. He came highly recommended by my PCP. He is known to be the AORTIC guru in the southeast. Personally, I like him very much as he is easy to talk with, is very thorough and always ask me if I have any questions, which I often do and we discuss those. On the day that I have an appoitment with him, my cardiac ultrasound is scheduled first, then I have my CT with contrast performed and then I see the cardiothoracic surgeon to review those test results. I really like the fact that the Cardiac CT photos are reported out in a 3-4 dimensional picture so that I can visualize the aneurysm and its size. I leave the office appointment with all the printed & diagram reports in hand for my reference and my test results are electronically transmitted to my PCP and local cardioloigst. G. Chad Huges, IV, MD is my Duke Cardiothoracic surgeon. I have not had surgery yet and I am 77 years old.

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Thank you for this recommendation. I live close enough to Duke to go there and am pleased to have Dr. Huges's name. Very helpful information! I'm 79 with 4.2 and a CT scan scheduled for July. I can only hope the aneurysm hasn't grown. I'm glad you're confident about the treatment you're getting.

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All of this information is so valuable! I’m 67 with a 5 cm ascending aortic aneurysm and otherwise in great health. My aneurysm has been the same size for 5 years and would like more information on what people do when they don’t elect to have surgery. I’m a trained scientist and understand the risk comparisons with and without surgery but we are individuals of course and believe we all don’t fit into the same category of risk. I’m hesitant about surgery but appreciate the risk of not having it. What an agonizing situation. Peace and good health to everyone!

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Hello and thanks for this chat thing . Im just two days into my diagnosis
I'm meeting with surgeon on Monday for further directions.
Don't know much about why it happened or when or size .
I'm 58 healthy active ,guess that doesn't matter . I'm not scared of the surgery more not waking up tomorrow. Will update after Doc visit. Thanks again for this . I've read all post and it's been quite helpful.

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If I were in my fifties or sixties, I think I'd probably have surgery when the time was right. At nearly 80, I'm very reluctant. I'm in good health, don't smoke, and am not overweight, so those are encouraging factors, but I just can't imagine going through what I believe would be a long period of recovery. I had back surgery 16 years ago for a painful ruptured disc and was told I'd be back to normal within a few weeks. It was over a year before I was able to walk normally and I'm still aware of my dodgy back. I feel strong and full of life and would like to stick around for a while, but I'd like to feel strong and full of life--until I don't. It's hard to know what to do. I have another CT scan in July. Maybe that will tell me something that will help. I love getting others' thoughts about this.

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Profile picture for pamela78 @pamela78

If I were in my fifties or sixties, I think I'd probably have surgery when the time was right. At nearly 80, I'm very reluctant. I'm in good health, don't smoke, and am not overweight, so those are encouraging factors, but I just can't imagine going through what I believe would be a long period of recovery. I had back surgery 16 years ago for a painful ruptured disc and was told I'd be back to normal within a few weeks. It was over a year before I was able to walk normally and I'm still aware of my dodgy back. I feel strong and full of life and would like to stick around for a while, but I'd like to feel strong and full of life--until I don't. It's hard to know what to do. I have another CT scan in July. Maybe that will tell me something that will help. I love getting others' thoughts about this.

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I am 77 years old. My AAA is 5.5cm and I do need open heart surgery. However, I have lung damage from severe bilateral COVID Pneumonia. My lung function test (PFT's) show that lungs are getting less functionable each year. Bronchiectasis, Pumonary fibrosis, early honeycombing present on high resolution CT scan. I have never smoked and never been married to a smoker or lived in home iwth a smoker. All lung damage is related to the severe bilateral COVID pneumonia. I am a high surgical risk because of the lung damage. I am intermittent oxygen during the day and sleep with oxygen on at night. Have been told by Pulmonoloigst and Cardiothoracic surgeon that I may not be able to come off the vent after surgery, or may develop Post-op Pneumonia. Therefore the recommendation is to continue to observe the AAA until it appears to be disecting....... My personal recommendation to anyone who is healthy other than the AAA, is to proceed to seriously consider surgery because living with a time-bomb is not really living life to the fullest. There are restrictions on what you should and should not be doing right now. Your health is subject to change at anytime and then you will not have the luxury of making a choice to plan for surgery to prevent the rupture. Be PROactive rather than REactive.

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Profile picture for beverly48 @beverly48

I am 77 years old. My AAA is 5.5cm and I do need open heart surgery. However, I have lung damage from severe bilateral COVID Pneumonia. My lung function test (PFT's) show that lungs are getting less functionable each year. Bronchiectasis, Pumonary fibrosis, early honeycombing present on high resolution CT scan. I have never smoked and never been married to a smoker or lived in home iwth a smoker. All lung damage is related to the severe bilateral COVID pneumonia. I am a high surgical risk because of the lung damage. I am intermittent oxygen during the day and sleep with oxygen on at night. Have been told by Pulmonoloigst and Cardiothoracic surgeon that I may not be able to come off the vent after surgery, or may develop Post-op Pneumonia. Therefore the recommendation is to continue to observe the AAA until it appears to be disecting....... My personal recommendation to anyone who is healthy other than the AAA, is to proceed to seriously consider surgery because living with a time-bomb is not really living life to the fullest. There are restrictions on what you should and should not be doing right now. Your health is subject to change at anytime and then you will not have the luxury of making a choice to plan for surgery to prevent the rupture. Be PROactive rather than REactive.

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Very good advice. I'm so sorry you have this lung trouble on top of the aneurysm. Growing older and experiencing declining health is more of a shock than I'd anticipated. You can know something but until you feel it it doesn't quite seem real. Good luck to you as you work to make the most of every day.

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Profile picture for pamela78 @pamela78

Very good advice. I'm so sorry you have this lung trouble on top of the aneurysm. Growing older and experiencing declining health is more of a shock than I'd anticipated. You can know something but until you feel it it doesn't quite seem real. Good luck to you as you work to make the most of every day.

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Thank you for the well wishes Pamela. I can't seem to pack enough preparations for the future into one day. So much to be done and my family will probably have to pick up where I leave off.

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Profile picture for jonmad66 @jonmad66

Hello and thanks for this chat thing . Im just two days into my diagnosis
I'm meeting with surgeon on Monday for further directions.
Don't know much about why it happened or when or size .
I'm 58 healthy active ,guess that doesn't matter . I'm not scared of the surgery more not waking up tomorrow. Will update after Doc visit. Thanks again for this . I've read all post and it's been quite helpful.

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Well went Dr today
I'm 6.4 cm !
I'm having surgery this week!
I fell great and looking forward to getting fixed up. I just found about this 5 days ago that's the wow factor .

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Profile picture for jonmad66 @jonmad66

Well went Dr today
I'm 6.4 cm !
I'm having surgery this week!
I fell great and looking forward to getting fixed up. I just found about this 5 days ago that's the wow factor .

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Good luck on your surgery! I envy you a little because you only had to stress about it for a few days. I have had my aneurysm for over 10 years and worried about it since it was discovered. It has grown to the point that I now need surgery, and it is this week as well. Here’s hoping we both have a quick recovery!

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