Reclast Infusions: Side-effects & Recovery time

Posted by cindydee @cindydee, Mar 20, 2018

I just had a reclast infusion last week and have had serious side effects. I had the worst flue like aching for 5 days then my lefty arm became full of inflammation in the wrist, elbow and shoulder which caused extreme pain and I lost the ability to straighten my elbow. Ultrasound showed huge amounts of fluid throughout the arm. The right arm is now starting to have the same symptoms. The pain is excruciating. Has anyone else experienced anything like this? Neither the ER doctor nor the Dr. who prescribed the procedure knew what to do to ease the symptoms. Both arms from fingertips to shoulder are swollen and neither elbow will straighten. Anyone else have adverse reactions to the reclast infusion? If yes, how long did it last?

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

njhornung | @normahorn | Feb 21 3:08pm

In reply to @daisy2022 "Interesting comment. Where did you become aware of this variance?" + (show)

WindyShores doctor ordered a 1 mg test dosage because of the condition of her kidneys. Then other comments were made about smaller dosages may be as effective or nearly as effective as the standard dosage. Then these reports solidified the concept for me.

Shared files

low-dose reclast (low-dose-reclast-1.pdf)

ReClast NEJMoa011807 (ReClast-NEJMoa011807.pdf)

daisy2022 | @daisy2022 | Feb 21 7:08pm

Do you know if anyone who has had the lower dose has had side effects similar to ours? I’m very interested in this dosage but not completely sure it is a good choice for me.

njhornung | @normahorn | Feb 21 8:10pm

In reply to @daisy2022 "Do you know if anyone who has had the lower dose has had side effects similar..." + (show)

I only know of WindyShores and she had the actute phase of flu like symptoms.

daisy2022 | @daisy2022 | Feb 21 10:55pm

In reply to @normahorn "I only know of WindyShores and she had the actute phase of flu like symptoms." + (show)

Exactly what are the acute phase of flu like symptoms? I’m not familiar with this term.

njhornung | @normahorn | Feb 22 7:53am

In reply to @daisy2022 "Exactly what are the acute phase of flu like symptoms? I’m not familiar with this term." + (show)

Sorry, I only know of the term via WindyShores. I gather the acute phase is maybe a week of very severe flu like symptoms.

dannyandebbie | @dannyandebbie | Feb 22 1:22pm

In reply to @daisy2022 "Reading your comments is not encouraging to me! I had a Reclast injection in July 2024..." + (show)

It’s been 8 months and I still have the symptoms. Nausea seems to of decreased but the pain in my shoulders and left foot are Far from gone; enjoying Retirement, Not!

Judy Shepherd | @jdshep | Feb 23 10:33am

Took Reclast 4 infusion. No s/e and my densiyy test declined. Stopped using. My daughter started using to maintsin effects of here year long infusions and also had a decline in density.
I just took evenity for 12 mo. Wuth severe S/e and am to follow with Reclast. This may be interesting to see how I do ??

dannyandebbie | @dannyandebbie | Feb 24 7:56am

In reply to @jdshep "Took Reclast 4 infusion. No s/e and my densiyy test declined. Stopped using. My daughter started..." + (show)

Hopefully your density improves!

daisy17 | @daisy17 | Feb 27 1:57pm

In reply to @jdshep "Took Reclast 4 infusion. No s/e and my densiyy test declined. Stopped using. My daughter started..." + (show)

What type of side effects did you have with Evenity? How long ago was your 12th shot and have your side effects lessened since then? Thanks.

honey101 | @honey101 | Mar 23 10:00pm

I just had the Reclast infusion done 4 days ago and the pain has been so bad in both hands arms shoulders and my left shin fills really tight and painful plus my left foot and leg is swelled up I called my doctor and he said if the pain gets to bad go to the hospital he was no help at all I will be calling them again tomorrow I already take Oxycodone 20mg every 4 hours and it doesn't help any of the pain from the infusion. I'm already dealing with end stage cirrhosis of the liver non alcoholic if anyone on here has dealt with the shin part please let me know what could be wrong the other side effects I've heard of but not the tightness of the shin. Thank you for reading this ❤️ and I hope someone else has experienced this