Reclast Infusions: Side-effects & Recovery time

Just two cents for thought! I too had Reclast infusion and from the second day, 8 months later my side effects are: days where I feel nauseated, exhausted before my day really starts, Awful pain in my right shoulder and are, pain in my left shoulder, pain in my left foot and both forearms have this constant burning sensation. Again, this all started the day after my first infusion. I consulted my endocrinologist and his reply was that I need to see a rheumatologist because the Reclast infusion would not do this. I went to rheumatologist and they say that there is nothing they can do for this.
All the research that I have reviewed indicates that all these symptoms are from the Reclast infusion. My conclusion is that my Endocrinologist specializes in Bone Density not medication side effects. First I feel more study needs required about the medications and their potential side effects and then the doctors could use a refresher course on their side effects and other options for treatment!
Today I find myself working with a physical therapist on certain exercises and also work with a therapist on mentally trying to handle this pain. Observing the pain in an intense way seems to make the pain worse. This might sound off but I find myself constantly telling myself that it does not hurt; trying to retrain my brain to not recognize this new pain in a negative way; recognize it more like if I were just putting my cloths on first thing in the morning. The burning, more like a sun burn rather than being a constant nagging burning every time I touch my arms or the skin on them!
Honestly, I am not sure if these constant nagging side effects will ever go away. So, I feel that I need to do what I can to better manage the symptoms instead of them continually controlling me. Good luck on your treatments and outcomes

Just two cents for thought! I too had Reclast infusion and from the second day, 8 months later my side effects are: days where I feel nauseated, exhausted before my day really starts, Awful pain in my right shoulder and are, pain in my left shoulder, pain in my left foot and both forearms have this constant burning sensation. Again, this all started the day after my first infusion. I consulted my endocrinologist and his reply was that I need to see a rheumatologist because the Reclast infusion would not do this. I went to rheumatologist and they say that there is nothing they can do for this.
All the research that I have reviewed indicates that all these symptoms are from the Reclast infusion. My conclusion is that my Endocrinologist specializes in Bone Density not medication side effects. First I feel more study needs required about the medications and their potential side effects and then the doctors could use a refresher course on their side effects and other options for treatment!
Today I find myself working with a physical therapist on certain exercises and also work with a therapist on mentally trying to handle this pain. Observing the pain in an intense way seems to make the pain worse. This might sound off but I find myself constantly telling myself that it does not hurt; trying to retrain my brain to not recognize this new pain in a negative way; recognize it more like if I were just putting my cloths on first thing in the morning. The burning, more like a sun burn rather than being a constant nagging burning every time I touch my arms or the skin on them!
Honestly, I am not sure if these constant nagging side effects will ever go away. So, I feel that I need to do what I can to better manage the symptoms instead of them continually controlling me. Good luck on your treatments and outcomes

This past Friday I had my first round of Recast infusion due to severe osteoporosis. I was concerned about the side effects but assured by both my endocrinologist and the nurse who administered the IV that the most common side effects were mild flu like symptoms- some nausea, fever, body aches etc. I thought it would be no big deal and was something I could handle. I felt nothing Friday afternoon or evening, however at 3:00 am Saturday morning I had the most excruciating pain through out my body-legs, arms, shoulders, could barely walk and had a headache worse than anything I've ever experienced. The past three days I could do nothing but sit and rest and take extra strength Tylenol every 4 hours to help relieve the pain. Today I am a bit better but now I also have a horrible stiff neck and some itching. Could this also be related to Recast? Who knows! But this experience tells me I will not be doing Recast again next year. I called my endocrinologist today to discuss what happened to me but so far I have not received a call back.

I had same issues, take Claritin along with Tylenol and ibuprofen. I took it for a month and feel back to normal. If needed, you can take it longer.
Good luck 🤞

You are most definitely not alone. I had Reclast in March 2024, followed by 5 days of being the sickest ever in my life, now living with chronic pain. I have had every rheumatologic test, x-rays, an EMG, a punch biopsy test, and ultrasounds - and they all came back normal. I now have a diagnosis of fibromyalgia, likely triggered by the infusion. I’ve had to stop working and have applied for disability. I’ve gone from being a very active person to barely leaving my apartment. A complete life change. I’m now exploring various pain management treatments, as there is no treatment for fibromyalgia per se. The Mayo Clinic in Jacksonville FL has a two-day course on living with fibromyalgia that I found helpful.

Thank you for sharing your experience with Reclast. May I ask how long ago you had your infusion and if you are still having side effects today? I had bloodwork done and shows mild damage to both liver and kidneys and am on a detox treatment. I feel somewhat better but energy is lacking
Appreciate your comments as my doctor repeatedly said side effects would be mild. Mine we anything but mild! . Why can’t doctors tell us the truth I wonder?