Reclast Infusions: Side-effects & Recovery time

I too had this Reclast infusion and my first day went like any other. However, from the second day and for the past seven months I have experienced pain in my shoulders, arms, right hand and my left foot. The more I use them the worse they hurt and the pain never seems to go away completely. I did have flu like symptoms and the nausea feeling seems to come and go. I shared this with my endocrinologist and he expressed that the feelings I am experiencing are not from the Reclast and that I should see my rheumatologist. I saw my rheumatologist and they say that there is nothing they can see and therefore nothing they can treat. I have been told that they want to do another infusion next July and my endocrinologist says that he will try something different; not sure if I even want to go to their office. I understand that my endocrinologist is there to treat bone density not pain management. Nonetheless, I feel they need to be a bit more honest about the side effects from these infusions and then let the patient make their own decisions. Unless they are getting some kind of kick back or recognition for the amount of that stuff they use! Hope you are feeling better and hope the symptoms do not stay with you like they are me! I have found Physical Therapy has helped some but never does all the symptoms go away completely!

I was experiencing the same thing, neck pain. I did get an x ray and it did not show any sign of a fracture. I am scheduled for an appointment with an orthopedic NP next week. This just started after my infusion, but have been told it could be arthritis in the C 6-7 area. I can live with some pain, but the x ray helped me feel better knowing that I did not have a fracture. I hope you get your X ray and you can feel relieved. I am still hopeful for good results and will continue next year!

I hope all those suffering neck pain report that to FDA.

The beginning of this list:

Reclast Side Effects:
Muscle aches, arthritis, joint pain, bone pain, muscle spasms
Pain in arms or legs, back pain, fluid buildup in legs, tingling in extremities

Frustrating. I wonder why they don’t recognize the discomfort and possible associations

So do you also have arthritis? I’m wondering g that myself and wondering how you figure it out

Yes, the xray showed some arthritis in the C6-7 area. The internal med Dr. told me to see an orthopedic to get approval for an MRI. I do have arthritis in wrists. I didn’t have a neck problem until the Reclast, but it may have been coincidental? 3 doctors later, I hope to have some concrete answers. I am taking flexural and tramadol until I get the MRI.
I can keep you informed!

Thank you. I’m trying to understand all of this and wanting to learn as much as I can before I jump into a new treatment plan. I don’t feel the doctors have been complete in testing

Just two cents for thought! I too had Reclast infusion and from the second day, 8 months later my side effects are: days where I feel nauseated, exhausted before my day really starts, Awful pain in my right shoulder and are, pain in my left shoulder, pain in my left foot and both forearms have this constant burning sensation. Again, this all started the day after my first infusion. I consulted my endocrinologist and his reply was that I need to see a rheumatologist because the Reclast infusion would not do this. I went to rheumatologist and they say that there is nothing they can do for this.
All the research that I have reviewed indicates that all these symptoms are from the Reclast infusion. My conclusion is that my Endocrinologist specializes in Bone Density not medication side effects. First I feel more study needs required about the medications and their potential side effects and then the doctors could use a refresher course on their side effects and other options for treatment!
Today I find myself working with a physical therapist on certain exercises and also work with a therapist on mentally trying to handle this pain. Observing the pain in an intense way seems to make the pain worse. This might sound off but I find myself constantly telling myself that it does not hurt; trying to retrain my brain to not recognize this new pain in a negative way; recognize it more like if I were just putting my cloths on first thing in the morning. The burning, more like a sun burn rather than being a constant nagging burning every time I touch my arms or the skin on them!
Honestly, I am not sure if these constant nagging side effects will ever go away. So, I feel that I need to do what I can to better manage the symptoms instead of them continually controlling me. Good luck on your treatments and outcomes

No symptoms one day and many the next day and we are told that it’s not the medication! Honestly! It is sad what we sometimes put ourselves through! We are told we require treatment for osteoporosis and / or bone density. We are told the treatment plan…..some research the medication and others do not. In the end we feel our physician or in this case our endocrinologist knows what’s right for us and allow them to do their magical job. At first I declined treatment and I am honestly not sure why I declined it. A year late for a follow up appointment I agreed to the treatment and my reward is several side effects; hopefully some good as far as bone density because I will not be receiving a second dose. I’ve had Ankolosing spondylitis for 50 years and have had to deal with it effects; hopefully mentally I retrain my brain to not recognize this new pain as a threatening condition and start getting a good nights sleep. The shoulder pain is so intense that any movement while I am sleeping, wakes me right up! Be kind to yourself and try to get all the information that you can before any treatment plan and if you don’t understand ask many questions until hopefully you feel you have acquired the best option for you!