Trigeminal neuralgia: What helps stop the pain?

Posted by denny2788 @denny2788, Aug 29, 2021

What is good for triameglia neuralgia type 2 bilateral to stop the pain

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willow5 | @willow5 | Mar 22, 2025

In reply to @joanihm "MRI is painless and a scan similar to CT. Please do get one for your peace..." + (show)

Thank you for your encouragement. It’s the claustrophobia part that freaks me out and the head cage. I should puruse doing being put under. Then have the little procedure done to fix it and then not have to take the gaba for that.

jb8606 | @jb8606 | Mar 23, 2025

In reply to @pinkritas "Hi. I have suffered from trigeminal Neuralgia now for about 12 years. Tried different medications which..." + (show)

There is a Trimengial Neuralgia Support Group on Facebook that has 20,000 members and people are super helpful. I'd recommend posting this question there. From what I've read, doing dental work does not help TN. Good luck wrestling this TN monster.

fmmartinez58 | @fmmartinez58 | Mar 23, 2025

In reply to @joanihm "My TN type 2 began about 4 years ago with pressure pain on my right ear...." + (show)

Please join the online group on FB. Many people on there have what you post herpetic neuralgia. Talk about total pain. I do know many people have had success with surgery. It depends how bad you feel and how long you have had it. Easily googled. It's nice to banter with people who completely understand. Best of luck and feel better.

mymay2030 | @mymay2030 | Mar 23, 2025

In reply to @lbo615 "My Dr prescribed oxcarbazepine (Trileptal) It helped almost immediately" + (show)

Hi there, was the oxcarbazepine prescribed for your trigeminal neuralgia? could you give me some more details on the dosage and side effects.
I have been suffering with right side face and jaw pain, numbness sometimes like electric shocks.
Kindly help me.

delos13 | @delos13 | Mar 23, 2025

Try MBB injections in occipital nerves left n right side if that helps you can do a radio frequency ablation to your occipital nerves for lasting relief. See a endoscopic spine surgeon only

pinkritas | @pinkritas | Mar 23, 2025

In reply to @denny2788 "Thank you so much. How long have you had tn2. Please don't get affected me asking..." + (show)

Hi. No I don't having ringing in my ears. I think TN is different for everyone try not to worry mine has come and gone for periods of time over 12 years.
Iv had it 12 years. Im just trying to find out if anyone knows off different treatments as this time it's lasting longer and its the right side of the face that's sensitive to touch or movement. Sitting completely still the pain goes.

pinkritas | @pinkritas | Mar 23, 2025

In reply to @bunstuffer "They kept telling me (3 different doctors) that I had trigeminal neuralgia and treating me for..." + (show)

That's interesting. I'll research that find out what the difference us and make a note of it for when I get my neurology appointment.
Thank you

pinkritas | @pinkritas | Mar 25, 2025

In reply to @jb8606 "There is a Trimengial Neuralgia Support Group on Facebook that has 20,000 members and people are..." + (show)

Thank you for your reply. Unfortunately i sm not on face book but I will keep looking for other chat groups.

cheryl46 | @cheryl46 | Mar 25, 2025

In reply to @joanihm "My TN type 2 began about 4 years ago with pressure pain on my right ear...." + (show)

Did you have "ice pick " sensation in your ear? Did you ever have sudden weakness all over and unable to open your eyelids completely,
These are my symptoms, saw my ENT yesterday and ear is fine but he mentioned this particular diagnosis.

joanihm | @joanihm | Mar 26, 2025

In reply to @cheryl46 "Did you have "ice pick " sensation in your ear? Did you ever have sudden weakness..." + (show)

Sorry to hear of the icepick sensation. I hear that type of sensation may be common in
Type 1 TN.

TN affects the whole of the right side of my face, like a dull headache. It affects my eye and lid as well as my ear. MRI indicates nothing abnormal. All else has been ruled out, so it may be TN2.