Trigeminal neuralgia: What helps stop the pain?

Apologies, thank you @johnbishop . I was refering to Trigeminal Neuralgia. Thank you for the link you provided! Much appreciated.

Does anyone have any info on stem cell treatment for post herpetic neuralgia (aftermath of shingles)

Hi. I have suffered from trigeminal Neuralgia now for about 12 years. Tried different medications which don't seem to help but the TN does reduce to a managble level on it's own for months at z time. I have now had it bad since January struggling to eat, talk, drink and walk on hard surfaces some time. Doctors trying some new meds while I' wait for a referral ( up to 21 weeks they say) to neurology. My problem started after a dental crown. Has anyone ever had the same problem as I'm now getting to the point where I'm convinced removing that crow may help.
Rita

I understand your pain, I had TN for a year and a half and it was the absolute worst pain imaginable. I used Dr. Lee at the Ft. Worth Brain and Spine, he performed the microvascular decompression surgery (cutting the hole in the skull and wrapping the nerve in Teflon) it has truly been a live changer for me. I no longer have the electrical shocks.

One 100 mg of gabapentin takes care of the pain for me. I “should” do the surgery. I dread an MRI to find the nerve. I hear there’s a place north of me that has one day a week where scared folks like me can be put under to do the brain MRI. I need to check that out. It is absolutely the worst pain I have ever felt.

I ran out of gaba on a vacation once and it came back in full force. I used a mild muscle relaxer and tylenol and that helped.

I have PHN misery. My daughter researched that treatment and begged me not to try. I am not scheduled, but I'm going to get a neurorectomy this year. Are you in the online group for PHN? People share what has or has not helped. It seems to be very individual. ❤️

Hi. I was on a larger dose of gabspentin for s couple of years. Over time the pain subsided for a couple of years just slight pain now and then but I could live with that. This time it's come back worse than ever and medication not working . Iv had three different medications over the years but the pain has a mind of it's own. I'm mainly pain free when I lay down so I think the nerve moves away from the blood vessels on that position. Been referred to a neurologist but it's upto 21 weeks waiting list unfortunately.

My TN type 2 began about 4 years ago with pressure pain on my right ear. Two years ago it expanded to the right side of my face including ear, nose and eye as well as head. Persistent pressure and numbness at this time. Ordinarily, Lyrica works along with avoidance of groups. It is activated by wind, touching, etc MRIs of brain indicate all is normal.

MRI is painless and a scan similar to CT. Please do get one for your peace of mind.

They kept telling me (3 different doctors) that I had trigeminal neuralgia and treating me for that. Turns out it's supraorbital neuralgia. Once I was treated for that, my pain is almost completely gone.