Pain around pacemaker site

Posted by dorothynoz45 @dorothynoz45, Jun 22, 2019

I am getting very frustrated with this situation. I have had my pacemaker for over 2 years and I still have the same cramping ache at the site that I experienced after the implant. No one takes me seriously. I have been trying to rattle the cardiology office cage for a week and 1/2 now. Several weeks ago it got worse; woke me up at night and in the morning it hurt so bad that twice I couldn't stand straight. It seems to harder to stand up when I get up and start moving. I can't get past the phone nurse. She left a voice mail for me ' that it couldn't possibly be the device because I've had it so long. That it must be something else.' Dr. told me they could re position it but didn't like to for fear of infection. I am posting because after this long of time, although I've been told nothing can be done about it, I don't want this in my life anymore. Has this happened to anyone else?

Interested in more discussions like this? Go to the Pacemaker & ICDs Support Group.

Thanks for the high five! Just an aside...you mention sleeping position (side, I assume) generates pain but not on the back. Side-sleeping likely squashes the implant side. Stay on your back for sleeping.

I used to sleep on my back all the time. I love it BUT (there is always a but) I also have sleep apnea so I have had to learn to sleep on my right side. If it's not one thing it's another.

Your positive and determined attitude will serve you well.

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@dorothynoz45

Just this week I have decided to pursue a 2nd opinion. I have an app't with my PC and I want a 2nd opinion.

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you have never been to australian hospital with heart prob you wait in waiting room till your turn

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Yes, the pain can be real. They place the pacemaker in a “ pectoral pocket”, I’d question them to address the cause of the pain. Could be a lead, could be prior injury, could mask heart issue. Who really knows for certain unless they take it seriously? It sounds like your doctor did not, and he is a jerk for abandoning your need, and helping you identify the cause.

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@colleenyoung

Welcome, @oldlady262. I moved your message to this existing discussion:
- Pain around pacemaker site: https://connect.mayoclinic.org/discussion/cramping-around-pacemaker-site/

I did this so you can read the previous posts and connect with other members like @dorothynoz45 @yoanne @starfirey2k @cmensinger @texas14 @dennis0461 @sam0816 and others.

Oldlady, have you had pain since the pacemaker was put in 9 years ago? What might have happened in the past week or two that might have made the pain worsen?

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She said she had it moved 2 times, this is the 3rd time. Assuming you aren’t doing some activity to aggravate the area. The area may have unusual sensitivity, prior broken ribs? Too close-to armpit? Bra strap, pulling? Sounds like it is irritating the surrounding tissue/area? Maybe old lady is smaller with thinner skin? You can get pads for bra straps to cushion the area if you haven’t already tried them.

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Hello, is it possible you have a metal allergy? You can be tested for this but an easy way to know is if you have a reaction to metal in jewelry. I've a dear friend who discovered hers after her pacemaker implant. There are devices that are coated to prevent a reaction. Wishing you good health and a long and happy life

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Hello to all,
My first battery was placed directly on a nerve. It caused physiologic changes. My underarm became so hollow that I could no longer shave. I could not lift my arm as high as my head or place it behind my back. The nerve was impinged and I was miserable the entire 10 years of that pacemaker battery. I was thin during placement,
so they scalloped out a good bit of muscle to seat the device. That placement made me miserable.
After 10 years I had my battery replaced, making sure to gain weight before hand. I asked them to seat the battery higher in the depth field, causing it to protrude a bit but who cares? I can lift my arm, and shave since the hollow is gone. The relief was great, as was the improved comfort. A happy ending!

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@pejeffrey1947

Hello, is it possible you have a metal allergy? You can be tested for this but an easy way to know is if you have a reaction to metal in jewelry. I've a dear friend who discovered hers after her pacemaker implant. There are devices that are coated to prevent a reaction. Wishing you good health and a long and happy life

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There is a comprehensive metal test called MELISA. I was tested for 34 metals.

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I do not see how anyone can expect you to suffer this much. Please get as many "second opinions" as needed until you solve the disabling reaction. Keep looking things up yourself. Please do not give up.

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Yes. Sounds like an echo. I just want to feel better and live again. I understand believe me.

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@deniseheart

There is a comprehensive metal test called MELISA. I was tested for 34 metals.

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You know that's amazing you say that because my daughter has had piercings and her body literally grew them out. So therefore that is an excellent suggestion. I will bring that up. Having issues myself. A lot of swelling too.

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