How long do side effects from statins last once you stop taking them?

Posted by con123 @con123, Jul 30, 2024

I have been taking 20mg of Lipitor for almost 2 years and have felt yucky since shortly after starting. My cardiologist allowed me to go off one week and I did not see a difference. He also cut back daily to three times a week. I ache all over - neck, back, hips, knees, elbows, and legs are weak. Recently had a normal CK test, but PCP said we might consider a trial off statins since I am below 200 now. Has anyone stopped taking statins and saw a significant decrease in muscle pain, and if so, how long did it take?

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@bonniefielding

Were you taking the COQ10 when you were taking the statin ? I stopped the statin because of all the problems....I bought some COQ10 from Cosco - I haven't started taking it but that is my New Years Resolution to start taking it and see if I can manage mine without the GP's input because they just want to push their drugs and I know there are so many side effects to these drugs...

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Hi Jennifer statin really make me feel crappy all the time coq 10 I've never heard of that before I'll have to look it up I hope it makes you feel wonderful .

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I made the original post in July 2024, so I’m coming back with comments. I stopped statins in August with my doctors consent. It took at least several weeks to feel relief but all the pain and weakness eventually decreased about 90%. In December I agreed to try Zetia and in a week, I was getting back pain and leg weakness so I stopped. In about a week, I felt good again. Next is to try Repatha and hope for the best. Cholesterol definitely went back up off meds.

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I was on the second lowest dosage of lipitor for two weeks and experienced severe muscle weakness and aching in the upper right part of my body. After stopping the statins the side effects lasted for about six to eight months. My strength came back and the aches went away. Every once in a while I get pain in that specific part of my body that lasts for a week to two weeks. The doctors say it's not because of the lipitor but I'm not sure they're right. Ive been on repatha for about six months with no noticable side effects. Repatha took my LDL from about 190 to 50 so that's good anyway.

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@dab77

I was on the second lowest dosage of lipitor for two weeks and experienced severe muscle weakness and aching in the upper right part of my body. After stopping the statins the side effects lasted for about six to eight months. My strength came back and the aches went away. Every once in a while I get pain in that specific part of my body that lasts for a week to two weeks. The doctors say it's not because of the lipitor but I'm not sure they're right. Ive been on repatha for about six months with no noticable side effects. Repatha took my LDL from about 190 to 50 so that's good anyway.

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Good news about the Repatha. Mine is in the fridge but I’m waiting to finish some antibiotics for a sinus infection before starting. Hoping for the best!

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I've been off stating for over 3+ years now. And anything I do, I suffer that night and the next day or up to 3. Doc had me on 40mg for right at 4+ years. I kept complaining about the cramping, he never told me that it was the statin. And each time I told him about the cramps and how Bad they were he would tell me to take potassium and magnesium pills..! I had already been taking them before the 1st time i told him! I couldn't work!! When I found out it was statin I stopped taking the statin, matter of fact I stopped taking everything he had me on and i still have some Crazy cramps everytime i work. I woud have rather died than to loose everything I've worked for.. I've Lost All Trust in everyone but GOD and my family!!!
Statin drugs and Doctors these days you all are in my prayers!😇😤😔🙏

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@rboul

I've been off stating for over 3+ years now. And anything I do, I suffer that night and the next day or up to 3. Doc had me on 40mg for right at 4+ years. I kept complaining about the cramping, he never told me that it was the statin. And each time I told him about the cramps and how Bad they were he would tell me to take potassium and magnesium pills..! I had already been taking them before the 1st time i told him! I couldn't work!! When I found out it was statin I stopped taking the statin, matter of fact I stopped taking everything he had me on and i still have some Crazy cramps everytime i work. I woud have rather died than to loose everything I've worked for.. I've Lost All Trust in everyone but GOD and my family!!!
Statin drugs and Doctors these days you all are in my prayers!😇😤😔🙏

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How long have you been feeling like this now that you are not taking anything? I had taken at statin for decades when my primary care doctor finally took me serious and that was because my blood work indicated something was wrong. I am totally not a medical professional and certainly do not want to project my situation onto yours, but…..maybe something else is going on with you worth getting to the bottom of. I was off statins for a time and my symptoms did not go away. In fact, my health tanked. Like you, my faith drives what I do. I knew how I was being treated was not working and it consistently provides me strength to keep pushing. Boy, am I glad I have. I am actually back on statins and I am learning they are not my problem. I found doctors that listen to me and treat me with respect. It’s been rough but so worth it. Hoping you find the same. 🙂

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@jlharsh

How long have you been feeling like this now that you are not taking anything? I had taken at statin for decades when my primary care doctor finally took me serious and that was because my blood work indicated something was wrong. I am totally not a medical professional and certainly do not want to project my situation onto yours, but…..maybe something else is going on with you worth getting to the bottom of. I was off statins for a time and my symptoms did not go away. In fact, my health tanked. Like you, my faith drives what I do. I knew how I was being treated was not working and it consistently provides me strength to keep pushing. Boy, am I glad I have. I am actually back on statins and I am learning they are not my problem. I found doctors that listen to me and treat me with respect. It’s been rough but so worth it. Hoping you find the same. 🙂

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I’m curious as to what condition was causing your issues if not statins. It’s been 8 months and I still get some strange aches in knees and back, but MUCH less than when on statins. I’m 66 and am very active dancing, playing a small bass drum (17 pounds strapped to my back), and have young grandkids, teach a 2 yr old class on Sunday. I still have not started Repatha. I have to see an ENT to evaluate my sinus issue.

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@con123

I’m curious as to what condition was causing your issues if not statins. It’s been 8 months and I still get some strange aches in knees and back, but MUCH less than when on statins. I’m 66 and am very active dancing, playing a small bass drum (17 pounds strapped to my back), and have young grandkids, teach a 2 yr old class on Sunday. I still have not started Repatha. I have to see an ENT to evaluate my sinus issue.

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Well, that’s the million dollar question that I’m not sure about. I do know there are genetics involved making my cholesterol a bit pesky. :). I know for whatever reason my body requires an extremely consistent diet, exercise, strengthening and stretching, and we don’t make changes often. So much that it doesn’t leave time for much else but with a trade off that I can function. I am learning everything affects everything. I would say stay activity, go see your ENT for your sinus issue and see what they think about timing of when to try Repatha (I think there are sinus related side effects). The doc that prescribes my cholesterol treatment is who I go to when I think I am having side effects and he is helpful to address them.

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@jlharsh

Well, that’s the million dollar question that I’m not sure about. I do know there are genetics involved making my cholesterol a bit pesky. :). I know for whatever reason my body requires an extremely consistent diet, exercise, strengthening and stretching, and we don’t make changes often. So much that it doesn’t leave time for much else but with a trade off that I can function. I am learning everything affects everything. I would say stay activity, go see your ENT for your sinus issue and see what they think about timing of when to try Repatha (I think there are sinus related side effects). The doc that prescribes my cholesterol treatment is who I go to when I think I am having side effects and he is helpful to address them.

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Thanks. I am very active, good BMI, decent diet., and no good reason for high cholesterol other than genetic. My recent calcium score was 0. I have passed all cardiac tests and blood pressure controlled with meds. I’m waiting for an ENT consult and results of my sinus CT. Both PCP and cardiologist said to wait until this was resolved to start Repatha. I’m not worried about dying of heart disease at this point.

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@con123

Thanks. I am very active, good BMI, decent diet., and no good reason for high cholesterol other than genetic. My recent calcium score was 0. I have passed all cardiac tests and blood pressure controlled with meds. I’m waiting for an ENT consult and results of my sinus CT. Both PCP and cardiologist said to wait until this was resolved to start Repatha. I’m not worried about dying of heart disease at this point.

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Sounds like the perfect plan! Now on to make the most of today. 😀

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