How long do side effects from statins last once you stop taking them?

Posted by con123 @con123, Jul 30, 2024

I have been taking 20mg of Lipitor for almost 2 years and have felt yucky since shortly after starting. My cardiologist allowed me to go off one week and I did not see a difference. He also cut back daily to three times a week. I ache all over - neck, back, hips, knees, elbows, and legs are weak. Recently had a normal CK test, but PCP said we might consider a trial off statins since I am below 200 now. Has anyone stopped taking statins and saw a significant decrease in muscle pain, and if so, how long did it take?

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@con123

You are so kind. I was put on statins just because of a cholesterol spike to 296. It had been hovering around 200-250 for many years. No one mentioned statins because I am 126 pounds and super fit and active. This new PCP just called it in like it was nothing. My calcium score was 0, CT and MRI showed no plaques or blockages. I do have high BP, but it is controlled with meds. Previous doctors were very sensitive to side effects of those meds like ankle swelling and increased potassium levels, and adjusted meds quickly to find what worked without bad reactions. Yet, not my experience with statins. My last cholesterol number was 193, and that was with 3 times a week 20mg Lipitor. That was November and no one is even checking it. "just take your statin" I do take COQ10, A-D-K vitamins, omega oil - all the things. I am just so tired of being in pain.

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Were you taking the COQ10 when you were taking the statin ? I stopped the statin because of all the problems....I bought some COQ10 from Cosco - I haven't started taking it but that is my New Years Resolution to start taking it and see if I can manage mine without the GP's input because they just want to push their drugs and I know there are so many side effects to these drugs...

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I was taking the COQ10 before, during statin therapy, and still. On over 3 months statin break, I'm so happy with little pain, yet my cholesterol is back up -especially the LDL. He has prescribed Zetia and I will start that soon. I have done all I can with diet and exercise and supplements. He thinks it is simply hereditary high lipids. Says I am at moderate risk for cardiac events in my future. I'm not happy to try another drug but I will give it a chance, and know what to look for. He will not make me go a year or more if I have issues. Good luck!

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@bonniefielding

Were you taking the COQ10 when you were taking the statin ? I stopped the statin because of all the problems....I bought some COQ10 from Cosco - I haven't started taking it but that is my New Years Resolution to start taking it and see if I can manage mine without the GP's input because they just want to push their drugs and I know there are so many side effects to these drugs...

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I can’t take statins or Repatha due to extreme side effects. I tried CoQ10. Had the same side effects. I was told it was essentially the same as a statin. I was hoping I could tolerate it, but couldn’t. You’re right, my doctor totally denies the value of anything but statins. And, has an attitude that I somehow fail if I don’t take statins. He literally said “if you don’t take these medications I have nothing for you.”

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I went through the same except I was almost bedridden after 6 months taking statins, any kind, any dose. I got back to normal, Phew, I was afraid the side effects might be permanent, but it took a few months. A few years later the doctor convinced me to take Repatha. Also, extreme side effects again. After about 6 months I was ceasing activities like yoga and walking. No good. I quit Repatha. It took about two months as well to recover.

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@llynch17056

I went through the same except I was almost bedridden after 6 months taking statins, any kind, any dose. I got back to normal, Phew, I was afraid the side effects might be permanent, but it took a few months. A few years later the doctor convinced me to take Repatha. Also, extreme side effects again. After about 6 months I was ceasing activities like yoga and walking. No good. I quit Repatha. It took about two months as well to recover.

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That is a shame. So sorry. Are your LDL levels really high? What is your total number? I was at 296 when everyone panicked. I sought out a cardiology consult and passed all tests - calcium score of 0, no blockages, blood pressure under control with meds, no diabetes or smoking...
On statins, I was down to high 190's/low 200's/ LDL 85-90, but after a 2 month break, back to 274 total, LDL 165. Cardiologist wants that number down. I'm putting off the Zetia day by day, but I will try it. I just won't tolerate the side effects for years, hoping they would go away. He agreed. Repatha would be the last option.

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@carolinlv

I am wondering how long it takes the aches and pains as well as fatigue to end after stopping statins. I have taken Rosuvastatin 5 mg for two years. My cholesterol is now 136 and I eat so healthy, I have lost 25 pounds in the last six months. My doctor told me I could take a break and we would do a blood test to see how well I do off of statins. It’s been six weeks and the foot and leg neuropathy are really bad. My fatigue is constant. I feel no better off of them than I did on them. I have read everything from 30 days to six months to get over statin side effects. Now I’d like to hear from people who have actually dealt with it. Just can’t trust Google! Can anyone share their experience?

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Have been on 20 mg simvastatin for 20 years with no apparent side effects and good results. Am now on 40 mg atorvastatin due to atria fillbration AFIB and am doing well with hardly any side effects.

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@con123

That is a shame. So sorry. Are your LDL levels really high? What is your total number? I was at 296 when everyone panicked. I sought out a cardiology consult and passed all tests - calcium score of 0, no blockages, blood pressure under control with meds, no diabetes or smoking...
On statins, I was down to high 190's/low 200's/ LDL 85-90, but after a 2 month break, back to 274 total, LDL 165. Cardiologist wants that number down. I'm putting off the Zetia day by day, but I will try it. I just won't tolerate the side effects for years, hoping they would go away. He agreed. Repatha would be the last option.

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I have already been down those paths. What now?

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@llynch17056

I can’t take statins or Repatha due to extreme side effects. I tried CoQ10. Had the same side effects. I was told it was essentially the same as a statin. I was hoping I could tolerate it, but couldn’t. You’re right, my doctor totally denies the value of anything but statins. And, has an attitude that I somehow fail if I don’t take statins. He literally said “if you don’t take these medications I have nothing for you.”

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I don't think statins and CoQ10 are "essentially the same."

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@mayoconnectuser1

I don't think statins and CoQ10 are "essentially the same."

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I’m going to try the CoQ10 again. When I first tried it I felt so bad, but the acupuncturist was surprised, so I’ll give it another try.

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@mayoconnectuser1

I don't think statins and CoQ10 are "essentially the same."

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No they are not

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