Started Repatha - Side Effects

I am trying to follow my doctors orders with the medication‘s and have been successful doing that and gotten my numbers down really low and as he says superbly! However, the emotional piece is difficult as it was quite a shock. I am researching and reading ahead, everything I can about. Coronary artery disease. I have taken great measures with my assets and put everything in to a trust and a will, and have POA‘s set up for my family. I now have a fiduciary, financial planner, an investment broker, and that stuff is all put in the trust too! I am in the process of clearing out my house. Getting rid of junk. I am always other people other centered And I have always tried to make things easier for everyone else, lol

Sure I would love to meet your mom or online, correct?

It sounds like you are doing everything you can. What are you having difficultly dealing with?

The uncertainty, if I am going to have a heart attack and when would it happen. Or a stroke. It’s a mental processing.

All my doctor said was if I can’t take statins or Repatha then he “had nothing for me.” Ugh. I said,” but YOU are my cardiologist and I can’t take those drugs.” He just kind of shrugged. I need a new cardiologist.

I’m 77. I have reached the age that if I died today no one would say “awww, she died young.” People die at my age all the time for many different reasons. A couple of years ago I downsized and got rid of LOTS of stuff. I am organizing. I have spoken to my daughter about where things are. What to do about my dogs. Made a will. Consolidated my finances. Made sure she is beneficiary on all my accounts. I have longevity in my family. My grandmother passed at 98 in her sleep and my mother died of Covid at 94. But, they didn’t have CVD.

I need a doctor that isn’t a statin pill pusher. Someone that statins are not their only show. I just need to know how much at risk I actually am. I eat clean, heart healthy, I’m not over weight, I exercise daily.

We sound so similar! My grandma died when she was 96 and I take after her physically in genetics and stature. I am so glad I found Repatha medication! I actually feel better. Those statins were awful feeling and painful for me.

I am 66. The score of 0 was at age 65. I also had this test done about 10 years ago, also 0. I would think I wouldn’t need to take anything, and just let my number be high if it isn’t hurting me. Cardiologist says I likely have this score because I’m 128 pounds, have a good diet, and exercise daily. He says the high cholesterol and high blood pressure make me a moderate risk for stroke/heart attack.

I am curious if your reaction to Repatha has subsided and I certainly hope that it has. Your experience sounds exactly the same as my husband's. Thirty plus years of severe pain and muscle loss due to statins. Second dose of Repatha and he can hardly lift his arms or even stand up. This particular reaction has continued for the past two months. There is not one doctor willing to attribute this to the many years of statins and then Repatha. It is quite frustrating. I do hope you are well and if you have had success with any particular specialist or treatment in overcoming your symptoms, I would love to hear from you. Thank you.

No, my symptoms had not improved and only got terribly worse. I told my doctor and quit Repatha. My doctor all but fired me as a patient. I was on nothing for my heart disease. After lots of reading I am more concerned about my elevated LP(a) and statins won’t help that even though I can’t take statins anyway either. I read about OTC Beta-Sitosyerol. I took a fasting blood test then started that drug. In 6 months I’ll take another fasting blood test. I guess I’m my own doctor now.