Anyone been prescribed Ohtuvayre (new med)? Your experience?

Ps: my diagnosis is emphysema

Thank you. I got a new package and it seems to be mixing better. I'll keep trying. Does yours have white clumps in it after you shake it? Mine still does.

Okay. I'll keep at it then. Does yours have white clumps in it after you shake it?

It's an expensive drug and I don't want to spend that much money and get no results. Thanks for this reply!

I finally did get a response and they sent me another box of vials. There are still white clumps in it after I shake it so still have concerns.

The pharmacist told me to warm it up a little by wrapping your hand around the vial. I think all clumps should be dissolved and mixed in. Keep shaking.
Also Verona has a patient assistance program to help with cost. Call them.

I'll try warming it up. Thank you. And I have contacted Verona to help with the cost. They are reviewing my application (as well as hundreds of others!). I think all clumps should be dissolved, too. Mine are not. Hmm...

Is anyone taking Ensifentrine (Ohtuvayre)
for copd?

I’ve read of some folks taking Ensifentrine on this Board as well as on Copdfoundation.org’s COPD360social. A few have had GREAT results and some have not found it helpful. It’s like all treatments, you have to see how well it helps YOU as an individual. I believe it’s most helpful to folks who have a lot of mucus vs those of us who rarely have much.

It’s a nebulized medication taken 2x/day. There are discount programs but the manufacturer’s recommended price is fairly high. It was just approved in late 2024.

I've not had good luck getting the Ohtuvayre vials to mix properly. Mine get cloudy but with clumps of white still in it. Can't find anyone who can tell me if it's safe to take. Seeing my pulmonologist in a couple of weeks so maybe he can tell me. Very frustrating. Even filed the issue with the company but no answer yet.