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Managing fibromyalgia

Posted by mrs artavia @mrsartavia, Aug 29, 2013

Hello everyone, I am looking for anyone who suffers from fibromyalgia and can suggest healing methods, medication and I would like to compare symptoms. Mine feels as if I had the flu, headache, joint aches, terribly tired, pain around the glands, stomach pain, low back. If lyou can please write with any comment or suggestion for relief, or any idea what causes it I will appreciate it thank you.

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

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app1 | @app1 | Jan 13 11:34pm

I have been diagnosed with fibromyalgia for about 8 years and with all the same symptoms you just described. I felt like I had the flu all the time. Nothing helped. About 6 months ago I started taking vitamins and supplements. One especially called alfalfa by Shaklee has been a miracle worker for me. I have had one 2 day flare in all these months. It helps with inflammation so I take about 15 tablets a day. It’s very inexpensive so don’t let that deter you. I had to play around a little bit with the dosage. They say try 10 a day but they are all natural and cant hurt you so everyone on them has their own dose. It’s such a natural and inexpensive way to treat your inflammation. I hope this helps!

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c101 | @c101 | Jan 14 2:26pm
In reply to @portera "I.ve fibromyalgia over 25 yrs .pain stiffness in muscles getting worse and pain in fingers terrible...." + (show)
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I.ve fibromyalgia over 25 yrs .pain stiffness in muscles getting worse and pain in fingers terrible. Having difficulty doing basic act cities of daily living and it is getting me down. Can anyone advise me please. A. Porter

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Theraworx for Muscle Cramps: I have found this to relax the muscles. It is a magnesium base. Available at Walgreen, Walmart, or Amazon. They also make one for Nerve Pain. I can feel the muscles relax after applying it.

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mrstigger49 | @mrstigger49 | Jan 14 2:35pm

I go through periods where I can’t stand feeling my clothes or water on my skin; like a fire burning me or just mere touching me hurts.
Then I go through times where I feel like I’ve got a bad case of flu 😷 this usually lasts from 3 days to two weeks.
I started doing more standing YOGA moves and that seems to really help to alleviate my pain!
Listening to calming music and especially classical music. Find your favorite. One I like is MOZART.
Gentle hugs, Maddie

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2 replies
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ahenrybird7 | @ahenrybird7 | Jan 14 5:53pm
In reply to @mrstigger49 "I go through periods where I can’t stand feeling my clothes or water on my skin;..." + (show)
Profile picture for mrstigger49 @mrstigger49

I go through periods where I can’t stand feeling my clothes or water on my skin; like a fire burning me or just mere touching me hurts.
Then I go through times where I feel like I’ve got a bad case of flu 😷 this usually lasts from 3 days to two weeks.
I started doing more standing YOGA moves and that seems to really help to alleviate my pain!
Listening to calming music and especially classical music. Find your favorite. One I like is MOZART.
Gentle hugs, Maddie

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Thanks for the yoga and music ideas. I do some pt and will start with
another therapist next week.

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Mentor
Becky, Volunteer Mentor | @becsbuddy | Jan 14 8:12pm
In reply to @mrstigger49 "I go through periods where I can’t stand feeling my clothes or water on my skin;..." + (show)
Profile picture for mrstigger49 @mrstigger49

I go through periods where I can’t stand feeling my clothes or water on my skin; like a fire burning me or just mere touching me hurts.
Then I go through times where I feel like I’ve got a bad case of flu 😷 this usually lasts from 3 days to two weeks.
I started doing more standing YOGA moves and that seems to really help to alleviate my pain!
Listening to calming music and especially classical music. Find your favorite. One I like is MOZART.
Gentle hugs, Maddie

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@mrstigger49 Welcome to Mayo Clinic Connect! I’m glad you found the site AND you had some helpful info to pass on. Thank you!

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mrstigger49 | @mrstigger49 | Jan 15 10:40am

Thank you, Becky.

Try to find my positive ~ it helps my pain level lower.
I also have ADHD which causes anxiety so music calms my soul and soothes my skin & inward…😊

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boisvert | @boisvert | Jan 15 3:04pm

I’ve started the spoon method as per my PCP. I had to change it to a number system as that works better for me but it’s absolutely helping me manage my pain and fatigue.

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johnc777 | @johnc777 | Sep 2 5:07am
In reply to @disgusted "I also had the added difficulty that as a man they did not think that Icould..." + (show)
Profile picture for disgusted @disgusted

I also had the added difficulty that as a man they did not think that I<br>could have fibromyalgia because they think it is a "woman's problem". I<br>also had intense back pain and my doctor ran me through a complete cycle of<br>tests for other things, all of which came up negative. At that point I was<br>hoping that I would have a fatal illness that would at least end the pain.<br>When he applied pressure on the tender points and I responded he determined<br>that i had fibromyalgia.<br><br>Then it got amusing. He asked me if I had any ideas as to how to proceed.<br>I did not know much other than Lyrica was being advertised, so he started<br>me on that. After a couple of days (it was Mother's Day and I was out of<br>town with my family) I broke out in hives, so that ended Lyrica. Then I<br>suggested gabapentin and he started me on that. I began to get relief from<br>the pain when I got into megadoses of it and it has been working for me<br>since then. The side effects have not been too bad for me, so I have been<br>a happy camper, counting myself extremely fortunate, and hoping and praying<br>for other fellow sufferers.<br>

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hi I wondered if you had any wisdom for men with fibro gathered in your more recent years? many thanks for any thoughts

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quilterfingers | @quilterfingers | Sep 3 9:33am
In reply to @c101 "Theraworx for Muscle Cramps: I have found this to relax the muscles. It is a magnesium..." + (show)
Profile picture for c101 @c101

Theraworx for Muscle Cramps: I have found this to relax the muscles. It is a magnesium base. Available at Walgreen, Walmart, or Amazon. They also make one for Nerve Pain. I can feel the muscles relax after applying it.

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I use the muscle cramp one
What is the nerve pain one called?

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quilterfingers | @quilterfingers | Sep 3 9:34am

I use the muscle cramp one.
Do U know what the nerve pain one is called?

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