What were the first dementia signs you noticed?

Posted by bclane @bclane, Dec 22, 2024

My husband has vascular dementia as a result of at least 7 TIAs and 1 larger stroke as shown on an MRI. The only one we were aware of was a TIA in 2016. I'm guessing that some or all of the others may have happened in his sleep because there were no obvious signs like there were with the 2016 one.

Anyway, I've been thinking back to things that seemed "off" well before I started suspecting a problem. One thing was that he started mixing up pronouns. He'd refer to a female pet as "he" and vice-versa. He still does and he mostly does it with animals. He'll also tell a male pet that's he's a "good girl" and vice-versa.

When it first happened, it became a joke, but now I wonder if that was one of the first signs that something wasn't functioning the way it should. I'm curious if others can think of things that seemed "off" before the problem became obvious.

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@maryvc

We are so there. I have to watch what I say and how I say it. My husband is very sensitive to anything I say if it sounds like a correction or question of his behavior. He is getting more irritable. He loves when I smile, laugh, look calm but if I look frustrated ( which I am a lot) I have to be very careful.

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My husband if very reactive to corrections. I often just keep quiet unless it’s an important matter.

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My husband would ask me the name of his relative that i may have met once. Also refused to play board games with friends. He began saying things are familiar like a movie that was just released, or he’s been somewhere that i know is impossible. For me the saddest is watching him look for anyway to fill his time each day, like picking up and counting pinecones in the yard. He has a very difficult time relaxing.

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My wife played the church organ for 47 years! One sunday she made a few mistakes, something she rarely did. She just said "I can't do this any more." To me that was the first sign. Others soon followed.

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We were having a party and an old friend who hadn’t seen my husband for several years suddenly took me aside and said that Jim wasn’t the same and we needed to go for a checkup. When we did, he couldn’t draw a clock🙁 and it went down hill from there

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@rubyredkate

My husband would ask me the name of his relative that i may have met once. Also refused to play board games with friends. He began saying things are familiar like a movie that was just released, or he’s been somewhere that i know is impossible. For me the saddest is watching him look for anyway to fill his time each day, like picking up and counting pinecones in the yard. He has a very difficult time relaxing.

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My husband does the "it's familiar" thing, too. Like when we were in Lexington for a doctor's appointment, we passed a guy panhandling and he said he remembered that guy being there before. We hadn't been to Lexington for a few months. Other times he claims he recognizes a car that is driving toward us, that he's seen it before. Of course, it's possible he really did, but since people seldom remember something so unimportant, I doubt it.

He also invents stories about things he saw that I know never happened, but he's convinced they did. I see it as him trying to fill the holes in his memory with something. He also goes outside (when it's not covered in snow and ice like it is now) and picks up twigs. He doesn't count them, though, just throws them out of the way.

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I've purchased a number of jigsaw puzzles for people with dementia, with pieces ranging from 16 - 100 pieces. very husband started with the 16 pieces, then worked his way up. He works on them for long periods of time and becomes very involved doing them. He's even figured out a few shortcuts.
He still does the dishes, and when I can, I give him safe jobs he can manage to keep him busy. He also spends a lot of time resting/napping, which the brain needs.
Weather permitting, we walk most days, for half an hour.

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@bclane

My husband does the "it's familiar" thing, too. Like when we were in Lexington for a doctor's appointment, we passed a guy panhandling and he said he remembered that guy being there before. We hadn't been to Lexington for a few months. Other times he claims he recognizes a car that is driving toward us, that he's seen it before. Of course, it's possible he really did, but since people seldom remember something so unimportant, I doubt it.

He also invents stories about things he saw that I know never happened, but he's convinced they did. I see it as him trying to fill the holes in his memory with something. He also goes outside (when it's not covered in snow and ice like it is now) and picks up twigs. He doesn't count them, though, just throws them out of the way.

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Very similar indeed. Tonight hes going to a bible study group that he really misses since we changed Churches to be closer to home. I wish he was not driving at night but doctors say hes fine to drive. I do state my worry but since theres been no accidents he disregards me.
Hugs

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@boppi

We were having a party and an old friend who hadn’t seen my husband for several years suddenly took me aside and said that Jim wasn’t the same and we needed to go for a checkup. When we did, he couldn’t draw a clock🙁 and it went down hill from there

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Is he seeing a geriatric specialist or cognitive neurologist? If not, you might want to consider it.

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@tsc

I've purchased a number of jigsaw puzzles for people with dementia, with pieces ranging from 16 - 100 pieces. very husband started with the 16 pieces, then worked his way up. He works on them for long periods of time and becomes very involved doing them. He's even figured out a few shortcuts.
He still does the dishes, and when I can, I give him safe jobs he can manage to keep him busy. He also spends a lot of time resting/napping, which the brain needs.
Weather permitting, we walk most days, for half an hour.

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Thank you for sharing! I still have some small puzzles here I think. I’ll have to check the kid cupboard.

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