Managing fibromyalgia

What I can share may sound "off the wall," but here goes anyway.
I have two friends from the alternative treatment sphere, one here in the US, the other in England. They both insist that "fibromyalgia" is a junk diagnosis and suggest more effective treatment is found by "defining" the condition as multiple trigger points. One of these friends is a deep tissue massage practitioner with decades of experience, and whatever my so-called diagnosis is, she was able to keep me going, leading a functional life, including riding my horses for over 2 decades until I retired at age 66.
Lately, I've been exposed to the work of Stefanie Seneff, PhD, MIT trained, and a very serious researcher (easy to find online if you want to check her out). Her initial interest in studying what she considered an alarming rise in cases of autism led her to find evidence linking it to what is now the world-wide use of glyphosate (Round-Up). She is dismissed by many as a "crank." I guess that's something that people have to decide for themselves - to find her credible, or accept the "party line" initially given out by Monsanto & now Bayer that the herbicide is harmless.
Unfortunately, however, at this point, there is no consensus on the protocol for treating long-term exposure.

I have had Fibromyalgia since at least 1990. I am on my second round of Lyrica. I have experienced good results with it. My issues are deep muscle pain all over. I also have IBS, which has similar characteristics to what you have mentioned. We try to eat as healthy as possible, meaning, in our case, less processed food the better. Lots of turkey, fish, chicken, and vegetarian dishes. No pork, and beef rarely. For sweets we go to fruits. Occasionally we will make a low sugar dessert. Magnesium, turmeric, and a special cream made by a friends daughter supplement this routine. I have no issues with fibro right now, but am looking towards a hip replacement soon. I hope you find some answers to help with your symptoms. Constant pain is no joke.

Hi there my name is Machelle I was once on a forum now sure if it was this particular one I thought I would join and drop in to check it out. I have had fibromyalgia appx 25 yrs. Of course, doesn't it better, I have it's worse. Look forward 😀 to talk to you about life and how to deal with the "stuff" life is throwing at us.....

I have been diagnosed with fibromyalgia for about 8 years and with all the same symptoms you just described. I felt like I had the flu all the time. Nothing helped. About 6 months ago I started taking vitamins and supplements. One especially called alfalfa by Shaklee has been a miracle worker for me. I have had one 2 day flare in all these months. It helps with inflammation so I take about 15 tablets a day. It’s very inexpensive so don’t let that deter you. I had to play around a little bit with the dosage. They say try 10 a day but they are all natural and cant hurt you so everyone on them has their own dose. It’s such a natural and inexpensive way to treat your inflammation. I hope this helps!

Theraworx for Muscle Cramps: I have found this to relax the muscles. It is a magnesium base. Available at Walgreen, Walmart, or Amazon. They also make one for Nerve Pain. I can feel the muscles relax after applying it.

I go through periods where I can’t stand feeling my clothes or water on my skin; like a fire burning me or just mere touching me hurts.
Then I go through times where I feel like I’ve got a bad case of flu 😷 this usually lasts from 3 days to two weeks.
I started doing more standing YOGA moves and that seems to really help to alleviate my pain!
Listening to calming music and especially classical music. Find your favorite. One I like is MOZART.
Gentle hugs, Maddie

Thanks for the yoga and music ideas. I do some pt and will start with
another therapist next week.

@mrstigger49 Welcome to Mayo Clinic Connect! I’m glad you found the site AND you had some helpful info to pass on. Thank you!

Thank you, Becky.

Try to find my positive ~ it helps my pain level lower.
I also have ADHD which causes anxiety so music calms my soul and soothes my skin & inward…😊

I’ve started the spoon method as per my PCP. I had to change it to a number system as that works better for me but it’s absolutely helping me manage my pain and fatigue.