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Anyone been prescribed Ohtuvayre (new med)? Your experience?
Has anyone been prescribed the new COPD medication by their treatment team....Ohtuvayre? Just wondering if it now active, how it is effecting patients and how well it does/doesn't work
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I think not, but perhaps I am wrong. I tried Theophylline many years ago and was required to take many blood tests during the course.
Do you feel that the Ohtuvayre has been beneficial to you?
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Hug
1 ReactionYes,Somewhat,I have only been taking it for a couple months & still skeptical but…
I remember you made this same comment several months ago. It seems that this "new" medication has not set the world on fire nor done much to help with COPD. This is basseed on the comments that I have been reading.
It can be a tremendous help to the right patients. Because it’s nebulized, you don’t need the blood tests you had to have when taking oral theopholine. One can only know whether it may help them by discussing with their MD and trying it.
I'm trying to take this drug but the 'bridge' package I have from Verona seems to have a problem. I shake the vial but it doesn't turn yellow and has white clumps in it. I contacted them 3 weeks ago and have yet to get an answer. Is it safe to take it like this? I don't know so I'm not taking it. It's very expensive and it's discouraging to read that folks don't seem to do well at all on it.
I tried this for a month, very hopeful. Worked good first day then went down hill after 2 weeks saw no improvement at all, got a UTI which is a side effect & also had suicidal thoughts another side effect, very disappointed. It was so expensive $600.00 for a month.
I was concerned that there was just alot of hype! I've really come across very few people that have reaped any benefit at all. Don't know exactly why the PDE drugs seem to cause psychological side effects........very unpleasant!
I am so far, after 6 months, very happy with Ohtuvayre.
It has given me more stamina, much improvement with SOB with zero side effects. Fingers crossed it continues.
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1 ReactionThank you for your feedback1 How long did it take before you realized benefit from it? The Enhance studies do mention data results at the 12 and 24 week interval......Not a lot of post-market information, as it is too new. Have read that it is not a new drug just nebulized theophyline.....these were NIH articles and research papers. I suppose I was expecting a more rapid response. Will give thought as to restarting it. Appreciate your input.