Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

@lindy9

I understand. I am 76. I started having irregular heartbeat and traced to caffeine. I quit the caffeine, but lately having heartbeat issues lasting a couple of minutes, but today had one lasting longer. Am discouraged. Always considered myself a health nut. Eat better than anyone I know but not perfect. I believe it is after effects of covid I had. Not looking for advice. I do not run to the doctor for anything. Just venting my frustration.

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Thanks for sharing. I too, seek homeopathic resolutions for health issues. I have begun a new dietary regime adding olive oil, nuts, etc. No more coffee. No refined sugar or desserts. Meditation daily with calm APP. Actually triggers Garmin watch when heart rate drops to 40bpm. I have been a no fats diet for a long time. So this is new. Interesting after 3 weeks my weight has dropped 4 lbs and remains almost a flat line on the graph (it typically looks like a mountain range...so that encourages me)
I don't want "there's a pill for that" lifestyle which is the Doctor's response to everything, nowadays.

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@dalebout123

Welcome! I've been learning a lot from this group. I am turning 81 in January and have lived a similar active life. I let my three mile a day habit lapse when I moved to a desert house in southern Utah. I thought the five or six mile hikes were a good replacement. Then I stopped the hikes -- too hot, too early, etc. I thought my weekly pilates, yoga, and aerial yoga was enough. I developed all your same health concerns. I had a bunch of tests on a bunch of machines. Then meds prescribed and taken. I was still lethargic and fuzzy headed. I am now feeling better because we acquired an Aussiedoodle puppy -- a wild woman dog who requires a two to three mile walk on the desert every morning. I think I have found my cure...back to that daily workout to start the day. That probably isn't your answer, but thought you should know you aren't alone in the frustration of living actively, eating healthily and not getting rewarded as well as you should be. But, then again, I look at other 80 year olds and count my blessings.

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Thank you. I continue with my running and weight lifting. Dietary adjustments (90 day experiment) including healthy fats and denying myself caffiene and sweets, desserts are my downfall. 3 weeks in and feeling in control with diet (Chrstmas was rough, but stayed the course)
A couple Garmin watch alerts that my heart rate was too low..40 and trying the exercise to reset heart when I get the irregular heartbeat.
Thanks for sharing

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@gloaming

Dana, the sleep apnea, if it is present, has done its damage......sorry. Once your heart finds those extra electrical pathways and gets current going into your left atrium (if we're talking about atrial fibrillation, not necessarily the other arrythmias, of which there are 15), it begins a progressive path towards establishing others over time. You may control your AF effectively with drugs and some lifestyle modification, perhaps for several decades, but the aging body and heart have started even a slow progression toward permanent AF. For me, the idea was to stave off the events of AF until after I die, meaning I wanted to try catheter ablation. It didn't work for me the first time (there's a 25% failure rate of first, or what are called 'index', ablations across the medical practice of cardiology), but the second ablation, same electrophysiologist, worked, and I have been free from arrhythmia for coming up to two years now. The research shows that almost all patients, whether on drugs, self-imposed regimen, or catheter ablation, will eventually succumb to AF yet again. Might be months, might be a decade or more, but the aging heart wants to keep growing the extra node cells in places other than where the SA node is, in the rear roof of the right atrium.

A long way of saying that, while my sleep apnea is very nicely controlled, thanks very much, I still have the disordered heart it made for me. If a surgeon could somehow reverse all the ablation, my heart would immediately begin to fibrillate because the ablation only 'dams' the signal, it doesn't stop those extra electrical cells from issuing their electric current that leaks out into the atrial endothelium. To be more precise, ablation might, and must, kill a lot of those extra cells, but unless the burning goes deep into the cardiac substrate to get all of them scattered here and there, they still exist. And, as I said, the heart now grows more.

So, you'll want to control the apnea if it turns out you have it, and that is a journey all by itself with a new CPAP machine or variants that control different types of apnea. You can get information here, or at apneaboard.com, a forum that I have been on for years now. Great information there if you visit and/or join. But the arrhythmia is another doctor, more visits, more monitoring, more diagnostics, and getting used to more treatment. My own cardiologist wanted a lot of tests for ischemia, meaning low oxygen, to the heart, and I had scads of radiative imaging. I was clean, no ischemia, and all that was left to figure out the puzzle of my AF was the polysomnography. Bingo!

AFTER all that danged radiation. 🙁

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Yay! Someone liked my comment and I am now back on the site.
I bet you were relieved to get a diagnosis, dear gloaming, even if it was not so good news. That way you were able to address the problem. It is better to know than feel like everyone is just guessing what it might be. I look forward to the feedback from my apnea test. It is frustrating to have continuous feedback that everything is fine when I continue to feel like I feel. And I do not even look ill.

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My sister and I both have sleep apnea. She wore one of those snorkel gizmos as I call them for years and hated them. She discovered if she sleeps in recliner, she has no problem. She told me this after my husband passed away and I had no one to nudge me when my heart was stopping. I ended up using pillows to prop me up some and now have no problem. I used to wake up often and sat up real fast to get my heart going again. It has happened only one time in 5 years and that was when I tried to scootch a little more flat. I never went for those tests etc. But knew I had it for years.

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I had a heart attack with stent insertion on 9-23-24; I am attending cardiac rehab which I will complete on 1-20-25; I have developed premature atria tachycardia and just picked up an an event monitor today; will be see cardiac physiologist on 1-13-25 for the second visit; he is suggesting sotalol; I’m 85% decided to give it a try but don’t want to be chasing medication and wonder the harm in living with the irregularity. I am an otherwise active, healthy, 81 year old with no other frailities.

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@jansecc

I had a heart attack with stent insertion on 9-23-24; I am attending cardiac rehab which I will complete on 1-20-25; I have developed premature atria tachycardia and just picked up an an event monitor today; will be see cardiac physiologist on 1-13-25 for the second visit; he is suggesting sotalol; I’m 85% decided to give it a try but don’t want to be chasing medication and wonder the harm in living with the irregularity. I am an otherwise active, healthy, 81 year old with no other frailities.

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I think you mean PACs or 'premature atrial complexes', some call it premature atrial contractions. They are benign unless they adversely affect your mood and sense of well-being, and unless their 'burden' rises past about 100 events, or beats, in a 24 hour period. Atrial fibrillation's burden is excessive at 3%.

If what you meant is SVT, or supra-ventricular tachycardia, that's a whole nuther ball of wax, and it usually does take an ablation to get rid of it. Otherwise, it would involve rate control, meaning metoprolol, bisoprolol, diltiazem, or whatever your cardiologist prescribes. This does little to stop the SVT, but it should help to keep the rate down if your HR is high during SVT.

Provided the runs of either arrhythmia are short, and don't happen more than about once a day, they are, as I said, benign for the most part. They are unsettling, though, and they may indicate advanced cardiomyopathy or oncoming electrical disorder that will need more attention.

Please listen to your expert health care provider. They know more about you, and what else about you might mean another protocol entirely.

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@gloaming

I think you mean PACs or 'premature atrial complexes', some call it premature atrial contractions. They are benign unless they adversely affect your mood and sense of well-being, and unless their 'burden' rises past about 100 events, or beats, in a 24 hour period. Atrial fibrillation's burden is excessive at 3%.

If what you meant is SVT, or supra-ventricular tachycardia, that's a whole nuther ball of wax, and it usually does take an ablation to get rid of it. Otherwise, it would involve rate control, meaning metoprolol, bisoprolol, diltiazem, or whatever your cardiologist prescribes. This does little to stop the SVT, but it should help to keep the rate down if your HR is high during SVT.

Provided the runs of either arrhythmia are short, and don't happen more than about once a day, they are, as I said, benign for the most part. They are unsettling, though, and they may indicate advanced cardiomyopathy or oncoming electrical disorder that will need more attention.

Please listen to your expert health care provider. They know more about you, and what else about you might mean another protocol entirely.

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Thank you for that info I go to physiologist for divisor on 1-13 presently wearing a 3-day halter monitor really don’t feel anything until
Using the treadmill and/or walking the dog…slowly he is proposing sotalol I am already taking metoprolol

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@jansecc

Thank you for that info I go to physiologist for divisor on 1-13 presently wearing a 3-day halter monitor really don’t feel anything until
Using the treadmill and/or walking the dog…slowly he is proposing sotalol I am already taking metoprolol

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1-13 appointment is 2nd visit…he better not rush me out again!

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@jansecc

Thank you for that info I go to physiologist for divisor on 1-13 presently wearing a 3-day halter monitor really don’t feel anything until
Using the treadmill and/or walking the dog…slowly he is proposing sotalol I am already taking metoprolol

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You are going to meet with an 'electrophysiologist'. A heart electrician. That's good. They tend to be very busy, and they don't hold ANYONE'S hand during their consultations. It's all business. However, it's worth putting up with their brusqueness and short talk if they are really good and highly regarded locally for their success at breaking arrhythmias. I hope your Holter is going to show at least 'something', and that he'll be more disposed to answering some questions.

Good luck.

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@jansecc

1-13 appointment is 2nd visit…he better not rush me out again!

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Thanks for encouragement!

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