Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

@oregongirl

I know as my legs can only take so much. My kids are on me constantly about walking. They brag about my DIL's mother and how she walks miles everyday. It is horrible to be compared to a women who does not have RA and Fibro We don't bleed so we are not ill? Its so hard to get people to understand that you are not faking an illness. I stopped taking my son to my appts. He interfers with my conversation with the doctor.

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I have pain and itching on the scalp and itching on the face face which was diagnosed as seborhhic dermatitis. The lotion and shampoo given by the dermatologist do not help. Also hair loss. which is made worse by scratching when it itches. I am wondering if there are other scalp 'diseases' I am not aware of that could get treatment. I am losing a lot of hair and do not know the cause, unless it is my Eliquis (blood thinner) or Diltiazim (lowers BP). It is not listed on the side effects, probably because the makers of the drug(s) don't want people scared off.I

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Well, hello again fibro folks. This old plug is still plugging on-here lately only barely. Things on the home front are overwhelming right now. As long as I keep my bills paid.

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@parus

Well, hello again fibro folks. This old plug is still plugging on-here lately only barely. Things on the home front are overwhelming right now. As long as I keep my bills paid.

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I relieved myself of my car ,no more payments,insurance or gas so that stress is gone and I do feel much better .Stress causes pain and mine is a little less now

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@parus

Well, hello again fibro folks. This old plug is still plugging on-here lately only barely. Things on the home front are overwhelming right now. As long as I keep my bills paid.

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Thanks Its a great feeling

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Tried tiger balm, heat, PT, steroid injections but much has helped. Bulging discs in my neck, lumbar & siatica. Fibro certainly doesny help & rainy days. I love Tiger Balm but it didnr seem to help tremendously. One of my doctors prescribed a compounded cream with lidocaine, guaifenesin, ketoprofena md magnesium. Dont know what all those ingriedients are but its worked better than the balm and Arnicare. Will admit - doesn't feel great on the skin - hard to describe but its rather like your skin is stiff. hope this helps.

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@missme

Tried tiger balm, heat, PT, steroid injections but much has helped. Bulging discs in my neck, lumbar & siatica. Fibro certainly doesny help & rainy days. I love Tiger Balm but it didnr seem to help tremendously. One of my doctors prescribed a compounded cream with lidocaine, guaifenesin, ketoprofena md magnesium. Dont know what all those ingriedients are but its worked better than the balm and Arnicare. Will admit - doesn't feel great on the skin - hard to describe but its rather like your skin is stiff. hope this helps.

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I've used Lidocane before but never with all those ingredients Is it a script?

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Yes. The doctor wrote it out - it was mixed atbthe pharmacy.

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I also use a compounded topical with similar if not the same ingredients. Does o.k. takes the edge off the hand pain.

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@missme

Yes. The doctor wrote it out - it was mixed atbthe pharmacy.

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O.k. Kit was a compound pharmacy ,now I understand thanks

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I am at that point where nothing helps and have given up on doctors and myself.

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