fibromyalgia pain

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the ‘tender spot test’ several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I’m alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I’ve tried them all, I think), or anything, besides hobbies and such? I’ve tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn’t help, but I’m hoping one of our members might have some knowledge that could help. I’d really appreciate it.
hugz,
Clownscrytoo

I have found large daily doses of Tumeric to be very, very helpful in reducing the inflammation. I understand ginger also helps. But so far, the tumeric is perfect for me. Read about it and see what you think. Allow a few days for it to start its effectiveness. Good luck.

REPLY
@clownscrytoo

@2122
I’m very intrigued by this. I have never heard of night shade family foods. I will look for it online for sure. thank you and I hope you have a great day!
Clownscrytoo 🙂

Jump to this post

tomatoes and peppers. I tried staying of them which is difficult if you love Italian food which is ll tomato based. It didn't make any difference for me neither did staying off dairy

REPLY
@mxdebbie

I have found large daily doses of Tumeric to be very, very helpful in reducing the inflammation. I understand ginger also helps. But so far, the tumeric is perfect for me. Read about it and see what you think. Allow a few days for it to start its effectiveness. Good luck.

Jump to this post

Hi
My name is Sue, living in illinois.
Think about going to pain clinic that can deal with your issues in a well rounded way. I have over seven spinal compression fractures, a pelvic fracture, need two knee replacements on top of both shoulders muscles tearing off. Currently 57 and wheelchair bound.
I take multiple medications including muscle relaxers and lidocaine patches over bad areas.
The pain clinic I use encourages diet, exercise, regular and water therapy. They use medications and blocks when appropriate. I like coming up with an individual plan to manage pain and depression and the “bad” days.
I do believe supplements can be very helpful too. My vitamin d was low and corrected but didn’t help pain. Turmeric was too hard on my stomach. Currently trying cbd with ash Wanda shows promise along with amino acids for shoulders.
Dealing with chronic pain is very difficult. The moments you get relief make you feel like normal is possible again. Keep working on your personal plan to be able to achieve your personal best.

REPLY
@mxdebbie

I have found large daily doses of Tumeric to be very, very helpful in reducing the inflammation. I understand ginger also helps. But so far, the tumeric is perfect for me. Read about it and see what you think. Allow a few days for it to start its effectiveness. Good luck.

Jump to this post

Can you tell us what “large doses of turmeric” means? Are you taking it in spice form or in pill form and how much? I tried the tea for a few days and it appeared to help but I thought it was just my wishful thinking. I’d love to know what dose you take.

REPLY
@whattodo

Can you tell us what “large doses of turmeric” means? Are you taking it in spice form or in pill form and how much? I tried the tea for a few days and it appeared to help but I thought it was just my wishful thinking. I’d love to know what dose you take.

Jump to this post

Please check with your doctor before taking tumeric as it's a blood thinner.

REPLY

I too, suffer from chronic pain.. Wish the opiods were still available. I use to take like 1 tablet once a week just slow down the pain and then be able to suffer with the pain the rest of the week. I am now using a walker to get around. Thanks for listening.

Liked by bustrbrwn22

REPLY
@torpedo

I too, suffer from chronic pain.. Wish the opiods were still available. I use to take like 1 tablet once a week just slow down the pain and then be able to suffer with the pain the rest of the week. I am now using a walker to get around. Thanks for listening.

Jump to this post

Not sure where you live, I am not getting morphine as of about a month ago. I took 30-45mg a day for chronic pain, now taking 100mg, 3 times a day of Tramadol, along with muscle relaxers, etc, etc. Along with fibro, back problems, arthritis, bad knees and left shoulder i have nerve damage in my lower right abdomen and pelvis which shoots between my legs.
I would think you could get pain relief in some medication still. It really sucks that pharmaceutical companies, Dr's and some people took advantage of opioids to screw it up for the rest of us.

Liked by metalneck

REPLY
@anniebrook

Hiclownscrytoo. My name is Anne,I'm English now a Canadian citizen living in BC. I am going to be 67 on your Thanksgiving and have had Fibro since I was 29yrs old. Mine came on within a few hrs of giving birth to my 4th and final child the onset was that fast. I do wonder if for me it's hereditary and my grandma and my mum suffered with Chronic pain too.I have been suffering since my mid 50's with Osteoarthritis too throughout my body. I worked as a Psych nurse till I was 58yrs old then the muscle spasms from the arthrits in my spine made it so I couldn't get through 12hr shifts and certainly not with unpredictable patients that any Psych unit has to deal with.I also had had joint replacement in both thumbs which my dominant hand didn't go so well so drawing up and giving injections became impossible. I start my day struggling to get out of bed due to the stiffness everywhere. It does take me a while to get going as I am usually quite dizzy for quiet a few minutes. I find throughout the day I subconsciously have to think about every movement from bending while I clean the house to just reaching into cupboards to get things down. Every night when I go to bed I have a mantra " will get up and move more/exercise more/stretch' but morning comes and I just keep putting it off and I know my muscles are losing strength because my knees suffer getting in my husbands truck or getting up out of a chair . Now I'm retired it's so easy to sit and just watch TV. I used to go to the gym when I was younger and it did help to keep me stronger but now I can't grip weights due to the arthritis in my hands and I feel stupid when I see 80 odd yr olds doing their routine. As I write this I think I sound so pathetic because I have nursed people like us who came to the unit with severe depression and I should be practicing what I preached to them. SO, I am going to get out and walk more ,I am going to get out and walk more,I am going to get out and walk more. I am going to tell myself and you what I told my patients 'Exercise is the best thing for pain' stay safe clownscrytoo.X

Jump to this post

@anniebrook It sounds like daily tasks are difficult. Just because you are educated about depression etc, does not mean that you are immune to it. Everyone needs help to put changes in motion, just as you helped people in the past. You said that you were going to get out and walk more. I'm wondering if you have considered making a small goal each day? An example of this is the goal of walking 5 minutes per day. Is this an obtainable goal?

REPLY
@wishingtobepain

Not sure where you live, I am not getting morphine as of about a month ago. I took 30-45mg a day for chronic pain, now taking 100mg, 3 times a day of Tramadol, along with muscle relaxers, etc, etc. Along with fibro, back problems, arthritis, bad knees and left shoulder i have nerve damage in my lower right abdomen and pelvis which shoots between my legs.
I would think you could get pain relief in some medication still. It really sucks that pharmaceutical companies, Dr's and some people took advantage of opioids to screw it up for the rest of us.

Jump to this post

I agree that others have taken advantage of the pain relievers. I use to take just 1 pill a week to help me out but now there is none. I feel for your pain

REPLY

I hear you… my pain management counselor suggested getting a heated throw. I bought this one from Amazon. Beautyrest Plush Electric Throw Blanket – Secure Comfort Technology-Oversized 60" x 70"-Ogee Pattern in White-Cozy Soft Microlight-3-Setting Heat Controller, 60×70. It is so silky soft and very light weight. On my 'hurts everywhere even my false teeth' days, I take to the recliner and spread this over me. The warmth is soothing and doesn't require constant moving like a heating pad. Bought it as a birthday gift to myself. Maybe an early Christmas present?

Liked by lioness

REPLY
@torpedo

I agree that others have taken advantage of the pain relievers. I use to take just 1 pill a week to help me out but now there is none. I feel for your pain

Jump to this post

@torpedo Welcome to Mayo Connect. You are with a great group of people who understand the struggles of everyday living with chronic pain of all kinds.

Like you, I deal with fibromyalgia pain almost daily. Some days it is hard to differentiate between that and other side health issues! Our cat seems to know when I need her little hotbrick of a body next to me, and will curl up to offer me comfort in her own way. I also take 30 mg CBD daily to blur the edge of discomfort.

What medication did you used to take, that you no longer do? What is your go-to way to handle the pain on a daily basis now?
Ginger

REPLY
@mhugs

I hear you… my pain management counselor suggested getting a heated throw. I bought this one from Amazon. Beautyrest Plush Electric Throw Blanket – Secure Comfort Technology-Oversized 60" x 70"-Ogee Pattern in White-Cozy Soft Microlight-3-Setting Heat Controller, 60×70. It is so silky soft and very light weight. On my 'hurts everywhere even my false teeth' days, I take to the recliner and spread this over me. The warmth is soothing and doesn't require constant moving like a heating pad. Bought it as a birthday gift to myself. Maybe an early Christmas present?

Jump to this post

@mhugs that throw sounds lovely . I too have fibromyalgia long time sufferer . I use ice first to calm the inflammation then heat . I may have to look into this on Amazon . A hot shower also helps immensely

REPLY
@wishingtobepain

Not sure where you live, I am not getting morphine as of about a month ago. I took 30-45mg a day for chronic pain, now taking 100mg, 3 times a day of Tramadol, along with muscle relaxers, etc, etc. Along with fibro, back problems, arthritis, bad knees and left shoulder i have nerve damage in my lower right abdomen and pelvis which shoots between my legs.
I would think you could get pain relief in some medication still. It really sucks that pharmaceutical companies, Dr's and some people took advantage of opioids to screw it up for the rest of us.

Jump to this post

@torpedo I want to add my welcome ,late, not on this often ., I have about the same pain as most people have but in different areas We are all pain warriors and because the powers to be cut our meds to us who really need them we have to find alternative things like Ice is a great way to get rid of edema in the tissues and is also a anti inflammatory fighter like Turmeric is I use Golden tea 2 times a day , Heat is wonderful as it being the healing to that area whether by heating pad or a hot shower . Just some tips . Find what works for you and gives you comfort . CBD during day also

Liked by lorirenee1

REPLY
@lioness

@torpedo I want to add my welcome ,late, not on this often ., I have about the same pain as most people have but in different areas We are all pain warriors and because the powers to be cut our meds to us who really need them we have to find alternative things like Ice is a great way to get rid of edema in the tissues and is also a anti inflammatory fighter like Turmeric is I use Golden tea 2 times a day , Heat is wonderful as it being the healing to that area whether by heating pad or a hot shower . Just some tips . Find what works for you and gives you comfort . CBD during day also

Jump to this post

Erica just added me into this discussion! I have suffered from FBS or Lyme the last two and ahalf years. A doctor in North Carolia recomended I may do research on FBS!
As for the pain, My first episode two and a half years ago was a server Headache and Neckache! Went down hill from there! As someone said there are days when I can barely get off the couch!
FAtigue, muscele ach, dizzeyness, brain fog, balance, and so on.
I have problems with my right hip. My doctor gave me a script for Oxycodone some time before, in between my steroid shots every 90 days.
Happen to have some pain towards the end of the 90 days two years ago! I took two Oxycodones one day and then the next. All of a sudden my headaches went away. My PCP is neat! He said it was ok if it helped me! So I have taken two and a half for the last two years and it helped!
I get tired of people saying you're going to be a Drug Addict! The state, the pharmacy, and my doctor watch me very close! I can't refill my percription more than three days out when it is do!
Let me know if anyone has any recomendations on readings for FBS.
Thanks,
Sundance (RB)

Liked by grandmaR

REPLY
@sundance6

Erica just added me into this discussion! I have suffered from FBS or Lyme the last two and ahalf years. A doctor in North Carolia recomended I may do research on FBS!
As for the pain, My first episode two and a half years ago was a server Headache and Neckache! Went down hill from there! As someone said there are days when I can barely get off the couch!
FAtigue, muscele ach, dizzeyness, brain fog, balance, and so on.
I have problems with my right hip. My doctor gave me a script for Oxycodone some time before, in between my steroid shots every 90 days.
Happen to have some pain towards the end of the 90 days two years ago! I took two Oxycodones one day and then the next. All of a sudden my headaches went away. My PCP is neat! He said it was ok if it helped me! So I have taken two and a half for the last two years and it helped!
I get tired of people saying you're going to be a Drug Addict! The state, the pharmacy, and my doctor watch me very close! I can't refill my percription more than three days out when it is do!
Let me know if anyone has any recomendations on readings for FBS.
Thanks,
Sundance (RB)

Jump to this post

Hello Sundance,
I read your post and I've been trying to decide how to answer it. I am concerned on a few levels about your FBS journey.
I certainly am NOT a doctor or involved in the medical field.
What I am, is a person who has lived with FBS for DECADES.
I know there are things you do not want to hear any more, but it would be remiss of me if I did not put in my two cents.
Please take what I say as a person who is concerned for you and who has had personal experiences similar to yours.

As I mentioned above, I have lived with FBS for decades.
First, let me say that Oxycodone is a VERY addictive drug both physically and mentally.
Even after 2 spinal surgeries, my surgeon was VERY cautious about prescribing the drug and frankly I was concerned about taking too much for too long.
Just because your doctor prescribes something does not mean it is the correct.
All you need to do is turn on the TV to see how many people innocently started taking the drug and wound up overdosing or becoming dependent on it.
What happens if you try to not take it?
Have you had to increase your dosage over time as the effectiveness changes?
These are signs to be concerned about.

I am happy to know that your doctors have been waiting at least 90 days for your steroidal shots.
I have been to several pain management doctors and they ALL agree that we shouldn't get more than 3 to 4 shots a YEAR.
However, they do prefer 3.
Too many of these shots can have an impact on the strength of your bones.
I hope your doctor has taken xrays and/or MRIs to determine the exact area(s) that need the injection(s).
I also hope the shots are working.
I did find, for ME, that the shots did not work for more than a day to 1 week.
At that point, my doc and I decided it was not worth the possible adverse impact on my body for such a short return.

So here is what DID work for me…
Sadly, I did not have the luxury of staying in bed when I had a bad flare up.
I had a hubby and 2 children to raise and I was also a full time college student.
My plan had several components that helped….
1. Exercise-when I began to exercise, it was just walking. Everyday, I would walk. At the beginning, my hubby would literally have to drag me. I had so much pain and fatigue, I couldn't get my body to work. Eventually, I was able to not only do it on my own, but I was able to add other kinds of exercise, including strength building, to my workouts.
2. Weight control… I needed to lose weight to take the pressure off my body. For me, at that time, it was joining Weight Watchers. It was VERY slow, but it helped.
3. Aquatic Physical Therapy… Land therapy was too hard on my joints so I found a great place for aquatic therapy. Not only did the warm water feel good on my body, but it made exercising and stretching much easier.
4. Chiropractor… I saw a chiropractor 1 to 2 times a month (at the beginning).
5. Theraputic Massage…. This was a life-saver. I went every other week for quite a while, then every 3rd week. I still do this. I just have to remind the person doing the massage that I have FBS so that they don't inflame me.
6. Meds… This probably showed the quickest improvement. I was given a low dose anti=depressant (not an anti-depressant dosage) to help get me into a deep sleep. Deep sleep is so important. It is the time our body heals. People with FBS do not get into deep sleep. It is not only the reason we have pain, but it is one of the reasons we are always tired. We are missing that restorative sleep. Within a week of taking this medication, I could see the difference in my pain level and energy level.

As I said, this is MY journey that took me over a decade to implement. It took taking the information and suggestions of several doctors, putting it together to see what works for me.
Good luck to you!!

REPLY
Please login or register to post a reply.