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Fibromyalgia pain: Let's connect
Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo
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@oregongirl
I'm happy to hear that you will be seeing a pain doctor. I hope you find some relief soon.
Gail B
Volunteer Mentor
Mine are 4 days minimum and on the 5th day, it still affects my legs
All I can say is I hope others have better experiences in getting help than I have. I know I am not assertive enough. I live in an area that is archaic in many ways. Moving again is not an option as I do not have another move left in me and where would I go? Anyone with a mental health history is labeled and their pain is not real...esp. Fibromyalgia. Doomed and damned by ignorance.
@lioness Maybe for some. My pain specialist told me to get out and walk to deal with my pain.
@schnauzerkid I do not have a history of drug abuse and being treated like a criminal is discriminating. As always been this way as those abusing set the standards for the masses. Discouraged.
@oregongirl, are you asking about the Just Want to Talk group? Here is the link to that group, https://connect.mayoclinic.org/group/other/.
That's what it is Ignorant people they don't have the pain or flare ups so they don't think the fibro exist you know I know everyone here I owe so don't listen to others,just take care of yourself let your rheumatologist help you and pain Dr.
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1 ReactionParus...I am so sorry you are facing such obstacles. It is enough to be filled with pain and add to that daily issues. Why do you have to move? What Sate do you live in? Can you call your church for help? What about the County. O get on your knees and talk to the Lord
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1 ReactionWell tho I agree with the walking, I can't do it I hear that all the time. My legs have gotten so bad and I don't want to end up in a wheel chair. I just don't understand why it is so difficult for people to understand your pain. I know there is a difference between RA and Fibro,but we seem to have he same feedback from people. The next time someone offers advice to me, I will ask "have you ever had RA? or Fibro" If they have not or don't at this time, take your talk somewhere else.
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2 ReactionsNo Discouraged like everyone else here. We are the little people.