Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

@parus

Anyone else being accused of faking pain that has no history of such prior to fibro. Any trips to a doctor I do alone lest some else's good intentions hinder the visit. Every thing is blamed on depression.

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Oregongirl Paris The FDA just o.k a new pain drug Its Apadaz ,contains Tyelonol @hydrocodone They o.k.it on 2-23,2018 man be you can ask Dr about it?

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@parus

Anyone else being accused of faking pain that has no history of such prior to fibro. Any trips to a doctor I do alone lest some else's good intentions hinder the visit. Every thing is blamed on depression.

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You,ve got a good husband,read about new drug for pain I posted

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@oregongirl

I would love to come to Mayo. However I am seeing my doctors at the University of Texas. I am sure they are the best. They know how I feel. Please let me know if you received my other two emails. My finger must be working against me today. I either deleted my message to you or it send partial answer.

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You are so right I've had it 30 years and they still have no idea why or how to treat it read my post about a new drug for pain

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@oregongirl

I would love to come to Mayo. However I am seeing my doctors at the University of Texas. I am sure they are the best. They know how I feel. Please let me know if you received my other two emails. My finger must be working against me today. I either deleted my message to you or it send partial answer.

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Victorious, you have the right attitude I started writing my post to you and the part I already have written disappeared. So, you might get part of this in another response. I sold a 3 bedroom 2 bath home with garage and sun room. FILLED with every possible thing anyone would want. I could not do this alone. My kids lived far far away. I called the church and said, come and get it and give it to people who need it. If you can sell anything, please send the money to South Africa to the Christian children who are under terrible persecution. I had a 6 month old very expensive bed. Leather couches etc. You have to understand I really did not want anything anymore I started thinking about my kids having to take time off from their jobs to move everything out and maybe goodwill. They sure don't want it. I have acute RA and live alone. I even gave the church all my artifacs from Israel and from WWII. I did put aside the things, I wanted to keep. Mostly because my husband had bought it for me. It took days. The cars were lined up all the way up our driveway. The garage was a picnic for men. When done, I had two suitcases and moved to Texas. Oh things come to mind, but for a moment. We cannot take it with us. If you can do it, do it. It is called purging. As for your house, cut the price to a quick sale and get on with life. Please let me know how it turns out. We must have our hearts on Jesus not on things.... OregonGirl

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@oregongirl

I would love to come to Mayo. However I am seeing my doctors at the University of Texas. I am sure they are the best. They know how I feel. Please let me know if you received my other two emails. My finger must be working against me today. I either deleted my message to you or it send partial answer.

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If you really need help on what to do with IT ALL, call a moving company. Have them give you a bid. Don't say anything to them about your possible plan. You will find that you are going to pay a great deal of money to just BUY YOUR THINGS BACK. I saved 6,000 and I feel really really good. Also, the Independent living does not have enough room for all you own.

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@parus

All I can say is I hope others have better experiences in getting help than I have. I know I am not assertive enough. I live in an area that is archaic in many ways. Moving again is not an option as I do not have another move left in me and where would I go? Anyone with a mental health history is labeled and their pain is not real...esp. Fibromyalgia. Doomed and damned by ignorance.

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Parus, STOP that thinking. You have another life to life. Just think of the people you will meet when you move. Life is not over yet. Move to a place where you can get the medical you need. If you go through Oregon, grab me some Marijuana. LOL

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@parus

All I can say is I hope others have better experiences in getting help than I have. I know I am not assertive enough. I live in an area that is archaic in many ways. Moving again is not an option as I do not have another move left in me and where would I go? Anyone with a mental health history is labeled and their pain is not real...esp. Fibromyalgia. Doomed and damned by ignorance.

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Even on here you will meet people who do not have our disease f Fibro or RA. So, remember they do not understand us.

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@parus

Anyone else being accused of faking pain that has no history of such prior to fibro. Any trips to a doctor I do alone lest some else's good intentions hinder the visit. Every thing is blamed on depression.

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Thankyou

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@oregongirl

I would love to come to Mayo. However I am seeing my doctors at the University of Texas. I am sure they are the best. They know how I feel. Please let me know if you received my other two emails. My finger must be working against me today. I either deleted my message to you or it send partial answer.

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I see it. Why am I afraid to ask about it. Last time I asked about pain meds I saw her tighten up and I know she was upset. Things seem to take a left turn

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@oregongirl

I would love to come to Mayo. However I am seeing my doctors at the University of Texas. I am sure they are the best. They know how I feel. Please let me know if you received my other two emails. My finger must be working against me today. I either deleted my message to you or it send partial answer.

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Great advice.

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