1. < Transplants

Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

Mentor
Rosemary, Volunteer Mentor | @rosemarya | 20 hours ago
In reply to @vandi "Hi! My brother is diagnosed with stage 4 liver cirrhosis & doesn’t look well. Been sleeping..." + (show)
@vandi

Hi!
My brother is diagnosed with stage 4 liver cirrhosis & doesn’t look well. Been sleeping all day. I am really concerned & will
appreciate if you could help me with a reference of a good doctor to connect with at the Mayo Clinic . I am lost 😞

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Hi, @vandi.
I am a patient, and was referred to Mayo Clinic by my local transplant team after I had complications that needed specialists at Mayo. However, a patient can contact Mayo Clinic directly to inquire about an appointment as @mkjogan has replied. Or - the patient's doctor can make a referral.

Here is the contact information for the liver transplant department at Mayo. (Arizona, Florida, Minnesota) Mayo Clinic transplant staff can answer your questions.
https://www.mayoclinic.org/departments-centers/liver-transplant/home/orc-20211818
.
@vandi, Is your brother currently under the care of a liver specialist? Have you spoken with him about referral to either Mayo or a regional transplant center near you?

REPLY
susanrmnp | @susanrmnp | 18 hours ago
In reply to @gammie8 "Hi Rosemary, my husband is seeing the transplant team as an outpatient at this time. He..." + (show)
@gammie8

Hi Rosemary, my husband is seeing the transplant team as an outpatient at this time. He does all his bloodwork locally but we travel to Houston Medical Center every 2 to 3 weeks. Yes the process is very grueling! At times we don't know if we are coming or going. Ha! But with all that we have been through from what I have read and heard if he can get relief with a new liver, it will be so worth it. My husband is 74 years old and most people are younger that have transplants. His health is getting worse because of the swelling and all the doctors tell us is that he will be better after transplant. I am so hoping so!!

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@gammie8, I hope you and your husband are doing well and that you have had some good news regarding transplant. I had my transplant this year, at 73. I was diagnosed with PBC in 2016, and worked full time up until last year. For the past year or so prior to transplant, I was quite tired every day, it felt like I was dragging a giant weight around. My boss who is a wonderful person allowed me to work at home when I needed to. The hepatologist I was seeing referred me to Mayo because her health system will not transplant after age 69 (which she doesn't agree with, but ...). This turned out so well for us! Though we had to travel to Phoenix (and still do, for checkups), it was worth it. I love my Mayo team, they are such a caring and highly skilled team, and I owe my life to them. I wish for the best for both of you!

REPLY
1 reply
my44 | @my44 | 10 hours ago
In reply to @susanrmnp "@gammie8, I hope you and your husband are doing well and that you have had some..." + (show)
@susanrmnp

@gammie8, I hope you and your husband are doing well and that you have had some good news regarding transplant. I had my transplant this year, at 73. I was diagnosed with PBC in 2016, and worked full time up until last year. For the past year or so prior to transplant, I was quite tired every day, it felt like I was dragging a giant weight around. My boss who is a wonderful person allowed me to work at home when I needed to. The hepatologist I was seeing referred me to Mayo because her health system will not transplant after age 69 (which she doesn't agree with, but ...). This turned out so well for us! Though we had to travel to Phoenix (and still do, for checkups), it was worth it. I love my Mayo team, they are such a caring and highly skilled team, and I owe my life to them. I wish for the best for both of you!

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Hi, @susanrmnp. Congratulations on getting your transplant this year! I'm so glad that you were referred to Mayo and was able to get past the age barrier that the original facility had. When patients are denied a transplant at one facility (especially when it comes to age limits on transplants), it's always good to check out other facilities, as different facilities have different guidelines. Wishing you all the best...enjoy your "new life!" 💕

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