Fibromyalgia pain: Let's connect

Hi @parus and @oregongirl I was just going to post a question and saw your posts. It is nice to belong somewhere, even though this is not what any of us wanted but I hear you. Also the brain fog. I have that a lot as well. I think it is also part of my Chronic Fatigue. My mom had dementia and my two children and I cared for her and she lived with us for awhile and she passed from a stroke. She still knew us and all was not that bad yet, but my kids saw it and it was heartbreaking. I am afraid sometimes, is it hereditary, am I getting it??? I don't want my kids thinking it. They say sometimes omg mom your just like grandma joking, but .....I know it is "brain fog". I am exhausted all the time. Well this is what I was going to post so if anyone can help me that would be great.
Is anyone taking Savella for fibromyalgia? I heard that worked well with fatigue. Today is the first day I am taking it. I am weaning off the Cymbalta. I have been on Cymbalta for years and I think my body is immune to it now. I am extremely tired and achy. I have other issues. I have Chronic Fatigue, that is why I started the Cymbalta. I was diagnosed about 23 years ago. I had my first child and had to do everything, got sick, mono, Epstein bar then had to quit my job. Went to university where they were doing research on CFS which was great because they tested me for everything possible and free, but wasn’t getting help. Did a few trial meds but didn’t know if placebo…..so mom said no more and got a dr. and Cymbalta was key. I got better, it went into ‘remission’ I was able to even have a second child. Wasn’t working though, but a few years later returned to work. Then out of the blue diagnosed with MALS, my SMA and celiac arteries were narrowed from being encased by diaphragm fibers, blah blah, basicly it was smushing the arteries. Well major surgery, hospital for 7 days, on disability now. Can’t recoup….the CFS back. I did also have major family stresses during this time which did not help at all.
So question is anyone taking SAVELLA and then the dosage is one in morning and one at night. I thought that odd since it is suppose to help keep you awake. Can anyone tell me anything about that? I will ask my dr as well but sometimes better to hear from people actually using it.
Thank you and good luck to everyone suffering with fatigue, it makes everything magnified even worse I think.

Hi @parus and @oregongirl I was just going to post a question and saw your posts. It is nice to belong somewhere, even though this is not what any of us wanted but I hear you. Also the brain fog. I have that a lot as well. I think it is also part of my Chronic Fatigue. My mom had dementia and my two children and I cared for her and she lived with us for awhile and she passed from a stroke. She still knew us and all was not that bad yet, but my kids saw it and it was heartbreaking. I am afraid sometimes, is it hereditary, am I getting it??? I don't want my kids thinking it. They say sometimes omg mom your just like grandma joking, but .....I know it is "brain fog". I am exhausted all the time. Well this is what I was going to post so if anyone can help me that would be great.
Is anyone taking Savella for fibromyalgia? I heard that worked well with fatigue. Today is the first day I am taking it. I am weaning off the Cymbalta. I have been on Cymbalta for years and I think my body is immune to it now. I am extremely tired and achy. I have other issues. I have Chronic Fatigue, that is why I started the Cymbalta. I was diagnosed about 23 years ago. I had my first child and had to do everything, got sick, mono, Epstein bar then had to quit my job. Went to university where they were doing research on CFS which was great because they tested me for everything possible and free, but wasn’t getting help. Did a few trial meds but didn’t know if placebo…..so mom said no more and got a dr. and Cymbalta was key. I got better, it went into ‘remission’ I was able to even have a second child. Wasn’t working though, but a few years later returned to work. Then out of the blue diagnosed with MALS, my SMA and celiac arteries were narrowed from being encased by diaphragm fibers, blah blah, basicly it was smushing the arteries. Well major surgery, hospital for 7 days, on disability now. Can’t recoup….the CFS back. I did also have major family stresses during this time which did not help at all.
So question is anyone taking SAVELLA and then the dosage is one in morning and one at night. I thought that odd since it is suppose to help keep you awake. Can anyone tell me anything about that? I will ask my dr as well but sometimes better to hear from people actually using it.
Thank you and good luck to everyone suffering with fatigue, it makes everything magnified even worse I think.

Oh Lord Angie. I am so sorry. I used gabapenten and it worked for me. I just can't take opiates. Not because I get sick or anything. But I was hooked on them and it took TWO weeks of near death to get off of them. My doctor was furious that I did it with no help. I will never go thru that again. I was hooked on Morphine. My Dr never did anything for my RA except give me pain pills. He was a general practitioner. Who was not familiar with RA. I am so sorry Angie.

Parus, I have RA and I was also diagnosed with Fibro. I am presently see my doctors at the University of Texas Medical
center My doctor said I do not have Fibro I never thought to ask her - how do you know that? What is it they test to show that you have Fibro. I thought my RA had calmed down after 7 weeks of Methotrexate. But, I was SO Sick. I could not even eat. Everything came up. Even Liquid. So now I am on the Shots once a week. I start my Infusions next week. I am nervous about that Never having done the Infusions andI don't know what to expect. I was feeling so good and thought I had gotten the med into my body and then WALLA, pain came back. Today I have a headache. I feel so guilty as I cannot even clean the house. I usually do a bit here and there for about 15 minutes. I guess I should be thankful. I am sure there are many RA patients who cannot get up at all. Parus, I guess this is our life as long as we live.

I read your story. I was dx: in 2003 with Fibro and 2006 approved for SSI. It was not even recognized as a disease in 2003, I can hear where you are coming from I was there. One being alone all day is probably causing you some depression I did but there is the help. Also, all the trigger points i have 16. I took Norco 6x for 6 yrs until i realized that those drugs were killing me. Had my doctor put me on Tramadol 3xday only 50 mg and savella 100mg 2xd. I know you say you don\'t drive but if you want to know what i did you would have to figure out how to get there. I joined the gym aqua therapy is a blessing your weightless. I even got myself into the gym after the therapy and took it slow. I found the light impact very slowly to start. I felt better. Did not help with the sleep issues we do not go into Rem sleeping crazy. Hope my words helped you.

I read your story. I was dx: in 2003 with Fibro and 2006 approved for SSI. It was not even recognized as a disease in 2003, I can hear where you are coming from I was there. One being alone all day is probably causing you some depression I did but there is the help. Also, all the trigger points i have 16. I took Norco 6x for 6 yrs until i realized that those drugs were killing me. Had my doctor put me on Tramadol 3xday only 50 mg and savella 100mg 2xd. I know you say you don\'t drive but if you want to know what i did you would have to figure out how to get there. I joined the gym aqua therapy is a blessing your weightless. I even got myself into the gym after the therapy and took it slow. I found the light impact very slowly to start. I felt better. Did not help with the sleep issues we do not go into Rem sleeping crazy. Hope my words helped you.