fibromyalgia pain

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the ‘tender spot test’ several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I’m alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I’ve tried them all, I think), or anything, besides hobbies and such? I’ve tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn’t help, but I’m hoping one of our members might have some knowledge that could help. I’d really appreciate it.
hugz,
Clownscrytoo

@virtuous69

Hi all:. I am fortunate that my PC will write script for hydrocodone 7.5/acetaminophen 325 mgs. If We have to move away from San Jose,(losing our mobile home) I hope I can find another good PC wherever we end up. Wishing all of you many pain free productive hours today. I have so few of those, that I cherish those hours. Victorious 69

Jump to this post

No Discouraged like everyone else here. We are the little people.

REPLY
@lioness

There,s no respect for us over 70

Jump to this post

When I lived in Oregon, yes I used it. The oil. Never needed a pain Pill. What is happening is the drug companies want to take over the Marijuana.

REPLY
@parus

All I can say is I hope others have better experiences in getting help than I have. I know I am not assertive enough. I live in an area that is archaic in many ways. Moving again is not an option as I do not have another move left in me and where would I go? Anyone with a mental health history is labeled and their pain is not real…esp. Fibromyalgia. Doomed and damned by ignorance.

Jump to this post

Sucks, doesn’t it?

Ask for pain meds – you are instantly an addict looking for a high. It doesn’t matter if you are a grandmother that bakes cookies.

This is the reality we voted into place.

R

 

Liked by Parus, grandmaR

REPLY
@janet111

Hey clownscrytoo….if you have not found Arnicare Gel, I recommend it 100%. Janine

Jump to this post

I have, my hands, elbows and knees are in love! It is a God sent.

REPLY
@parus

Anyone else being accused of faking pain that has no history of such prior to fibro. Any trips to a doctor I do alone lest some else’s good intentions hinder the visit. Every thing is blamed on depression.

Jump to this post

Parus I learned to say No if I felt it was going to be to much for me I would politely refuse ,with this fibro we have to rest ourselves I am still active to a point but when a flare comes ,can't do anything

Liked by grandmaR

REPLY
@parus

All I can say is I hope others have better experiences in getting help than I have. I know I am not assertive enough. I live in an area that is archaic in many ways. Moving again is not an option as I do not have another move left in me and where would I go? Anyone with a mental health history is labeled and their pain is not real…esp. Fibromyalgia. Doomed and damned by ignorance.

Jump to this post

m a 75 year old Grandmother who cannot walk correctly, gets tired very fast and is in pain at all times. My grandkids will never know the real me. I turn 76 in April. I am so surprised I am still here. Amazing.

Liked by Parus, grandmaR

REPLY

CLOWNS You are just like all of us. However, you are very fortunate to have pain medication. Many of us on here are on Methotrexate and infusions now and then. Pain meds are a thing of the past.

REPLY
@oregongirl

Parus…I am so sorry you are facing such obstacles. It is enough to be filled with pain and add to that daily issues. Why do you have to move? What Sate do you live in? Can you call your church for help? What about the County. O get on your knees and talk to the Lord

Jump to this post

Please! Faith in your self first, then find someone to help off your knees?

REPLY
@parus

All I can say is I hope others have better experiences in getting help than I have. I know I am not assertive enough. I live in an area that is archaic in many ways. Moving again is not an option as I do not have another move left in me and where would I go? Anyone with a mental health history is labeled and their pain is not real…esp. Fibromyalgia. Doomed and damned by ignorance.

Jump to this post

I am a 63 year old grandmother and I cannot do anything well. Walking is a sometimes ability. I just had surgery on my neck so I hope it will help with my upper abilities. I do NOT want my grands to remember me as their sickly grandmother. I am working hard to become the grandmother they deserve and the grandmother I always wanted to be. I waited to become a grandmother for a long time and right now I can't be her. I hope we both become that amazing, funny and loving grandma our grands deserve!!!

REPLY
@parus

Anyone else being accused of faking pain that has no history of such prior to fibro. Any trips to a doctor I do alone lest some else’s good intentions hinder the visit. Every thing is blamed on depression.

Jump to this post

I am trying to learn to say, "No!" My problem is when I feel good I try to do all the things I can't when I am suffering a flair up. Problem is, I cause a flair up when I do that. It is my hubby who says no for me. He knows me well (as he should after 44 years). He knows I will push myself so he tries to stop me before I regret it. He is usually right!

REPLY
@parus

All I can say is I hope others have better experiences in getting help than I have. I know I am not assertive enough. I live in an area that is archaic in many ways. Moving again is not an option as I do not have another move left in me and where would I go? Anyone with a mental health history is labeled and their pain is not real…esp. Fibromyalgia. Doomed and damned by ignorance.

Jump to this post

One of my previous pain docs did a urine test for drugs at each visit. I rarely take a pain pill, but when I need it, I take one. I usually take less than 5 a month. But now, after surgery, I take 1 or 2 a day. I am very aware of what I do where pain pills are involved. I am a food addict and I know all too well that it can transfer to other addictions.

Liked by Parus

REPLY
@oregongirl

I would love to come to Mayo. However I am seeing my doctors at the University of Texas. I am sure they are the best. They know how I feel. Please let me know if you received my other two emails. My finger must be working against me today. I either deleted my message to you or it send partial answer.

Jump to this post

The reason why Fibro is so difficult to understand is because it is not a popular condition that is talked about. As a matter of fact until Lady Gaga mentioned it, I can only remember one time it was mentioned on a TV medical show.
Fibro is still a condition that many docs don't believe in. The old, it's in your head thing. As a result, not much has been researched or has changed.
Treatment has not changed since I was diagnosed over 30 years ago……PT, exercise, chiropractor, therapeutic massage, meds to get you into a deep sleep (the healing depth), rest when you are inflamed. Years ago, they didn't give me pain meds. Now, with what is going on, who knows???
We NEED more research, new meds and a way to diagnose Fibro other than by the process of elimination.

REPLY
@oregongirl

I would love to come to Mayo. However I am seeing my doctors at the University of Texas. I am sure they are the best. They know how I feel. Please let me know if you received my other two emails. My finger must be working against me today. I either deleted my message to you or it send partial answer.

Jump to this post

@oregongirl I have been known to ask someone if your legs were broke could you walk your pain off? I do the best I can and stay from people that see me as lazy. Their issue and one I no longer deal with. At 65 I realized I had thrown my entire life a way trying to please others. A waste to be sure. I also have OA, DDD in my neck and lumbar, 2 bad knees (theory here is go to the gym to build up muscle and my knees won't hurt) and I have not yet found a way to work on quads that does not put my lower back into spasms. The no pain no gain thing is overrated-my opinion. PT a while back for my knee had me in a fibro flare and I did my best trying to be compliant which resulted in being down again. As far as asking someone if they have ever had fibro-I would be seen as feeling sorry for myself. I do my best and this is all I can do. Just because a doctor tells me to do something does not mean I can follow through. Lazy has never been the type of person I am. My pain is due to depression I am told. Never has been a problem in the past and my depression is worse as there is some living I would like to do.

REPLY
@parus

All I can say is I hope others have better experiences in getting help than I have. I know I am not assertive enough. I live in an area that is archaic in many ways. Moving again is not an option as I do not have another move left in me and where would I go? Anyone with a mental health history is labeled and their pain is not real…esp. Fibromyalgia. Doomed and damned by ignorance.

Jump to this post

@robbinr Everyone is suspect. It is difficult for those without pain to understand the ones that have pain. Being repetitive here-the honest pain for the crimes of criminals.

REPLY
@parus

All I can say is I hope others have better experiences in getting help than I have. I know I am not assertive enough. I live in an area that is archaic in many ways. Moving again is not an option as I do not have another move left in me and where would I go? Anyone with a mental health history is labeled and their pain is not real…esp. Fibromyalgia. Doomed and damned by ignorance.

Jump to this post

@oregongirl I feel the same about the grand kids. I do have a lot of love and they know thus. Saw them on Sunday and I do not talk about my pain with my son and his family. I never thought I would see 66 and had I continued listening to others who believed doctors were right I may not be. Some of the meds were poison to me, caused bone damage,cataracts in less than a year, constant shaking and drooling. I went from strong, energetic, high achiever, a job I loved to what I am now. I still am and this is what matters to me.

REPLY
Please login or register to post a reply.